MAY 2024

MAYO 2024

MAY IS.../MAYO ES...

Mental Health Awareness Month has been observed in the U.S. since 1949. Every year during the month of May, NAMI joins the national movement to raise awareness about mental health. Together, we fight stigma, provide support, educate the public and advocate for policies that support the millions of people in the U.S. affected by mental illness. To learn more about how to help or raise awareness, please visit: May Mental Health Awareness Month

El Mes de la Concientización sobre la Salud Mental se celebra en los EE. UU. desde 1949. Cada año, durante el mes de mayo, NAMI se une al movimiento nacional para crear conciencia sobre la salud mental. Juntos, luchamos contra el estigma, brindamos apoyo, educamos al público y abogamos por políticas que apoyen a los millones de personas en los EE. UU. afectadas por enfermedades mentales. Para obtener más información sobre cómo ayudar o crear conciencia, visite: La Salud Mental en la Comunidad Latina

MAY IS BETTER HEARING AND

SPEECH MONTH

Each May, National Speech-Language-Hearing Month provides an opportunity to raise awareness about communication disorders. Early identification and intervention for hearing loss is important. Many people live with unidentified hearing loss, often failing to realize that they are missing certain sounds and words. Checking one’s hearing is the first step toward addressing the issue. To learn more about Better Hearing and Speech month, please visit: Better Hearing & Speech Month 2024

MAYO ES MEJOR OÍR Y MES DEL HABLA

Cada mes de mayo, el Mes Nacional del Habla, el Lenguaje y la Audición brinda la oportunidad de crear conciencia sobre los trastornos de la comunicación. La identificación e intervención tempranas de la pérdida auditiva es importante. Muchas personas viven con una pérdida auditiva no identificada y a menudo no se dan cuenta de que les faltan ciertos sonidos y palabras. Revisar la audición es el primer paso para abordar el problema. Para obtener más información sobre el mes de una mejor audición y habla, visite: Mayo es el Mes para la Mejora del Habla y de la Audición

MAY IS INTERNATIONAL 5P-SYNDROME AWARENESS MONTH

Each year in the United States, approximately 50 to 60 children are born with 5p- Syndrome (five p minus), also known as Cat Cry Syndrome or Cri du Chat Syndrome. 5p- Syndrome is characterized at birth by a high pitched cry, low birth weight, poor muscle tone, microcephaly, and potential medical complications. “5p-” is a term used by geneticists to describe a portion of chromosome number five that is missing in these individuals. 5p deletion is a spectrum disorder. To learn more about how to help or raise awareness, please visit; 5Psyndrome

MAYO ES EL MES INTERNACIONAL DE CONCIENTIZACIÓN

SOBRE EL SÍNDROME 5P

Cada año en los Estados Unidos, aproximadamente de 50 a 60 niños nacen con el Síndrome 5p- (cinco p menos), también conocido como Síndrome del Grito del Gato o Síndrome del Cri du Chat. El síndrome 5p- se caracteriza al nacer por un llanto agudo, bajo peso al nacer, tono muscular deficiente, microcefalia y posibles complicaciones médicas. "5p-" es un término utilizado por los genetistas para describir una porción del cromosoma número cinco que falta en estos individuos. La deleción 5p es un trastorno del espectro.Para obtener más información sobre cómo ayudar o crear conciencia, visite el Síndrome 5p- (cinco p menos) :

SUMMER RESOURCES / RECURSOS DE VERANO

SAVE THE DATE! / RESERVE LA FECHA

MAY 2024 WORKSHOPS

TALLERES DE MAYO 2024

2024 SERIE DE SERVICIOS GENERICOS CON DRC:

ELEGIBILIDAD Y APELACIONES DE SSI

Lunes, 6 de Mayo y 13 de Mayo, 10:00am - 12:00pm

Únase a Disability Rights California mientras presentan su serie de capacitación 2024 sobre servicios genéricos. Presentado por la abogada principal María Iriarte y la defensora principal Mary Ríos.

Todos los talleres se presentaran virtualmente de 10:00 am a 12:00 pm

Para registrarse por favor visita: Serie de 2 partes de Medi-Cal

2024 GENERIC SERVICES WORKSHOP SERIES

MEDI-CAL (2 PART SERIES)

Join Disability Rights California as they present their 2024 training series on generic services. Presented by lead attorney María Iriarte.

All workshops will be presented virtually from 10:00 am to 12:00 pm

MEDI-CAL (2 part series)

NEW DATE: Wednesday, May 8th: Medi-Cal Basics

NEW DATE: Friday, May 17th: Medi-Cal Waiver

To register please visit: Medi-Cal 2-Part Series

Fundamentos del IEP: Preparando y Empoderando a los Padres para el IEP de sus Hijos

Martes,14 de Mayo, 12:00 pm

Esta entrenamiento mensual ayudará a aprender información básica acerca del IEP, al igual que estrategias más avanzadas sobre los pasos que puede tomar cuando está en desacuerdo con su IEP. ¡Los padres participantes recibirán una copia digital GRATUITA para ayudarle a crear su portofolio del IEP en casa!

Para registrarse por favor visita: Fundamentos del IEP

IEP ESSENTIALS: EMPOWERING & PREPARING PARENTS

FOR THEIR CHILD'S IEP

Wednesday, May 15th, 12:00 pm

This monthly training will help parents learn basic information about the IEP, to more advanced strategies on steps you can take when you don't agree with your IEP. Participating parents will receive a FREE digital download to help you create your IEP binder at home!

To register: IEP Essentials

PLANNING A PATHWAY TO SUCCES:

Getting ready for life after school

Thursday, May 30th, 2:00pm – 3:30pm

Planificar un Camino hacia el Éxito:

Prepararse para la Vida Después de la Escuela

Jueves, 30 de mayo, 2:00 pm a 3:30 pm

Join Scott Shepard and Jereth Suede from Avenues Supported Living Services as they present for us this informative workshop on transition planning. They will discuss:

Building effective ITP/IEP goals;
Skills to work on at home during school years;
Maintaining Benefits while working;
How high parent expectations will lead to more successful student outcomes.

SPANISH TRANSLATION WILL BE PROVIDED

Únase a Scott Shepard y Jereth Suede

de Avenues Supported Living Services mientras nos presentan:

La creación de objetivos del ITP/IEP eficaces;
Habilidades para trabajar en casa durante los años escolares;
Mantener los beneficios mientras trabajan;
Cómo las altas expectativas de los padres conducirán a resultados estudiantiles más exitosos.

Esta presentación será en inglés con traducción al español.

To Register/Para registrarse por favor visita: Pathways to Success

Support Groups / Grupos de Apoyo

ARMENIAN PARENT CONNECTION

This group will meet on Thursday, May 2nd

at 6:30pm via Zoom

Meet other parents and caregivers in the NLACRC area. Find out about Regional Center services and other family supports.

Please register here: Armenian Parent Connection

Black & African American Family Focus Support Group

Join us as we come together to create a safe, supportive place to connect with other families of children, young and old, with special needs, to share resources, provide advocacy & to be part of an inclusive community.

This month we will gather for lunch to share stories and support each. This will be for adults only!

This group will meet in-person on Saturday, May 4th at 2pm

at Tomato Joes Pizza & Taps

19167 Golden Valley, Santa Clarita.

Please RSVP by contacting Theresa Quary at Theresa.Quary@csun.edu by May 1st

CULTIVAR Y CRECER:

GRUPO DE APOYO EN ESPANOL

Nuestras reuniones ahora tienen lugar en Zoom.

Sea parte de esta gran familia y tomemos un cafecito juntos

Conozca a otros padres
Comparta sus experiencias y sus preocupaciones
Compartiremos recursos disponibles en la comunidad
Talleres educacionales y eventos especiales

Este grupo se juntara en persona el 10 de Mayo a las 6:30 pm.

CONTACTO PARA MAS INFORMACION:

Fatima Castaneda (818)374-9107 Sandra Baker (818)786-0001

Parent Check-In & Chat

Join FFRC on Zoom for a helpful and supportive chat with other parents and share what is happening in our lives.

This group will meet on Thursday, May 16th at 12:30 pm

Contact Diana Chulak with any questions or click here to register.

Early Start Bilingual Support Group

Join us for this fun group for parents and caregivers of children under 3. We will talk & share about our experiences and challenges in the early years. This group will be held in English & Spanish.

This month we will be meeting in person on Saturday, May 18th

at North Weddington Recreation Park in North Hollywood

from 11:00 am to 1:00 pm.

RSVP is required: Bilingual Support Group

FOR MORE INFORMATION, PLEASE CONTANT JENNIFER AT JENNIFER.BURNS@CSUN.EDU

Comienzo Temprano Grupo de Apoyo Bilingüe

Únase a nosotros en este divertido grupo para padres y cuidadores de niños menores de 3 años. Hablaremos y compartiremos sobre nuestras experiencias y desafíos en los primeros años. Este grupo se llevará a cabo en Inglés y Español.

Este mes nuestro grupo se juntara en persona

el sábado 18 de mayo en el Parque Recreativo North Weddington

en North Hollywood de 11:00 am a 1:00 pm.

Se requiere reservacion aqui: Grupo de Apoyo Bilingüe

CONTACTO PARA MAS INFORMACION: Rebeca Diaz (818)677-6854

FILIPINO SUPPORT GROUP

Meet other Filipino families, share your experiences, and find out about upcoming events and resources.

This month's guest speaker will be Scott Shepard. He will speak about Supported Living Webinars coming up.

This group will meet on May 20th at 6:30 pm on Zoom

Interested in joining?

Please contact Theresa Quary for more information.

EL PODER DEL AMOR Y LA PACIENCIA

Viernes, 24 de mayo

10:00am – 11:30am

Grupo de Apoyo para Padres con Hijos de Necesidades Especiales (español)

Las reuniones son via Zoom el cuarto viernes de cada mes de 10:00am a 11:30am

Para más información llame al (818) 677-6854 o rebeca.diaz@csun.edu

COMMUNITY EVENTS /

EVENTOS COMUNITARIOS

Family Focus Announcements!

MEET NATHALIE RUIZ, NEW

SAN FERNANDO VALLEY COMMUNITY NAVIGATOR

Nathalie is mom to 6-year-old twins both with Down Syndrome. She tries to keep her kids involved with various activities such as dance, soccer, baseball and surfing. While they had a difficult beginning full of health scares, both kids have far exceeded the expectations set on them by the very outdated knowledge of the genetics professionals they met. Nathalie says, " This is why I am so happy to be working for FFRC, I can help other parents find the resources and programs that can help them, and their children surpass any limitations set on them. I hope to be able to help other parents find relief from some of the stressful parts this journey brings." In her very rare free time she likes to listen to music, dance, bake, and read a good book.

MEET CRISTAL ORDONEZ, OUR NEW

SANTA CLARITA VALLEY COMMUNITY NAVIGATOR

Cristal joins the Navigator program this month. She has 4 kids, two that are neurotypical and her two younger kids, who are both on the autism spectrum. Cristal is a busy mom, always on the move advocating for her kids. She loves being able to help other parents who are having similar experiences and letting them know that they are not alone. Cristal enjoys watching crime shows, and likes to dance. Welcome Cristal!

HAPPY BIRTHDAY DR. IVOR WEINER

Happy Birthday to Dr. Ivor Weiner, our Principal Investigator. Ivor plans on working and then enjoying a nice dinner with his wife Joy. It will be a surprise since she will be picking the restaurant. Happy birthday Dr. Weiner!

HAPPY BIRTHDAY DIANA!

Happy birthday to our program manager Diana! Diana recently celebrated her eight-year anniversary with FFRC and she is based out of our CSUN office. Diana will be celebrating her birthday at Disneyland with her husband and two teen boys. Her kids have always been Disney fanatics, and she now finally admits she has become one too. Enjoy your day, Diana!

MILLER CTC FIELD TRIP

The students at Miller Career and Transition Center came to our Chatsworth Family Focus Resource Center Office for a field trip. Students learned about our library, all of our services and other helpful resources available to them.

AUTISM ACCEPTANCE RESOURCE FAIR

We attended the Autism Acceptance Resource Fair, held at New Horizons, last month. The event, sponsored by Councilman John Lee's office brought many visitors to our table. A good time was had by all.

FAMILY FOCUS RESOURCE CENTER

OPEN HOUSE

Family Focus Resource Center held an Open House for Regional Center Employees. We were able to share a little bit about what services and programs we offer. Everyone left more informed.