The Waldenstrom's Weekly

April 19, 2024

Volume 4, Issue 16

The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.

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- Special Announcements -

The IWMF Ed Forum is in TWO Weeks!

Immerse, Explore, Soar at the 2024 Ed Forum on May 3-5 in Renton, WA!

It's not too late to reserve your front-row seat, whether in-person or virtually, for Ed Forum 2024. Don't miss out, we'll have WM Rockstar speakers from the United States, United Kingdom, AND Australia! Check out the agenda, and register below!


For those attending in-person, our Renton Recreation Guide is full of fun ideas for exploring the Pacific Northwest.

Register Here for In-Person
Virtual Registration Here

WM World Awareness Day

On Wednesday, April 17th, the IWMF along with the WM global community recognized the first-ever Waldenstrom's World Awareness Day. Support groups held in-person events in the US and in South Africa, and an online awareness campaign reached France, Portugal, Sweden, China, and Australia to name just a few countries.


Thank you to all of the global WM community for coming together and raising awareness of WM.

Haematology Patient and Carers Congress (HPCC)

May 10th in London, United Kingdom

hematology & carers congress May 2024 in London, UK

A first ever, cross-disease site, Haematology Patient and Carers Congress (HPCC) 2024, will be held at the Queen Elizabeth II Centre in Westminster, London on May 10th, 2024.

 

The one-day congress will offer support, education, and networking opportunities for patients, their families, and caregivers. 

 

The agenda has been specifically curated by patients, charities, patient organizations, and a clinical advisory board co-chaired by Professor Claire Harrison, GSTT, and WM Specialist Rockstar, Dr. Shirley D'Sa. (Dr. D'Sa will also be speaking at the IWMF Ed Forum from May 3-5 - see details above).  

 

This event is free of charge. For further information please click here to register. 

- Education -

Recording Available!

IWMF Global Educational Webinar

Familial WM Research from the Frontlines

photo of dr. susan slager




Speaker:


Dr. Susan Slager


Mayo Clinic

Don't miss this recording! Watch the one-hour presentation and Q&A session, which covers information and updates about familial research being conducted at Mayo Clinic, Rochester, MN. Please fill out the post-session survey HERE too!

Watch Here

Check out the brochure HERE for details about what is involved in participating in this important studyThis study is open to patients in the United States. Patients outside of the US may be considered if they come to Mayo Clinic Rochester for care. To enroll or for questions, contact 855-899-0693 or Catherine Erding, Clinical Research Coordinator, at Erding.Catherine@mayo.edu.

Want to Learn about Gut Health Next Week?

Leukemia & Lymphoma Society Webinar

Gut health webinar from LLS on April 23rd

How your gut health can affect your blood cancer treatment and quality of life

Tuesday, April 23, 2024, 1:00 – 2:00 p.m. ET 

 

You are what you eat, and researchers are learning that this principle can apply to blood cancer treatment and your quality of life! Changes to your gut microbiome – the community of microbes, fungi, viruses, and their genes in your digestive system – can boost your immune system and benefit your treatment.



Join Dr. Bertrand Routy, scientific director at the University of Montreal's microbiome centre, as he tells you why and how your gut health matters.

Register Here
- Support -

YOGA NIDRA - TODAY at 2:00PM EDT

Yoga Nidra April 19th at 2PM eastern time

Yoga Nidra has been shown to decrease stress levels, improve sleep quality, elevate well-being, and increase the mindfulness of the participants. Practice this guided relaxation while lying down on a bed or couch. Reach out to anngrace@iwmf.com to receive our Zoom invitation and follow-up recordings.

Cardio Flow - April 26th at 2:00PM EDT

cardio flow friday april 26th at 2PM eastern time

Challenge your coordination and balance while addressing symptoms like fatigue and peripheral neuropathy. Get your body moving with repetitive, simple movements within the safe space of our WM community. Improve blood flow, balance, and mobility! Optional: stick around to connect with the WM wellness community after class. Reach out to Ann if you’d like the Zoom invitation or recording at anngrace@iwmf.com.

Wellness Programming at the IWMF Ed Forum

The Ed Forum is an exciting opportunity to learn from the best and meet friends for life, while also slowing down for self-care. Take exquisite care of yourself with a morning meditation, a stretch break during our general session, or join one of our afternoon offerings, such as Sound Meditation or Community Yoga (also available virtually). Discover the surrounding area during group community walks throughout the weekend. We’re excited to support your well-being so you can immerse, explore, and soar! Learn more on our website at iwmf.com, or reach out to Ann Grace at anngrace@iwmf.com.

Featured Wellness Recording

Gentle Mat Yoga video

IN CASE YOU MISSED IT: Gentle Mat Yoga with Ann Grace

Here’s what you’re saying about this new offering: I loved the mat class! It was just my speed. I was worried about making the transitions, but with our instructor’s expert advice about how to get up and down most easily and with the relaxed pace, I was able to execute all these moves without pain. I felt wonderful by the end of the class, and I hope there’ll be more mat classes, in addition to our regular chair yoga classes. It was such a great start to the day!” - Anne M., Canada. If you’d like to be added to the mailing list for future classes, email Ann Grace at anngrace@iwmf.com.

Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email info@IWMF.com or visit www.IWMF.com

IWMF, 6144 Clark Center Ave., Sarasota, FL 34238 | info@iwmf.com | 1-941-927-4963
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