Lupus Foundation of America

June 20, 2014

Newsletter

 

Can men with lupus still have children?

Foundation Studies Provide Insight on New Ways to Improve Care and Management of Lupus


Data from two Lupus Foundation of America research initiatives were presented during the 2014 European League Against Rheumatism (EULAR) Congress this past week. Both studies aim to improve the quality of life for people with lupus through the development of a full arsenal of safe therapies and more effective tools to help physicians manage lupus.

 

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Help us Help you: Why Surveys Matter

In today's digital age, email inboxes are filled with public opinion polls and surveys. Most of us probably delete a majority of them, but surveys, questionnaires, and opinion polls really do matter. In  her blog, Sara Chang, Senior Manager of Advocacy and Government Relations, writes about the importance of participating in surveys.

 

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If you or someone you know has purchased a plan through the Health Insurance Marketplace, please take a moment to complete our survey.  


Guy Talk - Men with Lupus Find, and Give, Support

Much misinformation exists about lupus - including the incorrect belief that lupus only occurs in women, when in fact, men represent about 10 percent of people with lupus. Though men typically develop the same clinical manifestations of lupus as women, men may benefit from connecting with other men who understand what they are going through. This Men's Health Month, read about five men with lupus who found connections and support through male support groups.

 

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Featured Events

Education

Awareness

Upcoming Walk to End Lupus Now™ Events:

June 22, 2014
Wilmington, DE
Register Today

June 28, 2014
Columbus, OH
Register Today

For a full list of walk events, please visit
walktoendlupus.org
 


Find an event near you through your local Lupus Foundation of America chapter. Click here to locate your local chapter.


 

Dr. Bruce Richardson Receives Lupus Insight Prize

 

Bruce Richardson, M.D., Ph.D. of The University of Michigan, has been selected as the second recipient of the Lupus Insight Prize. The award, a collaborative initiative among the Alliance for Lupus Research, the Lupus Foundation of America and the Lupus Research Institute, provides $200,000 for use in innovative research on lupus. Dr. Richardson's work has provided a strong foundation from which further advances in the understanding and treatment of lupus can be made.  

 

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Helping Hands: Exploring Nurse-Patient Relationships

 

People who live with chronic diseases such as lupus often come to value health care providers who give particularly attentive and effective care. But what many don't realize is that while you may be grateful for these medical professionals, many of them also appreciate you.

 

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Research

Research

Thyroid Therapy 

 

Thyroid problems are common in people with lupus. According to statistics from the Johns Hopkins Lupus Center, about 6 percent of people with lupus have hypothyroidism (an underactive thyroid) and 2 percent have overactive thyroid, or hyperthyroidism. While researchers haven't found a direct link between lupus and thyroid problems, people who have one autoimmune disease are more at risk for other autoimmune conditions.

 

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Lupus Prevalence Update

 

A recent report obtained from the United States Indian Health Service estimates the prevalence of lupus and the incidence of lupus for the US American Indian and Alaska Native populations are among the highest for any group previously reported, including rates for black populations in the US. Read more to learn about this study

 

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Help Support New Scientific Initiatives in Lupus

Two Lupus Foundation of America studies that aim to improve the quality of life for people with lupus through development of a full arsenal of safe and more tolerable treatments and more effective disease management tools were presented during the 2014 European League Against Rheumatism (EULAR) Congress last week. These studies are part of two initiatives funded by our National Research program, Bringing Down the Barriers™, which tackles the most perplexing issues in lupus. Help continue the momentum. Please give today.    

        

Answer: Men with lupus can have children, but certain medications can affect sperm counts. Speak with your doctor prior to conceiving and learn more on our website.