The Waldenstrom's Weekly

June 28, 2024

Volume 4, Issue 26

The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.

- Special Announcements -

IWMF Funds $3,157,000 in Research

In pursuit of a world without WM, the IWMF Board of Trustees announced the twelve principal investigators for research grants totaling USD 3,157,500.

These grants, approved and recommended by the IWMF Research Committee, have been awarded to proposals with the greatest potential for advancing the prevention, diagnosis, and treatment of Waldenstrom's macroglobulinemia. 

Congratulations to each of our 2024 principal investigators! A list of the grants and principal investigators can be found here: 2024 Research Grant Announcement

Coming Soon! Next Edition of Torch

If you haven’t already signed up to receive a copy by mail, visit here to join our community today. Our magazine covers the latest information on Waldenstrom’s macroglobulinemia education, research activities, and treatments.

Inside this issue you’ll find the latest news from the IWMF community, including a recap of Ed Forum 2024. The accessible, digital edition will be available on our website next week, along with past issues at IWMF Torch Online.

Seeking IWMF Torch Science Editor

The IWMF Torch is looking for a writer who has a medical background and is able to write about the research grants and other science matters in laymen's language. We were very fortunate to have had Glenn Cantor as our science editor for several years.

If you're interested in writing for us, please refer to examples of Glenn's work in past Torch issues to make sure it's a good fit. Check out his article on Page 15: IWMF Torch January Issue 2024.

We're seeking one article quarterly, which would include our research grants, as well as other WM-related science articles of interest to our readers. Please contact Shirley Ganse by email with the subject line "Torch Science Editor." We look forward to hearing from you!

- Education-

Upcoming Webinar from A Patient Story

Join A Patient Story for an essential webinar on WM, “watch and wait,” and the effects on patients’ mental health. This program will feature two experts in the field of cancer care, Dr. Jonas Paludo from Mayo Clinic, Rochester MN, and Dr. Shayna Sarosiek from Dana-Farber Cancer Institute. 

Recording from BMT InfoNet:

Microbiome: What It Is and Why It's Important to Your Health

Join Dr. Urvi Shah, Memorial Sloan Kettering Cancer Center, to learn about the impact of gut microbiome diversity to your health, and how a high-fiber, plant-forward diet can strengthen it.

Cardio Flow – TODAY at 2:00PM ET 

Motion is lotion! Challenge your coordination and balance while addressing symptoms like fatigue and peripheral neuropathy. Improve blood flow, balance, and mobility. Reach out to Ann for the Zoom invite or recording at anngrace@iwmf.com.

In Case You Missed It: Yoga Nidra

Rest is a powerful and much-needed medicine for many of us. Accessing this innate state of relaxation is one of our goals during Yoga Nidra, a guided meditation where we are given cues to release effort and explore the internal mind-scape. Give it a try!

Mark Your Calendars: Wellness Just for You

Reach out to Ann Grace for more info on any of our wellness offerings: anngrace@iwmf.com.

WM Community Corner

On June 20th, IWMF Support Group Leadership met with Christina Bach, MBE, LCSW, OSW-C, FAOSW for a fabulous US-based presentation on Insurance Essentials for Individuals with Cancer. Christina is the Psychosocial Content Editor for OncoLink.org, and a Financial Navigation Specialist for the Cancer Support Community Helpline.

Looking for a lightweight shirt to beat the heat this summer while raising awareness about WM? Check out these new WaldenSTRONG shirts in our IWMF Shop!

Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email info@IWMF.com or visit www.IWMF.com