An Uncomfortable Life: Getting Comfortable with Being Uncomfortable
The perspective of Ethan Morrobel on living with Usher syndrome type 1b
In an article authored in the latest EP Magazine, college student Ethan Morrobel provides his story of growing up with Usher syndrome type 1b,which meant he was born with hearing loss, tunnel vision that his slowly turning to black and balance issues.
Ethan relays how, with advocacy from his parents, he learned to use sports and exercise to build his confidence, help address his balance issues, and lead him to become more "comfortable" living in an uncomfortable situation. Ethan shares this rare condition with his brother, Gavin, which has helped them both to push each other and overcome challenges when needed, and to be there as a knowing, built-in support system.
Ethan and Gavin are the children of Pamela Aasen, the former Early Hearing Detection and Intervention Project Director at SPAN.
To read about Ethan's fascinating, inspiring journey, please click here.
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