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"Ask the Experts" is a series of educational talks and presentations on a variety of topics designed to provide you with important information about living with lupus. This month, Susan Gustafson, Health Insurance Specialist at Center for Medicare and Medicaid Services, answered 15 questions about the Health Insurance Marketplace.
READ HER ANSWERS
In case you missed her talk last month, visit the Ask the Experts page to listen to Susan's presentation now.
LISTEN TO HER PRESENTATION
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With walk season fast approaching and Valentine's Day just around the corner, it is times like these to remember why so many of us participate in Walk to End Lupus Now™. Walking for someone you love is a great way to show you care while learning more about lupus. Read the Kassel family's story and learn how they support their daughter, Taylor, diagnosed with lupus when she was 12 years old. READ MORE |
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Upcoming Walk to End Lupus Now™ Event:
February 22, 2014
Naples, FL
Register Today
March 22, 2014
San Antonio, TX
Register Today
March 29, 2014
Birmingham, AL
Register Today
For a full list of walk events, please visit
walktoendlupusnow.org
TEAM LUPUS™
ASCICS LA Marathon
Sunday March 9, 2014
Register Now
Find an event near you through your local Lupus Foundation of America chapter.
Click here to locate your local chapter.
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Pilot Study Holds Promise for Children With Lupus
A small pilot study involving 12 individuals who developed lupus during childhood showed that treatment using a combination of the immunosuppressive drugs rituximab and cyclophosphamide, given over an 18-month period, can provide continued improvement for at least five years. Read more to see how this study may affect you.
LEARN MORE
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Parental Support: Finding Guidance for Mom and Dad
When children have lupus, they hurt. And when a child hurts, parents hurt, too. Read Kim Wilson's story about what it's like to care for a child with lupus, her daughter who was diagnosed when she was 8 years old.
READ MORE
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Efforts to Expand Ethnic Inclusion in Future Research
Until now, there has never been a coordinated study that measures the impact of lupus among all racial and ethnic groups in the United States Through the efforts of the Lupus Foundation of America, Congress provided more than $30 million to fund the National Lupus Patient Registry (NLPR), making it the first national lupus epidemiology study to include representation by all groups at risk for lupus.
LEARN MORE
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Test Panel Effective in Predicting Atherosclerosis
People living with lupus are at an increased risk for heart disease, a leading cause of death and disability among this group. But, a recent combination of tests that measures biomarkers for inflammation and cardiac risk factors was found to be better at predicting future development of atherosclerosis in people with lupus than any individual test or risk factor for heart disease.
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