Raising awareness about Chromosome 18 abnormalities and those affected by them
Highlights:
- Chris Ulmer's interview with Elizabeth Cody has gone viral on Social Media.
- 1.2 million Facebook views in 24 hours for Elizabeth Cody, who is scared of not having any friends!
- 24th National Conference for Chromosome 18 Registry & Research Society took place in Chicago, IL from 13-15 July.
- 26th anniversary of the only Global research center for Chromosome 18 conditions, based right here at UT Health in San Antonio.
Elizabeth Cody was born with a Chromosome 18 abnormality and her desperate the obstacles she has faced she remains steadfast. As the keynote speaker at the 24th Annual Conference on Saturday July 15th for the Chromosome 18 Registry & Research Society, Chris Ulmer thought Elizabeth to be so interesting that he conducted a private interview with her. Chris Ulmer, a former special education teacher in Florida, who now spends his time interviewing children with special needs for his series, Special Books by Special Kids was the keynotes speaker at our annual conference last week. During Chris' interview with our own Elizabeth Cody, you can see and hear her tell the story of her journey. We are so impacted by the simplicity of just wanting to be treated as a normal person and to maintain fulfilling friendships.
Watch the story below, directly from Elizabeth:
Elizabeth's mother Jannine Cody, upon receiving Elizabeth's diagnosis of Chromosome 18, realized very quickly that little was known about the effects that Chromosome 18 abnormalities had on children. After doctors painting a bleak outlook for Elizabeth's future, Jannine decided to take matters into her own hands. Jannine went back to college, got her degree and Ph.D. then founded The Chromosome 18 Clinical Research Center at UT Health. In addition she also started a nonprofit called Chromosome 18 Registry & Research Society that was a support and advocacy group for families not only in San Antonio, but worldwide. 26 years later, still the majority of discovery and research about Chromosome 18 and how to treat this condition comes from Jannine and her devoted team. On August 22nd our Clinical Research Center will be celebrating it's 26th anniversary and the Registry & Research will be celebrating it's 27th anniversary. We are overfilled with joy from all the support and success we have seen over the past years and are looking forward to our future partnerships and successes.
If you would like to know more about the Codys and their journey please contact The Chromosome 18 Registry & Research Society for official statements and/or interviews.
