Women's Health Updates — March 2024


This newsletter features information about heart health, endometriosis, menopause, and more!



Read about recent developments in women's health as well as SWHR's activities that promote the study of sex and gender influences on health and serve our mission to improve women's health through science, policy, and education.

LinkedIn Share This Email

SWHR PUBLISHES 2023 ANNUAL REPORT

Read about SWHR's Science and Policy Programs, highlights from the 2023 Annual Awards Gala, top blogs, and letters from the SWHR President and Board Chair in the Society's 2023 Annual Report.

SOCIETY APPLAUDS ARPA-H SPRINT FOR WOMEN'S HEALTH

SWHR is thrilled to see how the White House Initiative on Women’s Health Research is taking shape across the federal government. The Advanced Research Projects Agency for Health (ARPA-H) hosted a "Sprint for Women's Health Proposers' Day" on March 6, discussing ARPA-H's latest initiative, which will invest $100 million in transformative research and development in women's health. The Society is excited to see what comes from this investment and will continue to look for ways to engage with the Administration on the White House Initiative to ensure that the most salient recommendations of the women’s health, public health, and scientific communities become a reality.


Learn more about the White House Initiative on Women’s Health Research during the March 21 event, "Webinar on Women’s Health — Obtain Updates on Funding and more!" SWHR is a co-sponsor of this event.

SAVE THE DATE FOR THE SWHR ANNUAL AWARDS GALA

Join SWHR for the 2024 Annual Awards Gala on April 25, 2024. The Society will recognize Janine Austin Clayton, MD, FARVO (NIH Office of Research on Women's Health), Maria Shriver (Women’s Alzheimer’s Movement at Cleveland Clinic) and Shontelle Dodson, PharmD (Astellas Pharma, Inc.) for their commitment to improving women’s health.


We are excited to host this year's event in the newly renovated National Museum of Women in the Arts. Tickets and sponsorships are now available. Contact Development Director Julie Miller with questions.

SWHR IN THE NEWS

Check out the latest articles featuring SWHR!


CNN: "Helping women with heart disease" features SWHR as an organization that supports women's heart health.


Mira Fertility: Mira Introduces First Nationwide Sex Hormones Awareness Week to Close the Knowledge Gap About Female Hormones” announced SWHR as a partner for Mira Fertility's first-ever Sex Hormones Awareness week on February 18.

HEALTH AWARENESS IN MARCH

AUTOIMMUNE AWARENESS MONTH

It is estimated that between 23.5 and 50 million Americans are living with autoimmune conditions, and this prevalence is increasing. Yet, the burden of autoimmune diseases is not evenly distributed; 80 percent of patients are women.


Women face unique challenges when living with and caring for those with autoimmune diseases. Find support resources and wellness tips in SWHR's autoimmune resources, including the Lupus Toolkit, Psoriatic Arthritis Toolkit, and Autoimmune Disease Policy Agenda. Find many more resources online at swhr.org.


Read the paper "Addressing Autoimmune and Immune-mediated Skin Disease Burden in Women," a collection of insights from a series of SWHR meetings and public events about autoimmunity and the skin.

ENDOMETRIOSIS AWARENESS MONTH

For every 10 women in your life, at least one of them likely has endometriosis. Endometriosis requires lifelong care, and nearly 95% of women with endometriosis report having at least one other chronic condition. Learn more about how to support those living with endometriosis by exploring SWHR's Endometriosis Toolkit, Endometriosis Teen Toolkit, and the Endometriosis Patient and Provider Video Set, all available at swhr.org


March 1-7 is also Endometriosis Awareness Week!


Join the conversation this month on social media using the hashtag #SWHRtalksEndometriosis.

NATIONAL NUTRITION MONTH

What you eat has a large impact on your health. Certain diets can help manage chronic conditions or lower future disease risk. Explore the SWHR resources that include tips for starting and keeping healthy nutrition habits, including the Lupus Toolkit, Uterine Fibroids Toolkit, Read My Lips heart health campaign, and Migraine Wellness Toolkit.

SLEEP AWARENESS MONTH

On average, individuals spend 26 years of their lives asleep and seven years trying to fall asleep. Sleep is an essential function for overall health. SWHR began work on sleep health more than a decade ago and has continued efforts in this space since. Check out our recent sleep guide, the Narcolepsy Toolkit!


Read the NEW Supporting Children with Narcolepsy at School Fact Sheet.


March 10-16 is Sleep Awareness Week, marking the beginning of Daylight Savings Time on March 10. March 15 is World Sleep Day!

MARCH 4: HPV AWARENESS DAY

We can all play a role to prevent HPV! Ensure you and your family are protected from the virus before any virus risk is present, and learn how the HPV vaccine is powerful cancer prevention tool. Watch the #SWHRtalksHPV conversation today!

MARCH 4: WORLD OBESITY DAY

Obesity is a chronic disease with a particular impact on women. SWHR is proud to be a partner of the new EveryBODY Covered campaign, to empower women to advocate for insurance coverage of comprehensive obesity care. Learn more at everybodycovered.org.

MARCH 8: INTERNATIONAL WOMEN'S DAY

The NIH Revitalization Act of 1993 mandated that women and minorities be included in all NIH-funded clinical research – nearly 20 years after a 1977 FDA ruling excluded women from research. We are still making up for this research gap today. Investing is women's health research is imperative to improve women's health. Read more about the progress and opportunities in women's health on the SWHR blog.


Hear from SWHR's Chief Science Officer Dr. Irene O. Aninye during the March 8 webinar, "Inspiring Inclusion: Celebrating Women in Health Care and Advocacy," hosted by Expecting Health.


March is also Women's History Month! Learn more about the history of women's health in SWHR's Timeline.

MARCH 11-17: BRAIN AWARENESS WEEK

As individuals age, the brain changes – but cognitive conditions like Alzheimer's disease and related dementias are not an inevitable part of aging. Learn more about protecting your brain health and supporting Alzheimer's patients and caregivers in the Breaking Down the Burden of Alzheimer’s Disease fact sheet!

LATEST RESOURCES

SWHR Publishes Heart Health Policy Agenda


Heart disease is the leading cause of death for both women and men in the United States, resulting in one in every five deaths. Despite decades of progress, the heart health landscape in the United States is fraught with persistent challenges, spanning challenges with public and provider education, to research gaps, to barriers to accessing care.


To close out American Heart Month in Februrary, SWHR created the SWHR Policy Agenda: Improving Women’s Heart Health Outcomes Across the Lifespan to discuss policy needs and opportunities in women’s heart health.


Thank you to the SWHR Heart Health Policy Working Group, who provided insights to inform this work!

Explore the Heart Health Policy Agenda

Speak Up for Heart Health on Social Media


The Society also created Speaking Up for Women’s Heart Health: A Social Media Toolkit, a complementary social media toolkit to help spotlight the policy solutions needed to improve women's heart health.


Check out the toolkit and raise awareness about women's heart health on social media using the hashtag #SWHRtalksHeart!

X Share The Policy Agenda
LinkedIn Share The Policy Agenda

SWHR Creates Endometriosis Video Set for Patients and Providers


Launched this March for Endometriosis Awareness Month, SWHR's latest video series directed at both health care providers and patients impacted by endometriosis, seeks to help improve endometriosis diagnostic and care pathways.


Watch the "Journey to Wellness with Endometriosis" video to learn about the endometriosis patient experience and how women can better navigate their care.


Watch the "Precision in Practice for Endometriosis Care" video to learn how a wide range of health care providers (from those in pediatrics to emergency medicine) can help endometriosis patients better recognize symptoms.


Thank you to the members of the SWHR Endometriosis Education Working Group featured in these videos, including:

  • Soyini Hawkins, MD, MPH, FACOG, Endometriosis Patient and Minimally Invasive Gynecologic Surgeon, Fibroid and Pelvic Wellness Center of Georgia  
  • Lauren Kornegay, Endometriosis Patient and Executive Director, Endo Black Incorporated 
  • Lindsey Peters, Endometriosis Patient and Advocate 
  • Jessica Shim, MD, Pediatric and Adolescent Gynecologist, Boston Children’s Hospital 
  • Wendaline VanBuren, MD, Radiologist and Associate Professor, Mayo Clinic 
Watch the Endometriosis Videos

Explore additional endometriosis resources!


SWHR created the Endometriosis Toolkit: A Guide For Teens to empower teenagers who have menstrual health questions or are living with endometriosis to better understand their care. 


Descargar una copia del Kit de Herramientas para la Endometriosis: Guía para Adolescentes en español, para ayudar a empoderar a las adolescentes que viven con endometriosis y así entender mejor su salud y orientarse en su atención.


Do you have an endometriosis or uterine health story to share? Share your story with SWHR at swhr.org/shareyourstory and you could help inform future resources.

SWHR Shares Set of Menopause Workplace Resource Guides


Half of all individuals employed in the United States between the ages of 40 and 64 are women – the majority of whom have begun or completed the menopause transition.  


Yet, according to the SWHR Employee Perspectives and Challenges Concerning the Transition of Menopause (EMPACT Menopause) Study, one-third of employees were unsure if menopause-specific resources were available to them.


The Menopause Workplace Resource Guides were created to support managers and women in the workplace so they can better understand the menopause transition and foster more menopause-friendly workplaces.


Thank you to the members of the SWHR Menopause Working Group and to all who completed the menopause workplace survey last year, helping make these guides possible!

Read the Menopause Workplace Guide for Managers
Read the Menopause Workplace Guide for Women

Learn more about menopause at work!


Explore findings from the EMPACT Menopause Study, published earlier this year.



Join the conversation on social media using the hashtag #SWHRtalksMenopause.



Do you have a menopause story to share? Share your story at swhr.org/shareyourstory and you could help inform future resources.

SWHR Releases Narcolepsy Caregiver Fact Sheet


Ahead of World Sleep Day on March 15, SWHR released the Supporting Children with Narcolepsy at School Fact Sheet, to support narcolepsy caregivers as they navigate reasonable accommodations and care for their families. Narcolepsy can have a significant impact on a child’s academic life, so communication and support from schools are critical.

Check Out the Narcolepsy Fact Sheet

Share your health story with SWHR!



Do you have a health story about narcolepsy, sleep health, caregiving, or another health topic to share? Share your story with SWHR at swhr.org/shareyourstory and you could help inform future resources.

RECENT ONLINE EVENTS

Watch the recording for "Getting at the Heart of Needs in Women’s Heart Health." Hear as experts review the burden of heart disease in women in the United States and explore SWHR’s latest heart health resources.


Special thank you to panelist, Dr. Martha Gulati!


Do you have a heart health story? Share your story by visiting swhr.org/shareyourstory and you could help inform future resources.

Check our SWHR's latest Instagram Live conversation, "Heart to Heart: A Chat About Heart Disease Risk in Women," where viewers learned about the prevention and treatment of ischemic heart disease in women.


A special thank you to our speaker, Dr. Nieca Goldberg!



See highlights from the event on social media at the hashtag #SWHRtalksHeart and on Instagram at @SWHR_official.

POLICY UPDATES

SWHR co-sponsoring "Webinar on Women’s Health — Obtain Updates on Funding and more!" event.


On March 21, hear from ARPA-H Director Renee Wegrzyn, PhD and White House Initiative on Women’s Health Research Director Carolyn Mazure, PhD on the new $100M ARPA-H Sprint for Women’s Health Program and the White House plans. If you are an innovator, founder, funder, researcher and care about driving meaningful change in advancing the health of women, this event is for you! Learn more.

Additional Updates:


Learn more about SWHR's policy work here.

HAPPENING THIS SPRING

MARCH 6-13: Migraine World Summit

During the 9th annual virtual Migraine World Summit, join over 150,000 viewers living with migraine to uncover the latest research on how to best manage migraine. Register now.

MARCH 7: A New Blueprint – Establishing a Research Agenda for Equitable, High-Value Care

This session will guide you through the process of crafting a research agenda focused on advancing high-value, equitable health care. Register now.

MARCH 8: Inspiring Inclusion: Celebrating Women in Health Care and Advocacy

Join Expecting Health as they explore the significance of including women in health research and discuss the importance of diversity in health care, during International Women’s Day. Hear from SWHR at the webinar! SWHR Chief Science Officer Dr. Irene O. Aninye will be speaking at this event. Register now.

SWHR EVENT MARCH 19: The Impact of Menopause on Women at Work: A Guide Conversation

With 75% of women ages 45 to 54 participating in the U.S. workforce, a significant portion of the labor force will work throughout their menopause transition. Tune into this webinar to learn how to address career-related challenges related to menopause. Register now.


MARCH 19-20: Medications and Obesity: Exploring the Landscape and Advancing Comprehensive Care: A Workshop

This NASEM workshop will explore the relationship between medications and obesity, including medications that are used to treat obesity, state of the science around the safety and efficacy of medications in people with overweight or obesity. Learn more.

MARCH 21: Webinar on Women’s Health — Obtain Updates on Funding and more!

SWHR is a co-sponsor of this event! Hear from ARPA-H Director Renee Wegrzyn, PhD and White House Initiative on Women’s Health Research Director Carolyn Mazure, PhD on the new $100M ARPA-H Sprint for Women’s Health Program and the White House plans. Learn more.

MARCH 25-28: On Aging 2024

On Aging is the nation’s largest multidisciplinary conference on aging and the annual conference for members of the American Society on Aging. Meet SWHR at the event! SWHR Chief Science Officer Dr. Irene O. Aninye and SWHR’s Menopause Workplace Education Working Group members Jennifer Fairweather and Dr. Sharon Seibel will be speaking at this confernce. Learn more.

MARCH 28: Diverse Voices: Endometriosis

NIH Office of Research on Women’s Health presents the March 2024 session of Diverse Voices: Intersectionality and the Health of Women on Endometriosis. Learn more.

MAY 1-4: 3rd Reproductive Aging Conference

The Reproductive Aging Conference focuses on understanding mechanisms that regulate aging in reproductive tissues and their relationship to overall organismal healthspan and longevity. This event is one of the only international meeting dedicated entirely to the topic of reproductive aging. Learn more and register.

MAY 6-9: OSSD 2024 Annual Meeting

The Organization for the Study of Sex Differences (OSSD) 2024 Annual Meeting is taking place this May in Bergen, Norway. The meeting will feature keynote speakers, symposiums, and awards for trainee members in the fields of sex differences research. Meet SWHR at the event! SWHR Chief Science Officer Dr. Irene O. Aninye will be speaking at this event during the SWHR Emerging Scholars Symposium, featuring research excellence in addressing important knowledge gaps in women's health. Learn more.

SWHR EVENT MAY 9: VCU Health of Women 2024 | Emerging Topics in Women’s Health: Autoimmune Disease Challenge

This symposium will discuss the impacts of autoimmune diseases on women’s health across the lifespan, with special emphasis on pregnancy and maternal health, caregiving/parenting children with autoimmune disease, and the menopause transition. Register for the webinar.


This event is part of the VCU Health of Women Conference 2024, happening this May! Learn more about the conference.

MAY 29-31: 3rd Annual Healthcare Innovation Congress (thINc360)

thINc360 conference assembles leaders from across health care to learn, network, and collaborate for meaningful progress towards enhancing health care. Meet SWHR at the event! SWHR CEO Katie Schubert will be one of the event speakers..


Use this exclusive SWHR Promo code to receive 50% off the current registration rates: SWHR. Register through this link.

Your copy should address 3 key questions: Who am I writing for (audience)? Why should they care (benefit)? What do I want them to do (call-to-action)?


Create a great offer by adding words like "free," "personalized," "complimentary," or "customized." A sense of urgency often helps readers take action, so consider inserting phrases like "for a limited time only" or "only 7 remaining!"

Your copy should address 3 key questions: Who am I writing for (audience)? Why should they care (benefit)? What do I want them to do (call-to-action)?


Create a great offer by adding words like "free," "personalized," "complimentary," or "customized." A sense of urgency often helps readers take action, so consider inserting phrases like "for a limited time only" or "only 7 remaining!"

Check out SWHR's event calendar for more SWHR and other women's health events.

ON THE BLOG

Menopause, Perimenopause, and Migraine

Elevating the Impacts of Autoimmune Disease and Black Women’s Health

Menopause Resource Guides Aim to Create Menopause-Friendly Workplaces for All


SWHR Welcomes Three New Members to Board in 2024

How SWHR is Driving its 2023-2024 Policy Agenda Priorities

SWHR Launches Heart Health Policy Agenda

Cervical Cancer Awareness Month Event Spotlights How to Prevent HPV-Related Cancers

SWHR Announces 2024 Honorees for Women’s Health Visionary Awards in Advance of Annual Awards Gala

A Call to Action to Addressing Heart Health Across a Woman’s Lifespan, Informed by Data Dashboard

WOMEN'S HEALTH PERSPECTIVES

Listen to Ashley’s story about the challenges she faced and decisions she made to manage living with narcolepsy and protect herself and her baby during pregnancy in, "Ashley’s Story | Narcolepsy and Maternal Health," shared with SWHR.

Do you have a health story to share? SWHR is always seeking stories about diagnoses, seeking or providing care, and living with narcolepsy, menopauseautoimmune diseases, heart disease, or other conditions or life stages. Visit swhr.org/shareyourstory or click the button to share.

Share your health story with SWHR!

SWHR SPOTLIGHT

Don't forget to check out SWHR's 2023 Annual Report


Read about SWHR's Science and Policy Programs, highlights from the 2023 Annual Awards Gala, top blogs, and letters from the SWHR President and Board Chair in the Society's 2023 Annual Report.

What is SWHR Reading?


On Cancer: Global cancer burden growing, amidst mounting need for services” by the World Health Organization


On Heart Health: “Why a hidden family link to heart disease is going undetected in many people” by WTOP


On Research: ARPA-H announces Sprint for Women's Health” by ARPA-H with support from the White House Initiative on Women's Health


Know something SWHR should read? Reply to this email or tag us on social media using @SWHR!

Did someone forward you this email? Looking for more news on women's health research? 
Sign Up For SWHR's Newsletter!
Would you like to join us in our vision of making women's health mainstream?
Donate to SWHR!


Facebook  Twitter  Linkedin  Youtube  Instagram