VHF BOARD OF DIRECTORS JULY 1, 2021 - JUNE 30, 2022 |
The board of directors is the governing body of VHF. Board members meet periodically to discuss and vote on the affairs of the organization, to support the work of VHF, and to provide mission-based leadership and strategic governance. Board terms align with our fiscal year and begin on July 1st. Go here to learn more.
We would like to extend a warm welcome to our newest board member - Vivek Kshetrepal! Vivek has been an active member of the VHF Development Committee, the VHF Unite Walk Committee as well as a top fundraiser for the Unite Walk. Also a big thank you to Monika Eiden who is rotating off the board after many years of service, we are thrilled that she will continue to be involved as an engaged member of the VHF Unite Walk Committee and a top walk fundraiser!
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UNITE FOR BLEEDING DISORDERS WALK |
Date/Time: Sunday, October 17th at 1:00 pm
Location: Robious Landing Park, Shelter 3 - Midlothian, VA
Your bleeding disorders community needs you at our 2021 Unite Walk! This event is about more than just fundraising - it is a day where our community and everyone who supports it can come together to celebrate each other and support each other! The event will include a DJ, live entertainment from magician Jonathan Austin, refreshments from Krecek Kakes, and fun for people of all ages! NEW this year: our partners at Camp Holiday Trails will join us for some fun activities for all ages!
We hope you will join us in person or celebrate virtually by walking with your friends and family in your own neighborhood.
Register and get three people to join your team this month to be entered to win an Outback Steakhouse gift card! Every dollar raised for the Unite Walk stays 100% local to VHF and goes toward supporting our educational programs, advocacy efforts, and community programs.
Recognition Items for Individual Fundraising:
- $25- Unite Walk T-shirt
- $250- Unite Camp Mug
- $500- Factor Club Medal
- $1000- Unite Tech Kit
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VHF EARNS 2021 GOLD SEAL OF TRANSPARENCY FROM GUIDESTAR |
VHF is honored to have recently earned a 2021 Gold Seal of Transparency from GuideStar by Candid! GuideStar by Candid is an information service specializing in reporting on U.S. nonprofit companies. In 2016, its database provided information on 2.5 million organizations. Learn more about VHF's impact through our GuideStar by Candid Nonprofit Profile Page. |
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CONGRATULATIONS LYMAN FISHER SCHOLARSHIP RECIPIENTS! |
During the March Bleeding Disorders Awareness Month Campaign we raised $6,500 (our goal was $2,500!) which allowed us to increase our Lyman Fisher Scholarship awards from two recipients to four! Congrats to our Scholarship Winners – Nick Cleghorn, Alexander Krecek, Eden Laubscher, and Josiah Walker. |
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Nick Cleghorn "I really appreciate being selected for the VHF Lyman Fisher scholarship. Living with Hemophilia has always had its challenges, but the support of the Hemophilia community and learning from others has been of great support to me. In the fall, I will be attending Chowan University and majoring in business management while also playing baseball. This scholarship, along with the support of my family and the community, will help me achieve my goal of being a student athlete in college. Thanks for believing in me and granting me this opportunity."
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Alexander Krecek "This scholarship means a lot to me because it will help me continue my studies at a school that actually allows me to major in something that I am truly passionate about. Every little bit helps relieve some of the stress that the rising costs of going to college brings with it."
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Eden Laubscher "This scholarship will help pursue my dreams of going to college to become a teacher. It will help me pay for my tuition at James Madison University, where I will study elementary education. I am so thankful for this opportunity that will help me further my education."
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Josiah Walker "Thank you so much for this offer. I am excited to accept this scholarship not because it will help me afford school, but also because it is from a community that has played such a vital role in my life. I am thankful for this award, the Hemophilia community and looking forward to attending college."
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HANDI - NATIONAL HEMOPHILIA FOUNDATION'S (NHF'S) INFORMATION RESOURCE CENTER |
NHF's information resource center HANDI is ready to assist you! Now in its 30th year, HANDI continues to be a trusted source of information and referrals for those affected by inheritable bleeding disorders and the general public.
Information specialists are adept at providing the latest resources on a wide variety of bleeding disorder-related topics, including but not limited to:
- Hemophilia
- Von Willebrand disease
- Women and girls with bleeding disorders
- Rare factor deficiencies
- School issues
- Aging issues
- Financial assistance
- Gene therapy
HANDI has access to education and information resources in print, digital, and video formats, and provides referrals to healthcare providers and HTCs, local chapters, and to other support organizations based in the United States and abroad.
There are several easy ways to reach HANDI:
The HANDI Team looks forward to hearing from you!
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NHF'S BLEEDING DISORDERS CONFERENCE (BDC) |
Date: August 26 - 28, 2021
Location: BDC 2021 will be held online in a fully virtual environment
Who can attend: Anyone in the bleeding disorders community – patients, caregivers, physicians, experts, advocates, etc.
BDC 2021 will feature more than 90 educational sessions, poster abstract presentations, industry symposia, networking and social events, and exhibits. A lineup of dynamic speakers will provide essential information and insights on the evolving landscape in this exciting new era of treatment for hemophilia, von Willebrand disease, and rare bleeding disorders. Some sessions not to miss this year include the VWD pre-conference workshop, gene therapy, health insurance navigation, telemedicine, mental health and wellbeing, and new developments in 2021. Finally, the NHF 2021 Awards Ceremony will recognize outstanding leaders of the bleeding disorders community whose achievements and contributions have helped transform treatment and care.
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HEMOPHILIA FEDERATION OF AMERICA (HFA) SYMPOSIUM |
Date: October 18-28, 2021
Location: Originally set to take place in San Antonio, this annual conference is now a fully virtual event.
This beloved family event has become known as a national “family reunion” for the bleeding disorders community, allowing community members, their families and caregivers to come together for camaraderie and education, and the decision to move virtual again in 2021 may be difficult news for community members looking for that personal connection. HFA has formed a mental health task force to continue addressing the concerns of the bleeding disorders community around depression, anxiety and the personal disconnect some may be feeling due to the pandemic.
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VHF & HACA POP-UP DAY PROGRAM WITH CAMP HOLIDAY TRAILS |
This Summer we are working with Camp Holiday Trails (CHT) to bring an in-person family camp to a park near you and your family!
Date/Time: Saturday, August 7th at 10:00 am
Date/Time: Saturday, August 14th at 10:00 am
*Only one day program/location per family
What you can expect:
- A safe in-person event that will include protocols such as mask-wearing, social distancing, and using a family “pod” model
- Creative activity programming for the whole family
- At least one parent and/or caregiver per family needs to be in attendance
- Programming is geared toward ages 5-17. Ages 5 and under are welcome to attend, but there will not be any childcare/supervision provided
- Boxed lunch and snacks during event
- CHT t-shirt and other swag!
*All in-person safety protocols will be based upon the recommendations of the Camp Holiday Trails Medical Advisory Committee, and they will continue to monitor local, state, and federal guidelines.
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VIRTUAL EDUCATION SESSION: LESSON PLANS - NAVIGATING SCHOOL WITH A BLEEDING DISORDER |
Date/Time: Thursday, August 19th at 7:00 pm
Location: Zoom
Topic: Lesson Plans: Navigating School with a Bleeding Disorder
Learn how students, parents, family members, and school staff can work together to provide a positive learning environment for students with a bleeding disorder—from preschool through college.
Speaker: Jan Martin, Nurse Educator, Takeda
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COMMUNITY RETREAT AT TOPGOLF RICHMOND |
Join YOUR bleeding disorders community for education, lunch, golf instruction, and community building at Topgolf Richmond!
Date/Time: Saturday, September 25th at 10:30 am
Location: Topgolf Richmond
We are pleased to announce that our 2021 Community Retreat will be held in-person. VHF will follow guidelines based on recommendations from the CDC and local and state health departments. With your cooperation, these guidelines will allow us to safely host this event in-person. We will send these guidelines to all registrants closer to the date of the event.
Educational program, scheduled meal, and 2 hours of unlimited golfing provided at no cost for constituents that live in the VHF coverage area. If you are a constituent that lives outside of the VHF coverage area and you are interested in registering for this meeting, please email heather@vahemophilia.org for more information.
Travel Assistance: For constituents that are currently facing a financial hardship and require assistance in order to attend this program please contact Kelly Waters at kelly@vahemophilia.org or 804-740-8643.
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