I have been spending a lot of time thinking about what separates tough times from moments of joy….there is a lot of challenges in this world facing all of us in different ways. Any time in nature sure seems to inspire awe, which is one way to spark joy. One of the things that I like about this time of year is the message of hope, rebirth, renewal. As I was walking this weekend by Lake Washington, I thought of all the important work there is to do, and the gratification that comes with sharing concepts of health advocacy with our community. Every Board meeting, we start with a ‘mission moment,’ to highlight one person’s experience that (HealthAdvocateX) was able to impact positively. Often it is an individual or family member trying to navigate an urgent health issue that seems impossible to understand. I am so proud to be associated with this unique and gifted group of people who really care and work hard every day to advance health and health advocacy in so many ways!
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Spring is In the Air – as pictured at Lake Washington, Seattle WA
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This season is especially busy with many events and activities to get involved with – in addition to our events, we are sharing the Ken Schueler Seminar named after Ken Schueler, a modern pioneer in the field of health advocacy who died too young but had a huge impact on the profession. See story below for registration details.
We also hope you will join us for a very special live virtual screening of Race to Be Human, a film that explains basic and foundational concepts of race and racism. We will follow the film screening with an outstanding panel of health advocacy experts (see story below).
Be well,
Robin Shapiro and the Team at HealthAdvocateX
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We will also be hosting a special virtual screening of RACE to Be Human with a special post-film panel with Health Care Leaders.
WHY ATTEND?
Race and racism contributes highly to health disparities. If you are part of the health advocacy community, you are invested in valuing the pursuit of helping all people get the health care they deserve. For people of color and other marginalized communities, the pursuit of the health care everyone deserves has different barriers that all advocates and anyone who cares about advocacy should know about.
This film, Race to Be HUMAN is a good basic primer on race and racism. The follow up panel discussion will feature three health and health advocacy leaders:
Panelists Include:
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Dr. Nwando Anyaoku
Chief Health Equity Officer, Providence/Swedish Health Services
Dr. Nwando Anyaoku is a physician executive, speaker, coach and consultant based in Seattle Washington. A pediatrician by training, she serves as the Chief Health Equity Officer for Providence Swedish Health Services. In this capacity, she works with clinical and community leaders to advance equity in healthcare, and culturally competent care delivery. She is also a great advocate for protecting and elevating health equity through technology and digital innovation.
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Annie Gardiner
Retired Health Care Advocate
Annie Gardiner is a retired health care advocate, white anti-racist activist, and co-founder of Bay Area Health Care Advocates. She’s worked primarily with people who are navigating medical care and rehab post-stroke, and with people managing neurocognitive conditions. Annie presents on the role of health care advocacy in building racial equity. She values communication, seeks to model how white people can work toward racial justice in meaningful ways, and welcomes difficult and healing conversations.
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Dr. Nicole Rochester
Health and Patient Advocate
Dr. Nicole Rochester is a Board-certified pediatrician with over 20 years of experience caring for patients and families. Her decision to leave clinical medicine in 2017 to launch a professional health advocacy and consulting company, Your GPS Doc, LLC, was inspired by her own caregiving journey. She is also a speaker, author, and media contributor. Dr. Rochester is a passionate champion for health equity and believes that health advocacy is a key tool for eliminating health disparities in marginalized communities.
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GRAB YOUR TICKET TODAY
This film will be screened LIVE on March 27 at 4 pm PT / 7 pm ET and will follow up with a panel discussion where you can ask questions and interact with this outstanding panel.
The film and recorded panel will be available for just one week post-event (until April 3)
A LIMITED number of tickets is available, according to our license, so please Register Today
CAN’T AFFORD TO PAY BUT WANT TO ATTEND?
We would never want cost to be a barrier to participating in our events. If you are not able to afford the cost of the ticket but would like to attend, just email us at info@HealthAdvocateX.org and we will send you a code for a free ticket!
HealthAdvocateX is committed to inclusion, diversity, equity and inclusion (IDEA), please read our statement here: Diversity Statement
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Community Conversation - April 2023
When: Monday, April 10, 2023 11am – 12pm (PT)
Cost: FREE to the Public!
This month will focus on the current COVID-19 updates and current work in the health and patient advocate community to focus on improving health disparities through justice work in health advocacy. This session is free and open to the public and will be recorded.
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Dale Reisner, MD, Healthcare Quality Improvement Consultant and former Medical Director (OB/GYN Quality and Safety) at Swedish Health Services |
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Our Next Case Review is April 13:
An Aging Icon is also a Vulnerable Senior
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Case Review – April 2023
An Aging Icon That Was Also a Vulnerable Senior
Case Review is a FREE benefit of HealthAdvocateX Membership (for Professional/Partner Members). To participate, send us an email at info@HealthAdvocateX.org.
When: April 13, 2023 | 4pm – 5:30pm (PT)
Where: Online via Zoom
A 70 year old woman fell down a flight of stairs. A Pandora’s box revealed misdiagnosis, financial fraud and caregiver coercion.
Objectives:
- Determining and understanding the needs of personal review and evaluation by advocates with each client.
- Helping a client understand the needs required by their healthcare and financial agents. Then with this knowledge, helping them choose these agents.
- Helping a client determine the different options of living and lifestyle for them and then helping them choose the best option.
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The Case will be presented by Caryn Isaacs, Private Professional Patient Advocate who finds ways for Aging Icons to continue their life mission regardless of aging or illness.
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Caryn Isaacs
Caryn has over 40 years of experience helping people to navigate the health system as a former representative of business and labor organizations.
As a leader in the Clinton era health reform movement, Caryn recognized early on that it was becoming increasingly difficult for patients to find a single source of information about health care options, legal issues and financial planning. Caryn’s company GetHealthHelp.LLC specializes in communication between all the players including family and friends or addresses the lack thereof, people known as Elder Orphans.
Caryn Isaacs tells stories and facilitates interactive programs that empower people to zero in on the obstacles and opportunities to reach goals that they never thought possible.
Here’s what people say about Caryn “When they say there’s nothing that can be done, it just means that they don’t know what to do, Caryn always does.” You can see more about Caryn Isaacs and view some of her videos, blogs and stories at GetHealthHelp.com and soon at AgingIcon.com. You can also see her on Facebook, Instagram, and LinkedIn, plus hundreds of Google spots where Caryn is interviewed as the expert in her field.
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Trends in Cancer Care: Focus on Lung Cancer
When: Friday, March 24, 2023
Time: 9 am PT / 11 am CT / Noon ET
Cost: FREE for everyone to View/Attend: (Registration Required)
CE Cost: View/Attend and earn 2.5 BCPA Ethics CE Credits: (Registration Required)
- $20 for NAHAC members
- $80 for non-members
The 2023 Ken Schueler Cancer Seminar will focus on the evolving diagnostic and treatment landscape in lung cancer. Impactful efforts to improve clinical care outcomes and the care experience within a dynamic healthcare environment will be discussed.
According to the American Cancer Society, lung cancer (both small cell and non-small cell) is the second most common cancer, not including skin cancer.
Lung cancer is by far the leading cause of cancer death, making up almost 25% of all cancer deaths. Each year, more people die of lung cancer than of colon, breast, and prostate cancers combined.
On a positive note, the number of new lung cancer cases continues to decrease due to a reduction in the number of smokers. Also, there are fewer deaths from lung cancer as a result of advances in early detection and treatment.
Our speakers for NAHAC's 2023 Ken Schueler Seminar are distinguished oncology focused professionals with expertise in prevention, diagnosis, treatment, advocacy, managing symptoms and end of life care.
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Please note, this webinar has been approved for 2.5 BCPA Ethics CE Credits by the Patient Advocate Certification Board and will be 2 hours and 45 minutes in duration.
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XCenters Will Launch in 2023 – With Transgender Friendly Care XCenter |
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In 2023, HealthAdvocateX will be launching a new initiative called ‘X-Centers.’ The concept behind these centers is to provide credible, understandable and actionable information on a variety of topics through the lens of health advocacy. We want to highlight X-Centers as a Center for Excellence, where ‘X’ stands for every individual’s experience, a reference to the superscript X in our name, HealthAdvocateX.
We are excited to be partnering with Malynnda A. Johnson, PhD, Associate Professor and Director of Graduate Studies for the Department of Communication at Indiana State University, who is conducting research and developing training materials to improve trans friendly care with medical providers and patient advocates. Her goal is to incorporate actual experiences from the Trans population as well those who may have been or are advocates for patients.
For Advocates
We will be launching this X-Center with a 4-part Live (and On-Demand) training module that will also be available for BCPA continuing education. If you are an advocate interested in learning more or if you are interested in being listed as a trans friendly advocate resource, please contact us at info@HealthAdvocateX.org.
For Transgender Patients/Family Members
If you would be willing to be interviewed as part of the project or would be interested in learning more about transgender advocacy please let us know. She can be reached via email at Malynnda.Johnson@indstate.edu
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This on demand course covers recorded sessions from the ICOPA Conference (April 28-30, 2022). The whole conference is available as a bundle, and there is no option for individual session purchases. For ICOPA attendees who have already paid a registration fee, we are offering special pricing.
Board Certified Patient Advocates (BCPA):
These sessions are available for BCPA CEs (9.5 CEs). Your purchase includes access to the event recordings that originally took place on April 28-30, 2022. It also includes materials related to the presentation (slides, Q&A, etc.).
In order to receive your BCPA 9.5 CE credits (with two counting as ethics CEs) as per PACB requirements, you must complete a post-assessment for each session. Instructions for how to access the recording and assessment will be provided via email after completing registration. Certificates will be delivered via email upon purchase. Completed and signed certificates must be sent to the Patient Advocate Certification Board in order to obtain credit.
Click the button below for more information on the individual sessions as well as the objectives and CE instructions
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Are you looking for a way to extend your opportunities to educate the public about health and patient advocacy? HealthAdvocateX licenses two presentations and offers a ‘Train the Trainer’ package for these two topics:
- The ABCs of an Effective Doctor Visit
- Taming the Medicine Cabinet
Each Train the Trainer Package includes:
- PowerPoint presentation and script for the topic represented, which will include an introductory slide for the presenter approved to give the presentation
- Electronic copies of materials including:
- Handouts of Scenarios/Role-Plays
- Self-Learning Quiz (where applicable)
- Feedback From
- Flyer Template
- Presentation Description
To license the presentations and register for the training:
- Pay for the Presentation Train the Trainer (we will invoice you as soon as we receive your signed license agreement(s)).
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Many advocates have been contacting us as you are trying to finish up earning your CEs for the year. We have more than 20 CEs currently available with bundled pricing available for two conferences:
- Health Advocacy Now: Lessons From the Pandemic 2021 Conference (11 CEs Available)
- Whole Person Advocacy: Integrating Mental Health 2020 Conference (10 CEs Available)
- Health Literacy: The New Vital Sign (1 CE Available)
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April 13: Case Review - An Aging Icon That Was Also a Vulnerable Senior
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Although HealthAdvocateX speakers can give presentation on many topics, here are a few of our popular presentations:
- Advance Care Planning (In partnership with Honoring Choices)
- Taming Your Medicine Cabinet
- The ABCs of an Effective Doctor Visit
- Patient Know More...Patient No More!
- The Emerging Field of Health Advocacy
- Safe & Sound in the Hospital: A Short Course in Patient Safety
- Volunteer Health Advocate Training: Understanding the Role & Skills to Be Effective
Have a topic you wish we offered? Let us know - let's talk!
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Inclusion, Diversity, Equity and Access (IDEA) Statement |
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OUR COMMITMENT
Approved by the Board September 21, 2022
Inclusion, Diversity, Equity and Access (IDEA) Statement
Our mission is to help people transform into active participants and partners in their own health care. To make this possible, we must advocate for inclusion, diversity, equity, and access (IDEA) for all individuals.
We recognize that:
- Racism is a public health issue that impacts various intersections and communities differently.
- Each person is unique and therefore experiences health care differently.
- Every individual deserves health advocacy regardless of their race, ethnicity, language, nationality, gender, sexual orientation, gender identity and expression, spiritual practice, financial status, education, geography, disability, mental and physical status, age, weight, substance use disorder or other factors.
- Our organization is uniquely positioned to raise awareness on IDEA in health and health care.
We are committed to:
- Raising awareness about the importance of IDEA in health and health advocacy in all aspects of care.
- Expanding diverse representation within our organization, expert presenters, and educational offerings.
- Intentionally messaging our values, sharing IDEA expectations for ourselves, affiliated advocates, and partnering groups.
- Creating space for respectful dialogue about representation, equitable access, and inclusive practices in health care and health advocacy.
- Educating our community and participating in opportunities about IDEA events and exercises to keep these issues in the forefront of our work.
- Implementing systems to ensure IDEA is pervasive in our organization.
We will reflect on our accomplishments with humility and grace. We will recognize our limitations and remain open to what we may not see or realize so that we can improve and or repair any harm.
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HealthAdvocateX is headquartered in Seattle, Washington. We acknowledge that we are on the traditional land of the first people of Seattle, the Duwamish People past and present, and honor with gratitude the land itself and the Duwamish Tribe. We invite you to join us in acknowledging and thanking indigenous people for their ongoing stewardship wherever you are located.
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Land Acknowledgement Challenge
Will you help us? We invite YOU to research and submit the name of the people, your location and how you would word your own personal land acknowledgement. Our Board will be selecting and reading land acknowledgements from across the country at our Monthly Board Meetings. You can submit it here: https://www.surveymonkey.com/r/hadvx-land-acknowledgement
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Do you have something you would like to share with the HealthAdvocateX community?
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