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DEDICATED TO CURING NEUROENDOCRINE CANCER
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FEBRUARY 2016
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NETRF RECEIVES TRANSFORMATIONAL GIFT FROM MARGIE AND ROBERT E. PETERSEN FOUNDATION
Driving research to find cure for rare cancer affecting over 100,000 Americans
The Neuroendocrine Tumor (NET) Research Foundation today announced that it has received a major gift from the Margie and Robert E. Petersen Foundation to launch the most ambitious research effort ever undertaken to control and cure neuroendocrine cancers. Automobile publishing giant Robert E. Petersen passed away from this form of cancer, which is diagnosed in an estimated 12,000 Americans each year. It is the same disease that claimed the life of Apple founder Steve Jobs. The $15 million gift will provide $5 million a year for three years in funds and endowment to support research and investigators dedicated to a cure.
"A gift of this magnitude will greatly intensify the research that can be conducted in this rare disease space. With very little public funding for this type of research, a private gift of this magnitude is nothing short of transformational," said Ron Hollander, NET Research Foundation Executive Director. "We are so grateful to the Margie and Robert E. Petersen Foundation. This is an exciting time for cancer research, as new treatments like Immunotherapy are having breakthrough results for many forms of cancer. We will be reaching out to researchers throughout the US and beyond to bring the best ideas and investigators to the cause of curing neuroendocrine cancers."
"With this gift to catalyze our efforts, we must now build and sustain this new level of intensity until we see our cause through to completion," said NET Research Foundation Board Chair, Carol Branaman.
Read more
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2016 BAY AREA NEUROENDOCRINE TUMOR PATIENT CONFERENCE
Thank you for everyone who attended the 2016 Bay Area NET Patient Conference hosted by UCSF Helen Diller Family Comprehensive Cancer Center in cooperation with NorCal CarciNET Community, NET Research Foundation, and Stanford University Medical Center. We had over 300 in-person participants and over 1,200 views on the live stream throughout the day learning about NETs and meeting others sharing the journey.
In addition to the informative presentations and discussions, Josh Mailman, longtime NETRF supporter and friend, received the 2015 Warner Advocacy Award. According to Josh
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I was honored to receive the Warner Advocacy Award at the 2016 Bay Area NETs Patient Conference. I am humbled by the kind words from Dr. Emily Bergsland and the ovation from the community of patients, physicians, family and friends that were at the conference. While it is an individual recognition, it would not be possible without the support of all of those in our community as well as my family who shared the moment with me. There is still much for all of us to do in making sure that patients have access to quality care and information across the US and globally."
Conference videos will be available next week and we will post the link on our website and social media channels.
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Josh Mailman receives 2015 Warner Advocacy Award
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(l-r) Todd Gilman, NETRF Board Member; Dr. Pamela Kunz, Stanford;
Ron Hollander, NETRF Executive Director; Josh Mailman, President of
NorCal CarciNET Community; Dr. Eric Nakakura, UCSF
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| 2015 Cycle for Survival Team |
CYCLE FOR SURVIVAL
Team NET Research Foundation
Cycle for Survival is a nationwide indoor cycling event that works in collaboration with Memorial Sloan-Kettering Cancer Center (MSKCC). Together with Equinox, Cycle for Survival raises money to fight rare cancers by funding critical research. All funds raised go directly to the most promising neuroendocrine cancer research at MSKCC. Cycle for Survival raises funds for clinical trials and research studies, paving the way for better, more effective treatment options. Both the Boston and New York NET Research Foundation teams will be captained by Dave McCoy. Click the links below if you are interested in joining a team or in donating to this worthy cause. Thank you to all the riders and supporters of Cycle for Survival!
February 27, 8am-Noon, Equinox Franklin Street
March 12, 10am-2pm, Equinox Graybar
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SAVE THE DATE
Penn Medicine and the NET Research Foundation's 5th Focus on Neuroendocrine Tumors FREE Educational Conference
Please save the date for the 5th Focus on Neuroendocrine Tumors Educational Conference. More information, including registration and agenda, to follow.
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We are pleased to announce that this eUpdate is supported by Novartis Pharmaceutical Corporation.
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