Dear Cure JM,


The Cure JM Foundation has always treasured the special role that grandparents play in their families and Cure JM. We hope you enjoy this collection of news specifically for you, our grandparents. 


Best regards,



The Cure JM Grandparent Council

A Council of Grandparents, For Grandparents

3:00 p.m.  Eastern

2:00 p.m.  Central

1:00 p.m.  Mountain

12:00 p.m. Pacific


The Grandparent Council meets on the 4th Thursday of every month (except for this month- Happy Thanksgiving).

Grandparent Council Call

Thursday, November 16th, 2023


We invite you to join our next Grandparent Council meeting one week early on Thursday, November 16th, 2023. 


Connect with other grandparents and learn how to provide support to families along their JM journeys.

Register Now

We invite you to join us before the Grandparent's Meeting on November 16th, 2023.


1:00 p.m.  Eastern

12:00 p.m. Central

11:00 a.m.  Mountain

10:00 a.m. Pacific



Register Now

Join us before the Grandparent's Meeting for A Giving Tuesday Panel!


Join us to hear from a panel of parents, patients, and grandparents who are participating in Cure JM's Giving Tuesday Holiday Challenge.


Our panelists will answer:



What is the Giving Tuesday Holiday Challenge fundraiser?

What does it mean to participate?

What is expected of me if I want to help?

Why are we raising funds?


We will also have time for questions and discussion. This meeting is open to all. Anyone is welcome to stop by just to listen and learn.

Be a Hope Hero!


This holiday season, give JM children hope for a brighter future.


You can help Cure JM families raise $750,000 for juvenile myositis research.


Your gift has 2x the power! Your gift will be matched by the Coffey Family Match.


Your gift will be put right to work to fund research to:


  • Find new treatments with fewer side effects, including baricitinib and other new drugs
  • Fund research, including a new type of gene therapy and a groundbreaking study to determine what is happening inside individual cells
  • Help patients get the best care by increasing the number of JM specialists and expanding our Clinical Care Network and Centers of Excellence
  • Educate doctors and the families we serve by distributing the latest treatment and diagnosis protocols, providing curated educational resources, and hosting a global medical symposium for doctors to learn the latest in JM care and research


Please join Cure JM families and others nationwide in making a gift this holiday season at www.curejm.org/giveYour generosity means so much to the future of our JM kids, teens, and young adults.

Make a Gift

As we open a new fiscal year, we are pleased to share the progress that you made possible over the last year. 2023 has been a monumental year, as we celebrated our 20th year and reached new levels of accomplishment as an organization.


You are the power behind this progress and momentum.


During this historic year, we celebrate 20 years of progress. As we reflect, we are reminded that Cure JM is a family of families. For 20 years, we have remained laser-focused on our mission to fund research that improves treatments, care, and support for juvenile myositis patients.


As we look back on 2023 through our Impact Report, we are proud of the progress our Cure JM families and friends made possible.The research we started this past year will likely lead to better lives for our children. 


It is our goal to support each member of the family during the different stages of their family’s JM journey to make this journey easier to navigate.


We pledge to continue the progress you made possible in 2023.


Read the 2023 Impact Report

You may have heard about the FDA's recent ruling, which approved vamorolone as an alternative steroid for use in Duchenne muscular dystrophy.  

 

Vamorolone is a new steroid alternative with fewer side effects than prednisone. The drug aims to preserve the beneficial anti-inflammatory and muscle-strengthening characteristics of corticosteroids, while decreasing some of the unwelcome side effects.


Vamorolone will need more study in juvenile myositis before most pediatric rheumatologists will be comfortable prescribing it for juvenile myositis.


"We remain urgently focused on working with the FDA and with the vamorolone developers to conduct a safety and efficacy trial in juvenile myositis. We are so grateful to Drs. Eric Hoffman and Kanneboyina Nagaraju of the Cure JM Medical Advisory Board for their dedication and fundamental research that led to the creation of vamorolone. Dr. Hoffman presented how vamorolone acts and why it is superior to prednisone in a September Town Hall presentation to Cure JM families," said Andrew Heaton, Ph.D., Chief Scientific Officer, Cure JM Foundation.


Cure JM's plan for a vamorolone clinical trial in juvenile myositis is now before the FDA. We are hopeful that this approval will help clear the path for testing of the drug in juvenile myositis.


Read More

2023 Regional Events, Virtual Meetings, & Educational Trainings - Save The Dates!


As we round out our 20th year, we are excited to share upcoming regional and virtual community events that will impact our mission for the rest of the year.


This updated page is your single stop for "being in the know" on upcoming chapter events, council meetings, and educational symposiums happening in person and virtually.


Click the button below for a full list of the latest events happening in your area or virtually to connect with others in our JM community.


Have a regional event or DIY fundraiser that you would like featured? Please email betsy.leon@curejm.org with the dates and details.

Learn More

“There is nothing more wonderful than the love and guidance a grandparent can give his or her grandchild.”   — Edward Fays, The Grandparents Treasure Chest.

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