In this Issue: 

President's Message
2021 Parent University™ 6th Class: Corporate Trustee 101: What They Are & Why They Are
     Important on 6/17/2021!
May Is Mental Health Awareness Month!
Remembering Kate - A Story of Hope
Chefs And Cooks In The Disability Community Share Recipes For Accessibility
This is Where We Will Be...

President's Message:
                                            
Dear Clients and Friends,

Is it really month number FIVE of 2021 already?  I was reflecting on the past year, with this pandemic causing a major change to all of our lives.  2020 seemed to drag on, and yet it was a blur of time, and I can hardly remember what it was like a year ago.  Do you feel the same way?  We have been a resilient group of humans, counting on those we love to keep us focused on what we needed to do each day to get through it.  And here it is May of 2021.  We have the ability to do what we need to do,  counting on those we love to help us get through most anything.  Yet there are days we feel like we cannot go another day.  Yet tomorrow comes.
 
I was reflecting yesterday on the years we at Protected Tomorrows have been doing special needs planning.  We started in 1990!  Where has time gone?  I feel I am just starting out, and yet 31 years have gone by,  and Protected Tomorrows still has so much to do to keep making a difference.  The same kind of swiftness of time has occurred, and I wish we could slow it down so we could do more for families.
 
As Spring moves on into Summer, I always feel especially emotionally about what we do.  Maybe it is because we lost my sister Marcia in March, and Spring was such a difficult time for all of my family.   But she taught me what was really important in life; I feel her presence in my life still.
 
I do feel blessed every day to do what I love, and I just wanted to take this issue to thank you for allowing us to serve you.  We will continue to do our best. 

Gratefully yours,


Mary Anne Ehlert,
Founder & President


We are excited to announce our sixth 2021 Parent University webinar class, "Corporate Trustee 101: What They Are & Why They Are Important", to be held on Thursday, June 17th, 2021 from 7:00pm - 8:00pm CST.    

Registration is required.  Please click here to register.




Class description: A very important component of the Future Life Care Plan is the Special Needs Trust.  The careful selection of those who will make sure your goals for the Special Needs Trust implementation is key to the smooth transition and the future happiness and safety of your family member.   Making sure your Successor Trustees are qualified, caring, and able to fulfill their responsibilities will provide you peace of mind for the future.  We take a closer look at the best qualities for a Trustee/Trustees, a Trustee duties/job, how to identify potential trustees, recognize the responsibility - does the trustee have what it takes? and the benefits of naming a professional or corporate trustee.          

PLEASE NOTE: If you are not able to attend this class live but you would like to watch the recorded video at a later time, please make sure to register for this class.  All registrants will receive the information needed to watch the recorded video the day after this class, on Friday, June 18th, 2021.  

May is Mental Health Awareness Month! 

Each year millions of Americans face the reality of living with a mental illness. During May, the National Alliance on Mental Illness (NAMI) joins the national movement to raise awareness about mental health.  Each year they fight stigma, provide support, educate the public and advocate for policies that support people with mental illness and their families.

For 2021's Mental Health Awareness Month, NAMI will continue to amplify the message of "You Are Not Alone." They will use this time to focus on the healing value of connecting in safe ways, prioritizing mental health and acknowledging that it's okay to not be okay through NAMI's blog, personal stories, videos, digital toolkits, social media engagements and national events.



Together, we can realize our shared vision of a nation where anyone affected by mental illness can get the appropriate support and quality of care to live healthy, fulfilling lives - a nation where no one feels alone in their struggle.  Help NAMI spread the word through awareness, support and advocacy activities.  Here are some resources available:


    NAMI Blog                  NAMI Personal Stories                 NAMI Videos       

Remembering Kate - A Story of Hope
by Mary Ellen Copeland, M.S., M.A. | WRAP: Wellness Recovery Action Plan

What is unusual about this woman, my mother, that makes me want to share her story with others?

Raised on a farm in the rolling hills of Pennsylvania, Kate never quite fit the typical image of a quiet, proper and demure Pennsylvania Dutch girl. Unlike her two sisters, she was outspoken, assertive and mischievous, qualities not admired in a young woman at that time. She questioned why they had to sweep the sidewalk when the rain would clear it anyway, and why they had to keep the house so clean.

After completing college with a degree in nutrition, having a brief career as a county extension agent, marrying and having five children (I am the middle child), Kate spent 8 years of her life, from the ages of 37 to age 45, in a state mental institution. She was diagnosed with severe and incurable manic depression.

Before the hospitalization, our family life was nearly idyllic. Kate had left behind her career to spend full time engaging her family in a variety of activities from gardening and raising chickens to sewing and cooking. She supported and encouraged activity, creativity and individuality. I will never forget the homemade french fries and fried dough that warmed us on cold winter days. Even though her hospitalization began when I was eight years old, she left with me a rich array of skills I have used all my life and a love for the natural world which has sustained me through many hard times.

Sometimes when we went to visit, she was in a very severe depression, thin and unkempt. She pulled her hair back severely and always wore the same clothes. She hardly knew we were there. She would repeat over and over words we didn't understand while she walked in circles, wringing her hands and crying. At other times she was very exuberant, laughing and talking loudly, behaving in a manner that was bizarre and embarrassing.

Her doctors told us to forget about her, that she was incurably insane and would never get well. We (her five children) went to visit her every Saturday, even after the doctors told us not to come anymore.

When she had her first episode of deep depression, she had no support. I am not sure anyone knew how to give her the kind of support she desperately needed. Close family members lived far away. My father was away for weeks at a time working on the railroad. We lived in a rural setting and the task of caring alone for five small children may have overwhelmed her. She had no opportunity to get together with other women.

I often wonder how she might have responded when that first depression set in, if, instead of being taken off to the hospital and isolated from the people who loved her and the world she knew, she had been surrounded with loving caring friends and family members. They could have taken over her responsibilities for a while, perhaps someone could have even taken her on a vacation. Suppose they had just sat with her, listened to her, and held her while she cried. Instead she was separated from the few people she did have in her life. In the hospital, no efforts were made to encourage patients to support each other. And there was little staff available to give support to the multitudes of patients.

As a child I always thought it was my fault my mother got sick. I didn't know what I had done to cause her illness but I thought that if I said the right thing to her she would get well and stay well. The only trouble was, whenever I was alone with her I didn't know the words to say.  Click here to read more.



Mitchell, 60, became blind as an adult. She teaches cooking through the Nevada-based organization Blindconnect and its life skills-based program, Angela's House. On the first and second Wednesdays of the month from her kitchen in the Las Vegas Valley, Mitchell emphasizes fun and skill-sharing to help visually impaired people feel comfortable in the kitchen.  

Food and cooking are essential areas where those with disabilities can often be invisible or overlooked. But Mitchell and other advocates are working hard to address the problem by offering classes and resources and putting forth ideas to make cooking and recipes accessible.  Click here to read more.

This is Where We Will Be...





 

                   Sponsored by: NBIA
                   Online Zoom Webinar

                   Sponsored by: Spinal Muscular Atrophy
                   Online Zoom Webinar

                   Online Zoom Class

June 27      Sponsored by: Alternating Hemiplegia of Childhood Foundation
                    Online Zoom Webinar

July 16       Sponsored by: CHARGE Syndrome
                   Online Zoom Webinar

                  Special Needs Families
                  Online Zoom Class

Aug 6        Sponsored by: Angelman Syndrome
                  Online Zoom Webinar

                   Schools - What Is The Right Choice?
                   Online Zoom Class

                   Online Zoom Class

                   For Your Family
                    Online Zoom Class

Nov 6         Sponsored by: NAMI Wisconsin
                    Pewaukee, WI

                   Review
                    Online Zoom Class

For more information on these click here!
 
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