Dear Cure JM,


The Cure JM Foundation has always treasured the special role that grandparents play in their families and Cure JM. We hope you enjoy this collection of news specifically for you, our grandparents. 


Best regards,



The Cure JM Grandparent Council

A Council of Grandparents, For Grandparents

3:00 p.m.  Eastern

2:00 p.m.  Central

1:00 p.m.  Mountain

12:00 p.m. Pacific


The Grandparent Council meets on the 4th Thursday of every month.

Grandparent Council Call

Thursday, October 26th, 2023


We invite you to join our next Grandparent Council meeting on Thursday, October 26th, 2023. 


We have guest speaker Suzanne Edison, MFA, Cure JM's Mental Health Coordinator, sharing a special presentation for grandparents with important resources and information about mental health.


Connect with other grandparents and learn how to provide support to families along their JM journeys.

Register Now

On-going Grandparent Resources


Each month we will share a list of the available resources for Grandparents.


Link to Grandparent Facebook Group:


https://www.facebook.com/groups/curejmgrandparents


Link to Grandparent Resource Section of the Website:



https://www.curejm.org/support/jsf/epro-posts/tax/category:42/

Building friendships with others in the JM community can be difficult. Since JM is a rare disease, medical common ground might be a state away. But at this summer’s family conference, Cure JM’s common ground was Gaithersburg, MD. There, a friendship between two girls was built—but not from scratch. This summer, Gigi and Livy shared a reunion five years in the making. 


Livy and Gianna both entered middle school this semester. They both play sports and video games, are passionate about their schooling, and love Maya Angelou’s poem “Phenomenal Woman.” Their most significant similarity is juvenile dermatomyositis. But they live on opposite coasts. That distance made this summer’s reunion so special.


Click below to read the full story of Gigi and Livy's enduring friendship.


Read Full Story

Be a Hope Hero


This holiday season, give children hope for a brighter future.


You can help Cure JM families raise $750,000 for juvenile myositis research.


Gifts will be matched by the Coffey Family Match:

  • Click "Donate" to make an online gift that will be matched.
  • Checks can be made out to Cure JM and mailed to Cure JM, P.O. Box 45768, Baltimore, MD 21297.


Your gift will be put right to work to fund research to:

  • Find new treatments with fewer side effects, including baricitinib and other new drugs
  • Fund research, including a new type of gene therapy and a groundbreaking study to determine what is happening inside individual cells
  • Help patients get the best care by increasing the number of JM specialists and expanding our Clinical Care Network and Centers of Excellence
  • Educate doctors and the families we serve by distributing the latest treatment and diagnosis protocols, providing curated educational resources, and hosting a global medical symposium for doctors to learn the latest in JM care and research


Questions? Contact Shannon Malloy, Director of Community Engagement, at shannon.malloy@curejm.org (512) 709-1905.

Make a Gift

What Families Need to Know about The Importance of Partnerships in New Treatments


Earlier this month, Cure JM had two speakers give an update about drug discovery in juvenile myositis. Joni L. Rutter, Ph.D., Director, National Center for Advancing Translational Sciences, National Institutes of Health, updated families about the process of drug discovery and development and how partnerships like Cure JM’s NCATS partnership accelerate new treatments for juvenile myositis. Eric Hoffman, Ph.D., President and CEO, of ReveraGen Pharmaceutical, brought families into the inner circle of understanding how new drugs move through the process and the role that Cure JM, parents, patients, and grandparents play in this process.


Click the link below to watch the informative discussion.

Watch Now

2023 Regional Events, Virtual Meetings, & Educational Trainings - Save The Dates!


As we round out our 20th year, we are excited to share upcoming regional and virtual community events that will impact our mission for the rest of the year.


This updated page is your single stop for "being in the know" on upcoming chapter events, council meetings, and educational symposiums happening in person and virtually.


Click the button below for a full list of the latest events happening in your area or virtually to connect with others in our JM community.


Have a regional event or DIY fundraiser that you would like featured? Please email betsy.leon@curejm.org with the dates and details.

Learn More

“There is nothing more wonderful than the love and guidance a grandparent can give his or her grandchild.”   — Edward Fays, The Grandparents Treasure Chest.

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