The Informer May 2024

Espanol

Чтобы перевести этот информационный бюллетень, посетите

Щоб перекласти цю розсилку, відвідайте

Để dịch bản tin này, hãy truy cập

To Translate the contents of the Newsletter into different languages visit https://peacenw.org/the-informer/

Thursday, May 16, 2024, help us celebrate the 13th Global Accessibility Awareness Day (GAAD)!
The purpose of GAAD is to get everyone talking, thinking and learning about digital access and inclusion.
Did you know that more than One Billion live people with disabilities/impairments? How can we work together to support accessibility?
For more information on how others celebrate GAAD visit their website: https://accessibility.day/events/


April showers bring May flowers...isn't that what they say?

May is here and we hope you join us in supporting individuals with disabilities, by learning, growing and work together. Read on to learn how PEACE NW will be implementing and promoting accessibility:


  • Learn how we will be utilizing a 3D printer
  • Save the date for events that support parents, partners, and self advocates all working towards enhancing the quality of life for individuals with disabilities
  • Educate yourself on the changes to Social Security




Or contact us at:

360-823-2247

info@peacenw.org


We are here to help!


- The PEACE NW team


Extra, Extra! Read all about it!

If you don't know Rory Banaszek, then it is our pleasure to introduce you to him. Rory is an asset to the PEACE NW team often supporting marketing and administrative tasks. Rory's role has expanded to being the first operator of the PEACE NW 3D Printer!


Rory will focus on creating tools to help individuals with mobility and dexterity limitations have a more independent life. Rory will focus on bottle openers and supports that can help individuals plug and unplug things we all use and perhaps take for granted. Picture not being able to charge your phone because you don't have supports. PEACE NW and Rory wants to change that!





What you should know about Rory is his vision for the future. Rory wants 3D printers to be more cost effective so they can be a household item. While 3D printers range in prices, they are not affordable especially to population who have limited income.






PEACE NW wants to thank the Washington Assistive Technology Act Program (WATAP) who continue to work towards assistive technology improvements. Team members of WATAP trained members of the PEACE NW team on how to utilize our new device so we can remove barriers for our disability community.


PEACE NW Events

We invite you to participate in a thorough and insightful parent training session hosted by PEACE NW.

This training is designed to give you the necessary tools and knowledge to effectively support parents of children with Intellectual and Developmental Disabilities (IDD).


We believe that your participation in this training will not only enhance your understanding of the challenges faced by these families but also empower you to provide invaluable assistance and guidance. Join us as we work towards fostering a more inclusive and supportive community for individuals with IDD and their families.

 

When: Thursday, May 30th, 12:00-2:00 p.m.

Where: Via Zoom

Register Here: lp.constantcontactpages.com/ev/reg/2wztvmg


For more information or questions on this event:

  • Contact our Peace NW Parent to Parent Coordinator, Erin Maher
  • Call/Text: 360-609-8377 Email: ErinM@peacenw.org

Special Celebrations Formal Dance!


Event Details:

  • Ages 16 and Up
  • Dressing Up is Optional


Activity Stations Include:

  • Make-Up, Hair, Refreshments, and More
  • Parent and Caregiver Area Available







When:

Saturday, June 15th, 2024

2:00 PM – 4:00 PM


Event Location:

501 SE Ellsworth Rd

Vancouver, WA 98664


Register Here: https://bit.ly/3xNpTg6


Questions?

Contact: Theresa Van Pelt

Email: TheresaV@peacenw.org

Call: 360-823-2247 



Together We Thrive - Birth to Five 

Wednesday Mornings 9:30am - 11:00am

Join us for a play and community building group created with children 0-5 and their caregivers! this Playgroup is open to all abilities and creates a safe space for children with developmental needs/delays.


· Connect with other Caregivers

· Embrace Neurodiversity 

· Learn about Community Resources

· Play and build a Routine

· Let's create a brighter future together!



Registration is required please register here: https://forms.office.com/r/D91VRNbELb


For Questions contact: Tanya English tanyae@peacenw.org or Erin Maher emaher@peacenw.org or call 360-823-2247

Virtual Office Hours

Wednesdays from 11:30am – 12:30pm – No RSVP Needed

Drop in to ask questions, get help navigating resources, find support and connect with PEACE NW staff.

Meeting Link: https://us06web.zoom.us/j/82750543069?pwd=iOxwCFaawLF0rUktSadqGgWdFIFKdm.1#success

Meeting Passcode: PEACENW

Special Celebrations - Facebook

Special Celebrations is a parent volunteer led support group, creating social opportunities, sharing resources and celebrating our loved ones who experiences special needs.

https://www.facebook.com/groups/1626605450936931



Online - People First of Southwest Washington

A group for adults with Intellectual and Developmental Disabilities interested in advocacy and community education. First and third Tuesday of every month Online 4:30 pm to 6 pm

https://conta.cc/3Rlm1HT


Online/In Person - Building Independence

A group for young adults who connect, socialize, and learn about topics of their choice. Group is mostly over zoom with special meetings in person.

Thursdays 6:00-8:00pm 

https://lp.constantcontactpages.com/ev/reg/y78nj9y


Save the Date For Partner Events!



Date & Time: May 19, 2024. The Mini Marathon (2.62 miles) starts at 9 am for walkers, rollers, and runners. Virtual participants may choose to complete the event anytime.



Parking: There is parking in the Frenchman’s Bar park near the shelter and in the adjacent lot. There is a $3 fee to park. Make sure you bring exact change so you can get in quickly.


Course: The course is very flat. It begins by the Riverview Picnic shelter and will be an out and back on the double-wide paved trail. Volunteers will be at the turnaround to direct participants. The total course distance is 2.62 miles, but participants may turn around at any point to accommodate a shorter distance.


Packet Pick-up: Packet pick-up will be on-site the day of the event at the Riverview Picnic Shelter at Frenchman’s Bar starting at 8 am. Packets will include a swag bag. Additional Micah's Miles merchandise will be available for purchase at the event.


Pre-Registration: Please register online by May 1st to guarantee a hat. Online registration will be open through event day.


Bathrooms: There are accessible bathroom facilities 200 yards from the Riverview Picnic Shelter in Frenchman’s Bar Park (start/finish line).


Food: There will be coffee, water, and snacks available.


Registration fees: 45 dollar registration fee includes race registration hat of your choice, socks, and swag bag (you will need 3 dollars cash to park the day of the race at Frenchman’s Bar Park).


Register here: https://raceroster.com/events/2023/73504/micahs-mini-marathon



Washington State's Special Education Advisory Council (SEAC) is hosting an in-person community forum!


When: Tuesday, May 21, 2024, from 5:30-7 pm


Where: Walla Walla Center for Children & Families (1150 West Chestnut, Walla Walla, WA 99362)


Who should attend?: This forum is for parents and community partners to learn about the role of the SEAC and engage in a discussion of inclusionary practices in early learning.


Please register for the forum by May 17, 2024: https://bit.ly/SEACForum

There will be Spanish language interpreters available. If you need additional language interpretation at the forum, please RSVP no later than May 3, 2024


May the 4th be with you!

Calling all Star Wars fans please join Peace NW with supporting a partner in the work of disabilities. The Autism Research and Resources of Oregon (ARRO) plays a fundamental role when it comes to supporting Autism research. Star War fans or not, attending this event is well worth your time.



To learn more about this organization, and to register for this event please visit the ARRO website: https://arroautism.org/

Want to be part of something inspirational and fun?



  • Do you love to run?
  • Needing community service hours?
  • Got time on your hands this summer?
  • Are you free on June 29th-July 3rd, 2024?



Well, may we suggest you volunteer to teach kids with disabilities to ride two-wheel bicycles independently!

Find out more here: volunteer.bikefirst.net


Great News about Social Security Insurance (SSI)!





Food is no longer In-Kind Support (ISM)!


As of September 30, 2024, food is no longer considered In-Kind Support and Maintenance for those receiving SSI. Just as clothing was dropped off the list of “food, shelter and clothing,” now food has dropped off the list. This means anyone (or a trust) can pay for food for an SSI recipient and it does not need to be reported and it will not count against their SSI payment.


For folks not yet familiar with SSI (Supplemental Security Income), let me explain. When your child with disabilities turns 18, you’ll help them apply to the Social Security Administration for needs-based government benefits: SSI and Medicaid. For 2024, the monthly SSI payment is $934. This is supposed to cover one’s basic living costs for food and shelter. Of course it does not come close. But if someone ELSE pays for food and shelter, then Social Security wants to know so that the SSI payment can be reduced. In other words, if you bought groceries or a meal for your loved one on SSI, you were supposed to report this to Social Security so they could reduce the SSI payment by the value of that food. Ridiculous. And now the ridiculousness is a thing of the past. Social Security does not care that you buy food for your family member. 


Now, only housing costs paid for by someone other than the SSI beneficiary need to be reported to Social Security. And the rules about that are changing for the better too. More on that soon.


Great News about SSI – Overpayments won’t be as painful!:


When Social Security determines an overpayment has been made to an SSI recipient, they will no longer take 100% of the SSI check until the overpayment is resolved. Now, Social Security will take only 10% of the monthly check.  Hooray!


If your SSI is currently getting docked 100% due to an overpayment, be sure to call Social Security and request a manual adjustment to 10%. And don’t forget to request a waiver of the overpayment altogether based upon hardship. 


Of course, if you receive an overpayment notice, you should appeal it immediately -- within 10 days. If you appeal it within 10 days, your benefits continue unaffected during the appeal process. An appeal is called a “request for reconsideration.”  Many people make a request for reconsideration of the overpayment and also request a waiver of the overpayment due to hardship. Sometimes that overpayment was a mistake by Social Security so don’t hesitate to appeal it.



Simplification of Shelter cost:


Starting September 30, 2024, Social Security is doing a whole new thing about housing for SSI recipients who live with family members. The agency is changing how it handles In-Kind Support and Maintenance (ISM) in the form of a rental subsidy. In other words, Social Security is done torturing folks about what they are charging for rent or for “fair share contribution” from the SSI recipient. 


We all know that the $943 of monthly SSI is not enough to pay for the basic costs of living, for food and shelter. What can you rent for that?! So naturally many SSI recipients live with their parents or other family members. And under the current policy, SSI requires that the SSI recipient be charged rent or a fair share contribution. And folks drive themselves crazy trying to figure out what that should be. And if it’s not considered enough by the agency, then SSI benefits get reduced.


Funny thing is, folks in seven other states have been doing things differently. Their state courts ruled that so long as the SSI beneficiary is spending more than a third of their income on housing, then that is good enough, even if that means their rent is less than current market value. 


Now, Social Security has decided to make that easier rule the national standard. Hooray!


Starting September 30, 2024, an SSI recipient just needs to show Social Security a written “business arrangement” whereby they pay $354.33 per month to live in that home. If they do that, Social Security will be satisfied. Even if market rate rent or “fair share” portion to live in that home is much higher.


This “business arrangement” rule means no more guessing what your loved one should be paying to live at home. 


Here’s how I think this is going to work. The payment required for shelter needs to be no more than 1/3rd of the Federal Benefit Rate plus $20. The Federal Benefit rate for 2024 is $943. One third of $943 is $334.33. Add the $20 and you have $354.33. 


Keep in mind the Federal Benefit Rate changes each year. It is $943 for 2024 but likely will go up in 2025. This means your shelter “business arrangement” goes till December 31st and then you recalculate based on the new SSI amount for the next year.


Submitted to PEACE NW by:

Eva M Luchini, JD

Estate Planning

Special Needs Trusts

Alternatives to Guardianship

 

Law Office of Eva M. Luchini, PLLC

www.luchinilaw.com

360.817.0007

Eva@LuchiniLaw.com

723 NE 4th Ave. Camas, WA 98607


Informing Families Spotlight: Alternative Living Provider (ALP)



What is an Alternative Living (AL) Provider?

An AL provider supports clients who are 18 or older, living in their own home or a family member’s home. As an AL provider, you will provide support to increase or maintain the individual’s independence in the home and the community. Goals will be created with the individual and the case manager.


The AL will support these goals through teaching and training methods. Some of these skills may be in:

  • Establishing a residence
  • Home living
  • Community Living
  • Health and Safety
  • Social Activities
  • Community Integration
  • Protection and Advocacy
  • Any other skills identified in the individual’s person-centered service plan

As an AL provider, you will hold a business license and contract with the DSHS’ Developmental Disabilities Administration as an independent contractor. ALs have the flexibility to create their schedule, choose their amount of hours, and select the clients to work with. Each client with AL can access up to 40 hrs of AL per month. Also, providers can select the clients they would like to work with. The current starting wage for an AL provider is $27.46 an hour (as of January 2024). AL providers will also be paid for training hours and transportation miles when transporting the individual they work with.

Requirements to be an Alternative Living Provider:

  • Be 21 or older
  • Have a high school diploma or GED diploma;
  • Be able to pass a background check

What training is required to be an Alternative Living Provider?

To become an AL provider you must complete 75 hours of training approved by DSHS. You will work with a DDA professional to help you through the steps of training. There will be a requirement of 12 hours

How to Become an Alternative Living Provider?

Work with the DDA professional in your county, or contact your local DDA Office and ask to speak with a resource manager.

What are some things you will do as an Alternative Living Provider?

As an AL provider, you will work with an individual to create the skills to live independently at home and participate in their community. Some activities to help work towards these goals include:

  • Participate in service-plan development with the individual you support and a DDA professional
  • Work with the individual in their home and community
  • Work on skills to increase the individual’s independence in varying settings
  • Use teaching techniques to help individuals learn skills


Visit Informnig Families for more information: https://informingfamilies.org/alternativelivingprovider/

Partners 4 Housing Spotlight


Special announcement for Washington State residents!

Thanks to a generous grant from the Dan Thompson Memorial Fund and contracted through the Developmental Disabilities Administration (DDA), the cost of this review has been covered. ($500 value)


Your review includes:

  • Online questionnaire
  • Review of Benefits
  • 1-hour consultation
  • Discussion of housing options
  • Access to Roommate Matching Pool (by invitation)



Learn More:

https://partners4housing.com/products/residential-assessment

From all of us at PEACE NW




Congratulations to our Winter Holland 2024 Parent Support and Learning Course Graduates!


Peace NW wanted to take a moment to thank the Sponsors who supported the Special Celebrations Egg Hunt!

Thank you!!!!!

Mountain Peaks Therapy Llamas and Alpacas

https://classycamelids.com/


Kids Rise Fund

https://www.kidsrisefund.org/


Susie’s Baking Company

https://www.susiesbakingcompany.com/#/


Busy Bee Cottage Bakery

https://www.facebook.com/busybeecottagebakery/


X Share This Email
LinkedIn Share This Email