Life is filled with enough uncertainty, never mind having a potential time bomb growing in those you care for. Elias - The Phearless Ninja - is a 9-year-old ninja warrior living in Northern California, with his Mum (Australian), Dad, and older brother. He has been training as a ninja for a year and a half, competing in local and regional competitions, and LOVES it! He qualified for the UNAA National Finals 2020 (cancelled due to the pandemic). Now he's trying to use his love for ninja warrior to coach his earthbound Mum and bring attention to a silent terror.
Elias' Australian Grandma died in April 2019 from a brain tumor. She also had an abdominal paraganglioma (para) causing hypertension, which was associated with a genetic mutation (SDHB). This mutation often leads to development of tumors that are more likely to be malignant (and spread throughout the body). Sadly, Elias’ Aunt and three of his cousins also have the SDHB mutation, and every year they have tests to check for tumors associated with this mutation.
In celebration of what would have been his Grandma's 70th birthday this year, Elias decided he wanted to raise awareness of pheos and paras, to honor her memory. He decided to do this by getting his Mum off the couch, and trained as a ninja warrior...in just over 12 weeks, while documenting the journey. The end goal is for Elias’ Mum to complete a ninja warrior course at a gym by her 49th birthday in the begining of June.