SDS Family Day
Saturday, October 14, 2017
Cincinnati Children's Hospital

Dr. Kas Myers, Dr. Akiko Shimamura, and the Shwachman-Diamond Syndrome Registry are sponsoring a Complimentary One Day SDS Family Day!!!

A Meet & Greet Luncheon for all families at 11:30 am courtesy of SDSF

 

 Program to run from 1:00 - 6:00 pm

 

  • Connect with other SDS families
  • Attend sessions led by leading experts on SDS:
    • Biology & Treatment
    • Bone Marrow Transplant & SDS
    • SDS Registry Updates
    • Adults with SDS
  • Complimentary Babysitting Services 
  • An Evening Event for all families

 

We encourage all families and pediatric and adult patients to attend. This will be a great opportunity to speak with SDS medical experts and to hear about the latest research.  Hope to see you there!!

Contact SDSF at info@shwachman-diamond.org if you have any questions.


Register for SDS Family Day by September 15th at: 2017sdsfamilyday.eventbrite.com 
Shwachman-Diamond Syndrome Foundation
FOUNDER: Joan Mowery 1994

BOARD OF DIRECTORS

Christine James, President
Joan Mowery, Vice-President 
Pamela Miller, Secretary
Bryan Sample, Treasurer
Ed Bickel, Creative Media Chair
Christian Del Ré, Communications Chair
Stephanie Gregoretti, Fundraising
Jenni Wachter, Webmaster
Nicole Shen, Membership

Other Amazing Leaders

Joyce Wall - Anna Angel Basket Coordinator
Maura Donahue - Advisor to the Board
Ed Turkaly - Advisor to the Board
Kim McDowell - Administrative Assistant and Bookkeeper

ATTORNEY: Ann Bodewes Stephens, Herzog Crebs

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If you'd like to share a fundraiser or some family news or updates, email Christian at  christiandelre@shwachman-diamond.org.

Have an article, update, or fundraising activity you would like to share in a future newsletter?  Email your story to: christiandelre@shwachman-diamond.org.

We would love to hear from you and share your stories!
Shwachman Diamond Syndrome Foundation
888-825-7373
info@shwachman-diamond.org
www.shwachman-diamond.org