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August 28, 2024 | Issue 145 (View newsletter as webpage) Para leer este boletín en Español, haga clic aquí

Important News

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U.S. Depts. of Ed. and HHS Release Joint Letter on EDHI and IDEA part C Programs


The U.S. Departments of Education and Health and Human Services released a joint colleague letter to address critical gaps in service for deaf or hard of hearing infants and toddlers. The letter encourages increased collaboration between state Early Hearing Detection and Intervention (EHDI) programs and Individuals with Disabilities Education Act (IDEA) Part C early intervention programs.


Despite success in achieving near-universal newborn hearing screening, with 96 percent of all infants in the United States being screened for hearing loss by one month of age, significant gaps remain, including timely diagnostic audiological evaluations, referral to IDEA Part C for eligibility determinations, and loss to follow-up after not passing an initial EHDI hearing screening. 


To read the full letter and learn what collaborative efforts are highlighted, click here.

Paris 2024 Paralympic Games logo

Paralympics Begin Today: Television Coverage with Audio Description for Viewers Who Are Blind or Have Low Vision and More Accessibility Features


Today marks the opening of the Paralympic Games Paris 2024, which will continue through September 8, 2024. The Games will feature more than 20 sports, including two geared specifically for athletes who are blind or have low vision, goalball and blind football. For fans who are visually impaired, audio description will be available on all Paralympics live coverage. In Paris, an estimated 280,000 visitors are expected to be attending the games in person. Organizers have introduced “a few innovative services that will also mark a few firsts for the Paralympics.” Those attending events in person who are blind or have low vision will be able to “follow the action” with Touch2See, a tactile tablet offering a “live-action, immersive experience.” Audio descriptions will be offered through headsets, as well as low vision headsets to zoom in on the action.


For more coverage information, click here.

Resources

SPAN logo

We're Hiring!


The SPAN Parent Advocacy Network is a nonprofit organization whose mission is to empower and support families, and inform and involve professionals interested in the healthy development and education of children and youth.


To read the featured job posting and learn the key job responsibilities and requirements, click here.

Cover photo of Family Voices En Espanol Magazine

Family Voices is excited to Share

Family Voices en Español!


The online magazine was developed in collaboration with family leaders from across the country and is available in Spanish and English.

Learn from families like yours who are making a difference in their communities for children and

youth with special health care needs.


To access the magazine in both English and Spanish, click here.

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Disabled Adult Child Presentation (DAC)


Regional Family Support Planning Council #8 will be hosting an online presentation by Connor Griffin, Director of Health Care Advocacy at the Arc of New Jersey, regarding the Disabled Adult Child (DAC) status on September 12th from 7:00 - 8:30 PM. The presentation will cover what happens to a person with disabilities’ financial and health benefits when a parent retires, becomes disabled, or passes away.


To register, click here.

RAISE Center logo

The Youth Engagement Now Project: Practical Youth Engagement Tools for Parent Centers


Monday, September 16th, 2024

2:00 pm

Online


This session will showcase the youth-led, youth-driven "Youth Engagement Now" Project (YEN). Youth leaders from across the U.S. joined forces to develop a set of tools for individuals or organizations to effectively engage youth and young adults with disabilities. Join us to hear from YEN members about how the project came together and get a chance to explore the resources they created for use by parent centers. 


ASL interpretation & Spanish interpretation will be offered! Click here to register.

Upcoming Events


SPAN offers a variety of learning opportunities for families and the professionals who work with them.


Highlighted Event This Week

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Pediatric Asthma Workshop


1 in 4 children in Newark are diagnosed with Asthma on a consistent basis. Asthma in children is a topic not discussed as often as we need to and there are parents in our communities with children who are suffering from asthma and are

at risk of complications. These virtual experiences will allow parents/caregivers of children with or without asthma to understand how to properly manage their child’s asthma condition.


GNHCC, SPAN, and Rutgers School of Pharmacy students are excited to announce we are hosting a VIRTUAL Pediatric Asthma workshop!


Please save the following date and information:


Pediatric Asthma Workshop (Virtual)

  • Organizations Hosting: SPAN, GNHCC, and Rutgers University
  • Date: September 26, 2024
  • Time: 7:00 PM
  • Location: ZOOM


To register, click here.


See all of SPAN's upcoming events with details and registration links here 

Para recibir la edición en Español de este boletín semanalmente en su correo electrónico 

haga clic aquí para suscribirse
SPAN Youth Hub graphic including a photo of "Vote" buttons

Rock the Vote's Tech for Civic Engagement


Read our latest youth blog post, "Rock the Vote's Tech for Civic Engagement," on innovative tools that simplify voter registration, status checks, absentee ballot requests, and election reminders, all designed to make democracy more accessible for young voters.


To access the post, click here.

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