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Message From the Chairman
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Unsung Heroes
I had the opportunity to speak to the CAP’s Glastonbury Support on Thursday, January 17th. I spoke about the many initiatives CAP is undertaking. I also led the “Caregivers” breakout session. I reminded the group in front of me that CAP’s Support Groups are there to “support” not only those with Parkinson’s, but also their loved ones.
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How I See It
| a Blog by Michelle Hespeler
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As you have probably heard and read about, exercise is the best thing one can do to combat this disease.
Parkinson’s is a neurological disease that cause many, many symptoms with the most visible being tremors and slowness of movement. Intense exercise is said to cause firing in the brain which then triggers the dopamine, neurons and cells to more efficiently do their job and make the muscles move.
The more intense the exercise, the more often the exercise and the more muscles used for exercise, the more firing in the brain and the more improved results. The results being improved daily symptoms and slowing the progression of the disease.
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Advocacy Efforts
| with Steve DeWitte
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My advocacy travels have slowed considerably during the year-end and January, but I am pleased to have been able to recently attend the hilarious – and touching – off-Broadway play, “Side Effects May Include…”, written by Seinfeld writer Marc Jaffe and Broadway playwright Eric Coble, and starring Nick Koesters. A wonderful dinner was enjoyed with my PWP friends from Fairfield county prior to the play – and a good time was had by all. Here I am shown with Karen Jaffe, Michelle Hespeler, and Marc Jaffe, after the play.
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Are You Newly Diagnosed?
You. Need. To. Exercise. Now.
“Research and personal experience continue to show the critical importance of exercise for people with Parkinson’s. Regular physical exercise can improve mobility and coordination, boost your mood, reduce stiffness, soreness and fatigue and may even slow down the progression of Parkinson’s itself.”
Read more, and download your own personal
Exercise Essentials Mini Course. Don’t wait.
Not convinced?
Read this Blog from a PWP who believes Exercise has slowed the progression.
Source: Davis Phinney Foundation
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Fox Insight: Data is the key – and your participation is how it is gathered.
"I think it is the single most important thing that you can do... I'd ask you to go to
FoxInsight.org and to participate by giving information about your disease so it can be bundled with everybody else's and we can get to a better place and recommend treatments and recommend symptom reduction techniques and the like." - Jim McNasby, who has lived with Parkinson' for nearly two decades
Source: MJFF
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APR 27
25th Annual Parkinson’s
Unity Walk in NYC
72nd Street Bandshell,
Central Park, New York, NY
8:30 am – 12:00 pm (Rain or Shine)
More info on bus transportation and how to join a CAP team coming soon.
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JUN 01
4th Annual Parkinson’s
Expo and Symposium
Hilton Garden Inn, Wallingford/Meriden
9:00 am – 3:00 pm
Speakers, vendors, food and demonstrations
Sample Topics:
- What’s new in Parkinson’s research
- The latest news on stem cells and Parkinson’s disease
- Clinical trials
- Medical Marijuana and PD
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Pedaling for Parkinson’s’
Location
Soundview Family YMCA of Branford.
Update
½ hour spinning class has been offered every Tuesday at 10:30 am since 11/20/18.
Stop by and give it a try!
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Dancing with Parkinson's
This free class is offered every Friday at 10am
Location
Trinity Episcopal Church in Branford
Contact
Laura Richling | 203-675-2930
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CT Parkinson’s Resource Guide
Set to be done by early April 2019
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Upcoming Meetings
Feb 2
Valentines Day Celebration
Mar 2
Dr. Duarte Machado, Hartford Healthcare
Managing "Off Time"
Apr 6
Dr. Amar Patel,
Yale New Haven
Movement Disorder Specialists
May 4
Dr. Lynn Acton,
Speech Pathologist at Yale
Speech and Swallowing
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The Branford Chapter meets on the first Saturday of each month.
Contact
Allyson Kinney
Lead Coordinator, CAP Branford Support Group
Location
Branford Fire House
45 N. Main Street, Branford CT 06405
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Upcoming Meetings
Feb 9
Dr. Sarah Buckingham
Bring your questions!
Mar 9
10am-noon**
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Naida Rosado presents Tai Ji Quan: Moving for Better Balance® (TJQMBB) a falls prevention program for older adults at risk for a fall or people with balance disorders
Apr 13
Steve Hadad
of Rock Steady Boxing and the Parkinson’s program.
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The Southbury Chapter meets on the second Saturday of each month at 10:30 am.
Contact
Steve DeWitte
VickiAnn Manville
Location
Southbury Library - Kingsley Room
100 Poverty Road, Southbury CT 06488
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Upcoming Meetings
Feb 21
Dr. Sule Tinaz
What is Happening in PD Research
Apr 6
Punch for Parkinson's Jamboree
Fundraiser for Beat Parkinson's Today
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The Glastonbury Chapter meets on the third Thursday of each month at 6:30 pm.
Contact
Michelle Hespeler
Location
South Congregational Church
949 Main Street, South Glastonbury CT 06073
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Torrington Area Parkinson's Support Group
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The Torrington Area Parkinson's Support Group meets on the fourth Saturday of each month at 10:00 am.
Contact
Location
Sullivan Senior Center
88 East Albert Street, Torrington, CT
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Feb 13
An Epicurean Evening to benefit TAPSG will be hosted by Brandywine at 19 Constitution Way in Litchfield, CT. Exquisite bites from around the world, artisan cocktails, music, door prizes, demonstrations and more will be included.
Tickets are $15 each, and payments will be taken at the door.
The event will be held in the club room, and business casual is the evening's attire.
Feb 23
TAPSG will meet at the Sullivan Senior Center at 10AM.
The speaker will be Dave Apicelli, a person with Parkinson's who has had life experiences others with PD should know about. An open conversation will be held among attendees.
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Middletown: CPWG Support Group
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The Middletown CPWG Support Group meets on the third Saturday of each month.
Contact
Judy Grasso
Location
The Village at South Farms
645 Saybrook Road, Middletown, CT.
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Feb 16
10:00 AM to 12:00 NOON: CPWG Support Group Meeting
Come join us to share your tips, strategies, hints, and suggestions that can help us all do the best we can to live well with Parkinson’s Disease. Is there special music that relaxes or energizes you? Are there favorite foods or treats that help you get through the day? What kind of exercises work the best for you? How does technology help you? What strategies do you use to manage fatigue? What social activities are the most fun for you? There is so much we can learn from each other!
We will also make time for our members with Parkinson’s and their caregivers to meet separately to freely discuss issues and topics that are important to them.
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The Southbury APDA meets on the third Monday of each month from 1:00 pm to 3:00 pm.
Contact
Ivan Johnson
Location
Town Hall, Room 208,
Main Street South, Southbury, CT
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NOTICE
The Southbury Town Hall will again be closed Monday, February 18th
for President's Day.
Therefore, the February meeting of the APDA~ American Parkinson's Disease Association meeting will be held on Monday, February 11th
(2nd Monday) at the Southbury Town Hall, in Room 208 501 Main St S, Southbury, CT 06488
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Blue Boy Boxing Owners Honored
Kareem and Nina Blue, owners of Blue Boy Boxing in Thomaston, are shown at their club being honored for their work with PWP’s. Their club “is dedicated to teaching the science of boxing to students of all ages. (They) specialize in Parkinson's boxing fitness as well as self-defense for kids ages 6-16 and adults.”
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How Smart Devices Help People With Parkinson's
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Daily life with Parkinson's can be challenging. Fortunately, modern technology offers many solutions that improve the day-to-day experience of individuals with the condition.
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4 Potential Risk Factors for Parkinson's
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As Parkinson’s impacts over 10 million people globally, researchers are constantly trying to learn more about the disease to promote early intervention and develop new treatments. Although scientists have thus far been unable to determine the exact cause of the condition, they have identified multiple associated risk factors.
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How to Spot Early Signs of Parkinson's
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Every year, roughly 60,000 Americans are diagnosed with Parkinson’s disease. It’s important to identify early warning signs of this neurodegenerative condition so you can seek treatment and make lifestyle changes.
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Fox Trial Finder was created by the Michael J. Fox Foundation to help increase the flow of willing participants — both people with Parkinson’s and control participants who do not have Parkinson’s — into the clinical trials that need them, accelerating the Parkinson’s drug development process.
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CAP has many exciting items it is working on for 2019.
We can’t do it without your help!! Won’t you please….
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You can donate from either your credit card or your PayPal account. Your donation will be processed by PayPal.
Thank you for your support of Connecticut Advocates for Parkinson's – a registered 501 c 3 organization.
Want to know more about CAP’s
Donor Bill of Rights and Guidestar Rating?
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