JUNE 2024

JUNIO 2024

SAVE THE DATE! / RESERVE LA FECHA

LOOKING FOR SUMMER RESOURCES?

¿BUSCAS RECURSOS DE VERANO?

Get the 2024 FFRC Summer Package HERE

Obtenga el paquete de verano FFRC 2024 AQUÍ

JUNE 2024 WORKSHOPS

TALLERES DE JUNIO 2024

2024 GENERIC SERVICES WORKSHOP SERIES

IHSS (4 PART SERIES)

JUNE 3RD, 10TH, 17TH & 24TH


Join Disability Rights California as they present their 2024 training series on generic services. Presented by lead attorney María Iriarte.


These workshops will be presented in English and virtually.


NEW TIME: Monday, June 3: IHSS Basics - 1pm to 3 pm

Monday, June10: Assessment and Reassessment - 10am to 12pm

Monday, June 17: How to Calculate your IHSS Hours - 10 am to 12pm

Monday, June 24: Appeals - 10am to 12pm


To register please visit: IHSS 4-Part Series

2024 SERIE DE SERVICIOS GENERICOS CON DRC:

IHSS Serie de 4 partes

5, 12, 21, 27 de Junio


Únase a Disability Rights California mientras presentan su serie de capacitación 2024 sobre servicios genéricos. Presentado por la abogada principal María Iriarte y la defensora principal Mary Ríos.


Miércoles,5 de Junio: Informacion Basica - 10am a 12pm

Miércoles 12 de Junio: Evaluacion y Reevaluacion - 10am a 12pm

Viernes, 21 de Junio: Como Calcular los horas - 10am a 12pm

NUEVA FECHA Y HORA: Jueves, 27 de Junio: Apelaciones - 2pm a 4pm


Para registrarse por favor visita: Serie de 4 partes de IHSS

NAVIGATING CHALLENGES WITH YOUR CHILDS IEP

FOR THEIR CHILD'S IEP

ENFRENTANDO DESAFÍOS CON EL IEP DE SU HIJO

Thursday, June 20th / Jueves, 20 de Junio

11:00 am -12:30 pm


We will be discussing what to when challenges arise in your child's IEP, and how to make dispute resolution a successful and non-contentious event. Presented by Monica Gylys and Stacey Alvey from Antelope Valley SELPA.

To register: Navigating Challenges

*This workshop will be presented in English with Spanish translation provided.


Discutiremos qué hacer cuando surjan desafíos en el IEP de su hijo y cómo hacer que la resolución de disputas sea un evento exitoso y no contencioso. Presentado por Monica Gylys y Stacey Alvey de Antelope Valley SELPA.

Para registrarse: Enfrentando Desafíos

*Este taller se presentará en inglés con traducción al español.


Support Groups / Grupos de Apoyo

ARMENIAN PARENT CONNECTION

Thursday, June 6

6:30pm via Zoom


Meet other parents and caregivers in the NLACRC area. Find out about Regional Center services and other family supports.


Please register here: Armenian Parent Connection

PARENT CHECK-IN & CHAT


Thursday, June 13th

12:30 pm - 1:30 pm


Join FFRC on Zoom for a helpful and supportive chat with other parents and share what is happening in our lives.


Contact Diana Chulak with any questions or click HERE to register.

EL PODER DEL AMOR Y LA PACIENCIA- EN PERSONA

Viernes, 14 de Junio

9:30 am – 11:00 am


Grupo de Apoyo en persona para Padres con Hijos de Necesidades Especiales (español). Las reuniones son presenciales el segundo viernes de cada mes de 9:30 am a 11:00am.


Dirección: Community Resource Center LA Care 7868 Van Nuys, CA 91402


 Para más información llame al (818) 677-6854 o rebeca.diaz@csun.edu

PARENTS OF ADULT CONSUMERS

Wednesday, June 26 at 6:30 pm


Monthly meeting for parents of adult consumers (18 and up) in the NLACRC area. We talk about issues related to our adult children and about ourselves as their caregivers and support people. 


Contact Victoria Berrey at 818-677-7063 or victoria.berrey@csun.edu for more info.

EARLY START BILINGUAL SUPPORT GROUP

Thursday, June 27 at 1:00 pm


Join us for this fun group for parents and caregivers of children under 3. We will talk & share about our experiences and challenges in the early years. This group will be held in English & Spanish.


FOR MORE INFORMATION, PLEASE CONTACT JENNIFER AT JENNIFER.BURNS@CSUN.EDU

COMIENZO TEMPRANO GRUPO DE APOYO BILINGÜE

Jueves 27 de Junio

a 1:00 pm



Únase a nosotros en este divertido grupo para padres y cuidadores de niños menores de 3 años. Hablaremos y compartiremos sobre nuestras experiencias y desafíos en los primeros años.

Este grupo se llevará a cabo en Inglés y Español.



CONTACTO PARA MAS INFORMACION:

Rebeca Diaz (818)677-6854

EL PODER DEL AMOR Y LA PACIENCIA

Viernes, 28 de Junio

10:00 am – 11:00 am


Grupo de Apoyo para padres con hijos de necesidades especiales (español)

Las reuniones son via Zoom el cuarto viernes de cada mes de 10:00am a 11:30am



 Para más información llame al (818) 677-6854 o rebeca.diaz@csun.edu

CULTIVAR Y CRECER:

GRUPO DE APOYO EN ESPAÑOL

En persona el 28 de Junio

a las 6:30 pm



Nuestras reuniones ahora tienen lugar en Zoom. 

Sea parte de esta gran familia y tomemos un cafecito juntos

  • Conozca a otros padres
  • Comparta sus experiencias y sus preocupaciones
  • Compartiremos recursos disponibles en la comunidad
  • Talleres educacionales y eventos especiales


CONTACTO PARA MAS INFORMACION:

Fatima Castaneda (818)374-9107  Sandra Baker (818)786-0001

BLACK & AFRICAN AMERICAN FAMILY FOCUS SUPPORT GROUP


Join us as we come together to create a safe, supportive place to connect with other families of children, young and old, with special needs, to share resources, provide advocacy & to be part of an inclusive community.


There will be no group meetings through August. We will reconvene in September.



 For more information contact

Theresa Quary at Theresa.Quary@csun.edu



FILIPINO SUPPORT GROUP


Meet other Filipino families, share your experiences, and find out about upcoming events and resources.


There will be no Filipino Support Group in June.


Interested in joining?

Please contact Theresa Quary for more information.

JUNE IS.../JUNIO ES...

Autistic Pride Day, which recognizes and appreciates the importance of pride for people with Austims, is celebrated every year on June 18th. Autistic Pride Day has an important role in bringing positive changes in our society. This positive day, celebrated around the world, was first celebrated in 2005 by Aspies for Freedom (AFF).



This day shows how people with autism have an important part in our culture and society and allows for people to come together in a positive, uplifting way. For more information please visit Autistic Pride Day


***


El Día del Orgullo Autista, que reconoce y aprecia la importancia del orgullo para las personas con Austims, se celebra cada año el 18 de junio. El Día del Orgullo Autista tiene un papel importante en la generación de cambios positivos en nuestra sociedad. Este día positivo, celebrado en todo el mundo, fue celebrado por primera vez en 2005 por Aspies for Freedom (AFF).


Este día muestra cómo las personas con autismo tienen un papel importante en nuestra cultura y sociedad y permite que las personas se unan de una manera positiva y edificante. Para obtener mas información visite: El Día del Orgullo Autista

Juneteenth (June 19th) is the one of the oldest known commemorations related to the abolition of slavery in the United States. Juneteenth National Independence Day was signed into law as a national holiday on June 17, 2021. The word “Juneteenth” is a Black English contraction, or portmanteau, of the month “June” and the date “Nineteenth.” Juneteenth celebrates the date of June 19, 1865, when enslaved people of African descent located in Galveston, Texas, finally learned of their freedom from the slavery system in the United States. Now, 48 out of 50 states, plus Washington, D.C., recognize Juneteenth as a state holiday. Join Family Focus Resource Center in celebrating Juneteenth as a great turning point for freedom in our nation’s history. The FFRC offices will be closed on Monday, June 19th in observance of this special day. To read more please visit: HERE


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Juneteenth (19 de junio) es una de las conmemoraciones más antiguas conocidas relacionadas con la abolición de la esclavitud en los Estados Unidos. El Día de la Independencia Nacional del Decimonoveno se promulgó como feriado nacional el 17 de junio de 2021. La palabra “Juneteenth” es una contracción del inglés negro, o acrónimo, del mes “June” y la fecha “Nineteenth”. Juneteenth celebra la fecha del 19 de junio de 1865, cuando los esclavos de ascendencia africana ubicados en Galveston, Texas, finalmente se enteraron de su libertad del sistema de esclavitud en los Estados Unidos. Ahora, 48 de 50 estados, más Washington, D.C., reconocen el 16 de junio como feriado estatal. Únase al Family Focus Resource Center para celebrar el 16 de junio como un gran punto de inflexión para la libertad en la historia de nuestra nación. Las oficinas de FFRC estarán cerradas el lunes 19 de junio en conmemoración de este día especial. Para leer más por favor visite: AQUÍ

Men’s Health Week (June 12th-18th) honors the importance of the health of our male family members. This week was created by Congress in 1994 to bring awareness to preventable health problems and encourage early detection and treatment of disease among men and boys. Men's Health Week provides an opportunity to educate the public about what can be done to improve the state of men's health. Please encourage the men in your life to take care of their medical and mental health, and encourage regular visits to the doctor and healthy eating habits. To learn more about Men's Health Week, visit HERE.


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La Semana de la Salud del Hombre (del 12 al 18 de junio) honra la importancia de la salud de los miembros masculinos de nuestra familia. Esta semana fue creada por el Congreso en 1994 para crear conciencia sobre problemas de salud prevenibles y fomentar la detección temprana y el tratamiento de enfermedades entre hombres y niños. La Semana de la Salud de los Hombres brinda la oportunidad de educar al público sobre lo que se puede hacer para mejorar el estado de salud de los hombres. Anime a los hombres en su vida a cuidar su salud médica y mental, y fomente visitas regulares al médico y hábitos alimenticios saludables. Para obtener más información sobre la Semana de la Salud del Hombre, visite AQUÍ.

June 25th to July 1st is Helen Keller Deaf-Blind Awareness Week! There is an estimated 50,000 children and adults in the deaf-blind community that are legally vision and hearing impaired but not all of them are completely without sight or hearing. If you or a loved one is struggling with deaf-blindness the American Foundation for the Blind (AFB) offers services such as aiding in finding a job, support groups, educational groups, and provide resources for individuals or families. For more information on Deaf-Blind week, please visit Helen Keller National Center for Deaf-Blind Youths and Adults.


***


¡Del 25 de junio al 1 de julio es la Semana de Concientización sobre las Personas Sordociegas de Helen Keller! Se estima que hay 50.000 niños y adultos en la comunidad de sordociegos que tienen legalmente problemas de visión y audición, pero no todos carecen completamente de vista o oído. Si usted o un ser querido tiene problemas con la sordoceguera, la Fundación Estadounidense para Ciegos (AFB) ofrece servicios como ayuda para encontrar trabajo, grupos de apoyo, grupos educativos y recursos para individuos o familias. Para obtener más información sobre la semana de las personas sordociegas, visite el Centro Nacional Helen Keller para Jóvenes y Adultos Sordociegos.

June 12th is International DDX3X Day! DDX3X Syndrome is a rare disease caused by a spontaneous mutation within the DDX3X gene at conception or can be inherited. The syndrome was discovered in the United States in 2014 and primarily affects girls due to its location on the X-chromosome, though there are some boys it has affected as well. Although it has only been identified in about over 1000 individuals, doctors believe it is the cause of 1 to 3 percent of all intellectual disabilities in females. 

DDX3X Syndrome is often misdiagnosed as autism spectrum disorder, cerebral palsy, Rett Syndrome, Dandy-Walker Syndrome, or a generic developmentally delayed label. It is linked to intellectual disabilities, seizures, autism, low muscle tone, abnormalities of the brain, and slower physical developments. It has a broad spectrum—some individuals develop the ability to speak in full sentences, while others are nonverbal. Some individuals run, jump, and even ski, while others are unable to walk. Learn more about DDX3X here: https://ddx3x.org/about-ddx3x/


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¡El 12 de junio es el Día Internacional DDX3X! El síndrome DDX3X es una enfermedad rara causada por una mutación espontánea en el gen DDX3X en el momento de la concepción o puede heredarse. El síndrome se descubrió en los Estados Unidos en 2014 y afecta principalmente a las niñas debido a su ubicación en el cromosoma X, aunque también ha afectado a algunos niños. Aunque sólo se ha identificado en unas 1.000 personas, los médicos creen que es la causa del 1 al 3 por ciento de todas las discapacidades intelectuales en las mujeres. 


El síndrome DDX3X a menudo se diagnostica erróneamente como trastorno del espectro autista, parálisis cerebral, síndrome de Rett, síndrome de Dandy-Walker o una etiqueta genérica de retraso en el desarrollo. Está relacionado con discapacidades intelectuales, convulsiones, autismo, bajo tono muscular, anomalías del cerebro y desarrollo físico más lento. Tiene un amplio espectro: algunos individuos desarrollan la capacidad de hablar con oraciones completas, mientras que otros no verbalizan. Algunas personas corren, saltan e incluso esquían, mientras que otras no pueden caminar. Obtenga más información sobre DDX3X aquí: https://ddx3x.org/about-ddx3x/


COMMUNITY EVENTS /

EVENTOS COMUNITARIOS

Family Focus Announcements!

HAPPY BIRTHDAY VICTORIA

June 8th

Happy Birthday to our Director Victoria Berrey! She plans to ride bikes and have lunch in Carpinteria with her family.

HAPPY BIRTHDAY MINAKO

June 13th

Happy Birthday to our Chatsworth Library Assistant Minako Le! She will be going camping with her family and is looking forward to relaxing in nature and catching up with family friends.

COFFEE & CONVERSATION

May 2



All three of our offices held our last Coffee and Conversation meetings for the year, and the topic was Summer Resources! Representatives from the local libraries attended and helped sign up families for library cards, while Regional Center CSC's shared information about Summer Programs. In Santa Clarita a representative from the parks and recreation department shared valuable information about the summer programs offered to the community free of charge.

ROCKIN' RESOURCE FAIR

May 4


Tim attended the 6th Annual Rockin' Resource Fair at Woodley Park. The event, sponsored by We Rock the Spectrum Kids Gym proved to be a good one. The afternoon was full of visitors.

BAA MEETS IN PERSON

May 4




The Black and African American Support Group met in person for the first time since it began in July 2020. They played games and shared laughs and motivational tips.


The BAA group will meet next on September 4 via zoom.

FREE TO BE ME

May 5


Family Focus Resource Center attended the Free to Be Me event held in Santa Clarita. A lot of families stopped by our table to gather information on upcoming events, resources and support groups.

EL PODER DEL AMOR

Y LA PACIENCIA

May 10




The support group met in-person to celebrate Mother's Day. People brought traditional Mexican food dishes.We had a very pleasant time with great attendance. Thanks Judy for the tamales, they were delicious!

CULTIVAR Y CRECER

May 10


The Cultivar y Crecer group celebrated Mother's Day! All the participants were excited to have their first in-person meeting.

SFV NLACRC EXPO

May 17


We joined the North LA Regional Center at their Expo. It was wonderful networking with great families and other service providers.

BILINGUAL PLAYDATE

May 18


Our Bilingual Playdate was a blast! We had families join us for snacks, activities, resources and fun outdoors. Special thanks to CSUN Language, Speech, and Hearing Center for providing resources! Check out their website HERE.

STAFF DEVELOPMENT DAY

May 21


Our Staff Development and Training Day was a major success! We learned more about each office, practiced elevator pitches, learned more about our services and resources, and had some fun ice-breaker activities!

In Case You Missed It

En Caso que te lo Hayas Perdido


We have many recorded workshops, webinars and instructional videos available to watch on demand on the Family Focus Resource Center YouTube channel. Click HERE to watch; make sure to subscribe to the channel so you don't miss any new videos!

NEW TO WATCH THIS MONTH:


  • Generic Services Series: Medi-Cal Basics with Disability Rights California
  • Medi-Cal Part 2: Medi-Cal Waiver


Tenemos muchos talleres grabados, seminarios web y videos instructivos disponibles para ver a su convenencia en el canal de YouTube de Family Focus Resource Center. Haga clic AQUI para ver. ¡Asegúrese de suscribirse al canal para no perderse ningún video nuevo!

NUEVO PARA VER ESTE MES:


  • Serie de Servicios Genericos 2024: Información básica sobre Medi-Cal
  • Medi-Cal Parte 2: Exenciones de Medi-Cal
Untitled Design

Our offices will be closed on Wednesday, June 19th in honor of Juneteenth. We ask that you please call our offices to check office hours before stopping by, as schedules may vary especially during summer. We look forward to continuing to assist you!


Nuestras oficinas estarán cerradas el miércoles 19 de junio en honor al Juneteenth. Le pedimos que llame a nuestras oficinas para consultar los horarios de atención antes de visitarnos, ya que los horarios pueden variar, especialmente durante el verano. ¡Esperamos seguir ayudándole!


CSUN: 818-677-6854  family.focus@csun.edu

Chatsworth: 818-374-9107  family.focus@csun.edu

Santa Clarita: 661-294-9715  family.focus.scv@csun.edu

Lancaster: 661-945-9598  family.focus.av@csun.edu

Connect with us
Learn More
Family Focus Resource Center 818-677-6854 | family.focus@csun.edu | www.csun.edu/family-focus-resource-center