CONNECTING THE CANADIAN NET COMMUNITY
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- President's Message
- 2019 National NET Patient Conference
- 2019 Fundraising Events - Update
- Community Events / Fundraising Toolkit
- Upcoming Zebra Chat
- 2019 Scientific & Medical Advisory Board
- 2019 Canadian NET Medical & Meeting
- World NET Cancer Awareness Day
- Online Private NET Support Groups
- NET Support Contacts & Groups
- NET Cancer Facts
- Maureen Coleman Award & Nominations
- Zebra Key Chain Fundraiser
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It is my pleasure to once again share a quick note on the work of CNETS Canada over the past several months. As always, we have been incredibly busy and are happy to report a lot of great success, which you will read further about in this issue of our newsletter. It always amazes me how fast time flies by!
We were absolutely delighted with the excellent turnout and presentation quality at our 2019 National Patient and Caregiver Conference. These events are critical educational resources for both newly diagnosed and seasoned patients and they provide a rare opportunity for patients and caregivers to engage with Canadian medical experts from across Canada outside of the clinic. A huge thanks to all of our presenters for taking time away from their families and out of their weekends to dedicate to the patient and caregiver community. Your dedication to us is very heartwarming and appreciated. Also a huge thanks to our funders, without whom we would not be able to provide these incredible events.
We are excited by the multi-disciplinary additions to our Scientific & Medical Advisory Board that you will read about in this issue of our newsletter and the launch of our 2
nd
annual Medical & Scientific Meeting. It is important for CNETS Canada to work with, support and engage the Canadian medical community who are critical to the NET patient journey and we are delighted to continue forging ahead with these critical relationships and events.
Another notable success so far this year is the Montreal and Ottawa Fundraising events, which together have raised over $22,000 for NET cancer research! Way to go Team Zebra Montreal and Team Zebra Ottawa. The ongoing commitment of our community to raise critical funds for NET cancer research is so appreciated and much needed. We are looking forward to great success for our third Team Zebra event in Toronto in October. We had an incredible team last year and a huge fundraising amount and are looking to top it and grow the team even more. If you are in the GTA and willing to walk or run as a member of Team Zebra in October 2019 please don’t hesitate to join. It is a wonderful event and it feels great to give back and contribute to our cause.
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2019 NATIONAL NET PATIENT CONFERENCE
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The
2019 National NET Patient Conference
included state-of-the-art topics and presentations on NET cancer diagnosis and treatment in the Canadian context.
Thanks again to our speakers, patients, caregivers and medical professionals, who came from across the country to share their experiences, knowledge and expertise, and our funders, without whom we could not offer these critical sessions for NET cancer patients.
We are delighted to share that the 2019 National NET Patient Conference presentations
are now available on CNETS Canada website!
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2019 FUNDRAISING EVENTS - UPDATE
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Banque Scotia 21k de Montreal
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Congratulations to
TEAM ZEBRA / EQUIPE ZEBRE MONTREAL
in raising
$14,000
for NET cancer research in Canada, at the 2019 Banque Scotia 21k de Montreal. Team Zebra Montreal ran in memory of
Daniel Opoku
, who passed away in March 2019 from NET cancer.
Huge thank you to
Donna Hillier
, Team Captain, the 40 Team Zebra Montreal Members and everyone who supported and cheered on the team.
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Tamarack Ottawa Race Weekend
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Congratulations to
TEAM ZEBRA OTTAWA
, in raising
$8,000
for NET cancer research in Canada, at the Tamarack Ottawa Race Weekend.
Team Zebra Ottawa ran in memory of
Sherry O'Grady Fox
, who passed away in April 2019 from NET cancer.
Huge thank you to
Natalie Mezey
(Team Captain), Team Zebra Ottawa members and a very special thank you to
Fred Fox
, Sherry's husband who said "Now it is my turn to carry the CNETS flag for her."
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Scotiabank Toronto Waterfront Marathon
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Join our ever-growing
TEAM ZEBRA TORONTO
on
Sunday October 21, 2019
and Run or Walk with NET Zebras to help us raise funds for NET cancer research!
Fundraising events are critical for CNETS Canada to be able to support research initiatives specific to NET cancer. CNETS Canada is the only Canadian charitable, patient-driven organization funding NET specific research in Canada and we can't do it without your help!
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COMMUNITY EVENTS / FUNDRAISING TOOLKIT
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CNETS Canada relies 100% on our community across the country to raise the critical dollars required to fund Canadian NET cancer research. As an organization we utilize the Scotiabank Marathon events that take place in multiple cities across Canada as our main fundraising platform. We have had incredible patient and caregiver engagement on these events and raised a substantial sum from them. However we also rely on community organized events of which there have been many over the years. We are so grateful to every community member who holds their own fundraising event, regardless of how big or small. For anyone who is considering organizing an event we are delighted to launch our Fundraising Toolkit, to be used as a supportive guide throughout the event.
A special thanks to our Fundraising Toolkit Committee, Alwyn Robertson (Chair), Amanda Rice, Enrico Mandarino, Vanessa Mann, Tracey Sherwood and Lucy Kuczma, who worked very hard on updating this resource for our community. In addition to this resource, we are always available to provide support and answer questions – just reach out at
i
nfo@cnetscanada.org
.
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UPCOMING LIVE INTERACTIVE ZEBRA CHAT
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On
Monday July 8, 2019
from 7:00 - 8:00 pm EST, join us for a live interactive Zebra Chat featuring guest speaker Bailey Daniels. Bailey is a 17 year pancreatic NET patient (pNET) who will share details of her long journey with NET cancer.
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2019 SCIENTIFIC & MEDICAL ADVISORY BOARD
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The Board of Directors of CNETS Canada is delighted to update the community on the composition of our Scientific & Medical Advisory Board (SMAB), effective immediately.
The mandate of the SMAB is to provide the Board of Directors of CNETS Canada with independent, expert, multi-disciplinary, and strategic advice on the status of current and upcoming medical and scientific issues related to diagnosis, therapy and better management of treatment of NET patients. The SMAB will also assess and recommend potential medical and scientific partnerships and linkages that can advance the mandate of CNETS Canada.
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2019 2
nd
ANNUAL CANADIAN NET MEDICAL & SCIENTIFIC MEETING
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CNETS Canada is delighted to host the
2
nd
Annual Canadian NETs Medical & Scientific Meeting
taking place on
Saturday October 26, 2019.
This meeting is intended for medical professionals in Canada who are treating NET cancer patients.
The agenda will include discussions, case presentations and lectures on the most important topics impacting NET treatment and care in Canada. We will communicate further as soon as registration for the event is open. Space will be limited and therefore registration will be on a first come, first serve basis.
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WORLD NET CANCER AWARENESS DAY
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O
n
Sunday, November 10
th
, 2019
– World NET Cancer Day, CNETS Canada will be raising awareness about NETs throughout Canada.
We’re taking the grass roots approach to this campaign and need your help to get the word out there! Thanks so much to the volunteers who have come forward already. We can’t wait to update the community on your plans, which we will do in the weeks leading up November 10, 2019. If you can help us in this awareness effort, please email:
info@cnetscanada.org
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ONLINE PRIVATE NET SUPPORT GROUPS
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CNETS Canada now has three private, online support groups to help connect and support NET patients and caregivers from across Canada.
and our newest private,online French support group
With a combined membership of over 750 members, these groups are a place to share personal experiences, doctor recommendations, treatments, clinical trials and information to aid in navigating the Canadian healthcare system. Kindness, support and love to all.
In order to join one of our groups, you confirm that you are a NET cancer patient, or a caregiver of a NET cancer patient.
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SUPPORT CONTACTS & SUPPORT GROUPS
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CNETS Canada also continues to encourage and support face-to-face support in regions throughout Canada.
We are always on the lookout for individuals who want to be a support contact in their region. We are flexible in defining the role and the warm, caring souls who take on this role should find it easy and fulfilling.
Many times people feel isolated and would like to connect with others in their region to offer each other support. Volunteering to be a Support Contact usually starts with phone calls, emails, to informal meetings with NET patients, family members, caregivers and friends.
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MAUREEN COLEMAN AWARD & NOMINATIONS
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One way that CNETS Canada honours those individuals who have made an outstanding commitment and contribution to the NET cancer patient community is through our annual Maureen Coleman Award.
The 2018 Maureen Coleman Award recipient
Marie-Anne Risdon,
received her award during the French NET Patient Conference in Quebec City on June 1, 2019. For more information the 2018 recipient
CLICK HERE.
CNETS Canada is pleased to announce the call for the 2019 Maureen Coleman Award.
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ZEBRA KEY CHAIN FUNDRAISER
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CNETS Canada launched the
Zebra Awareness Key Chains
at the 2019 National NET Patient Conference!
Zebra Awareness Key Chains can be purchased for 3 for $25.00. All funds raised will go towards NET Cancer Research in Canada. Cash or cheques are preferred for the fundraiser.
The Zebra Key Chains are approximately 3 x 5" and the distinctive design will sure make them a conversation starter!
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STAY CONNECTED TO CNETS CANADA
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CNETS CANADA | 1-844-628-6788 | info@cnetscanada.org | www.cnetscanada.org
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