Join Us For

Spinal Muscular Atrophy:

Optimizing the Management of Adults

in the Era of Disease-Modifying Therapies

Thursday, May 9. 2024

6:30 p.m. - 7:30 p.m.

Check out the Flyer here.

Speaker

Perry Shieh, MD, PhD

Professor (Health Sciences)

Departments of Neurology and Pediatrics

David Geffen School of Medicine at UCLA

University of California, Los Angeles

Los Angeles, California

For full accreditation information and to register, click here or go HERE.

Agenda

 SMA overview, SMA type IV  

 Disease burden, clinical and psychosocial impact

 Adult specific factors to consider – occupational/career, family planning 

 Treatment options  

Safety and efficacy of available and emerging treatments for adults with SMA  

 Risdiplam, nusinersen 

 Clinical updates of note 

 Psychosocial support for patients with SMA 

 Factors to consider when developing/modifying treatment plans  

 Goals, disease progression 

 Patient factors/preferences 

 Patient engagement: How to foster this (shared decision-making, communication strategies) 

 Case example(s)

Target Audience

The intended audience for this educational initiative is neurologists who manage patients with spinal muscular atrophy.

Learning Objectives

Upon completion of this activity, learners should be able to:

 Discuss the unique clinical issues and psychosocial needs faced by adults with SMA

 Assess the latest safety and efficacy data of available and emerging disease-modifying therapies for SMA in adults

 Integrate available disease-modifying therapies for SMA into individualized, evidence-based treatment plans

 Apply effective communication strategies to engage patients in shared decision making and reach management decisions that meet their individual needs

Joint Accreditation Statement

In support of improving patient care, this activity has been planned and implemented by Clinical Care Options, LLC (CCO) and Cure SMA. Clinical Care Options, LLC (CCO) is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Disclosures will be made known to learners before the activity.

Provided by Clinical Care Options, LLC, in partnership with Cure SMA.

Supported by educational grants from Biogen and Genentech, a member of the Roche Group.