The Waldenstrom's Weekly

August 16, 2024

Volume 4, Issue 31

New Video Highlights from IWMF's 2024 Ed Forum!

You could feel the positive energy in the air, and everyone was so eager to share, educate, and provide encouragement. This truly is a unique group of people.

--Chuck Moores, Forum First-Timer (see the July 2024 issue of the Torch for Chuck's article about his experiences at the 2024 Ed Forum)

We invite you to visit our newly updated IWMF Educational Forum page on the IWMF website to watch sessions (now with captions!) you might have missed, or, if you were in attendance, scroll down to the bottom of the page to watch the 2024 video highlights, look for friends, reminisce, and get a taste of what to expect when we meet again next year in Ponte Vedra Beach, Florida.

IWMF’s annual Educational Forum provides a unique opportunity to learn and connect with Waldenstrom’s macroglobulinemia (WM) specialists, clinicians, researchers, patients, and caregivers, all working together to find a cure and improve the lives of everyone in the WM community. The three-day program of the 2024 Ed Forum featured pertinent and timely information about the rapid progress researchers are making toward finding a cure, symptoms, and complications of WM, current treatment options, new therapies, and tips on living and staying well. It was truly an opportunity to Immerse, Explore, and Soar!

If you are looking for more ways to access the latest information on WM, you might also consider attending the European WM Patient Forum on September 21, 2024, in London. This unique meeting will include presentations from world-leading experts, as well as opportunities to meet clinicians and ask questions, hear about the experiences of other patients, and meet with other people living with WM. Visit this page on our website to learn more and register for this great opportunity to connect and learn in-person or virtually with our international community!

Matching Gift Challenge!

For a limited time only, might you consider a donation to support WM-NET? Every dollar will by matched dollar for dollar by the Hamberg Family WM-NET Challenge. Accelerate the Cure supports WM-NET, a network of 20 US academic cancer centers that is newly formed to conduct and align WM clinical trial enrollment. This exciting alliance is the first for rare diseases. More patient enrollment—>quicker results—>quicker to drugs that work. IWMF leads the way!

Donate today!

Accelerate the Cure is much more than a campaign slogan. It’s our next 31 million USD effort, over five years, to find a cure and support those with WM and their caregivers. Global researchers have a new set of WM research targets, and they are afire with excitement. We believe we can find that cure, and we hope 100% of our WM family will contribute! IWMF has three Research Opportunity Funds for your consideration: One for global research, one for WM-NET to accelerate clinical trials, and one that funds the next generation of researchers. We have a fourth fund that enhances our ability to be the world hub for WM education and support. In the months ahead, through this weekly and the Torch, we will illustrate the research progress that is rapidly accelerating through donor investment.

We encourage you to visit our Accelerate the Cure page on IWMF’s website to learn more and perhaps contribute. We invite conversations. Contact us at: office@iwmf.com.

The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.

Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on "download photos" at the top to view all content. For more information, email info@IWMF.com.

DONATE TODAY

IWMF, 6144 Clark Center Ave., Sarasota, FL 34238 | info@iwmf.com | 1-941-927-4963