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Dear Ashley,

As summer begins, we hope you are enjoying warmer weather and the longer days. Congratulations too to all the recent graduates and newly-weds; June is often a time of celebratory beginnings!

We're also at the beginning of the artificial intelligence revolution. It's already embedded in many parts of our lives, but it is clear that it will change the way we live and work more than the internet, more than the mobile phone, to name two that have happened during many of our lifetimes.

None of us can predict how AI will benefit heath and healthcare.  The risks and rewards will unfold quickly. One potential upside is that AI and advances in data science may reduce inequities in healthcare. Please join us for our June community conversation to learn more; we'll discuss how medical professionals, patients, and advocates may be able to use AI to reduce bias and improve outcomes for all. 

Here's to your good health,

Robin Shapiro and the Team at HealthAdvocateX

Welcome New Staff Member!

We welcome Chloe DeChant, New Operations Manager for HealthAdvocateX who will be responsible for the day-to-day operations and member communications, taking over for Ashley Carlson who has held this job for seven years. Here are a few things to know about Chloe:

Before joining our team, Chloe gained experience in operations while working at a technology innovation laboratory. Her interest in the healthcare industry has driven her career transition, and she is enthusiastic about contributing to the field of healthcare advocacy with her expertise and passion. Chloe is originally from Washington and has recently returned to Seattle after spending a few years on the East Coast. In her free time, she enjoys hiking and being outdoors in nature. We're thrilled to have her on our team!

We are grateful to Ashley for her work in this role and continued involvement in HealthAdvocateX special projects. 

Upcoming Events

Angst - Event Cancellation Notice

Due to low registration numbers, we’ve decided to postpone our movie screening event - Angst - that was scheduled for June 3rd. Please stay tuned for more details to follow. We apologize for any inconvenience this may cause and appreciate your understanding.

Community Conversation - June 10, 2024

Addressing Health Disparities With AI And Data Science

When: June 10, 2024 | 11am – 12pm (PT)

Where: Online via Zoom (Register Here)

Cost: FREE! Also available for 1.0 BCPA CE

Join HealthAdvocateX for a discussion of artificial intelligence (AI)/machine learning (ML) in healthcare. First, we will discuss the nuances of Bias and Fairness in AI/ML Healthcare Applications, exploring how these technologies impact healthcare outcomes. Then, we will learn how to assess AI-Driven Decision Support Systems within diverse clinical settings, ensuring equitable implementation. Finally, we will discuss the significance of Integrating Social Determinants of Health (SDOH) into ML Models, and how this enhances the accuracy and relevance of healthcare interventions. This session promises insights crucial for leveraging AI and data science to tackle health disparities effectively. 


1. Understanding Bias and Fairness in AI/ML Healthcare Applications

2. Evaluating AI-Driven Decision Support Systems in Diverse Clinical Settings

3. Integrating Social Determinants of Health (SDOH) in Machine Learning Models

CE will be ethics and general knowledge

This Community Conversation is FREE to attend. It is also available for 1.0 BCPA CE for $15. 

About the Speaker -

Dr. Luo is Chief AI Officer at Clinical and Translational Sciences Institute (NUCATS) and Institute for Augmented Intelligence in Medicine, and Associate Professor at Department of Preventive Medicine, at Feinberg School of Medicine in Northwestern University. Globally recognized for his leadership and significant contributions to biomedical AI, Dr. Luo has earned the prestigious titles including Fellow of the International Academy of Health Sciences Informatics (IAHSI), Fellow of the American College of Medical Informatics (ACMI) and Fellow of the American Medical Informatics Association (AMIA).

A visionary leader in the field, Dr. Luo is at the forefront of building next-generation informatics and collaborative AI within the healthcare enterprise. His exemplary leadership shapes strategies across various levels, ranging from university settings to entire health systems to national research consortia. With a commitment to democratizing AI literacy, Dr. Luo has been featured in eminent venues such as The Economist, JAMA Network and Becker's Hospital Review to share unique visions on delivering data and AI strategies that power Research & Development and drive business value.

As a pioneer in the development of multi-modal AI and data science frameworks, Dr. Luo's work focuses on understanding complex diseases and informing targeted therapies. His groundbreaking research has been featured in leading journals, including JAMA, Nature Medicine, and Nature Biotechnology. Dr. Luo has given numerous keynotes to both academia and industry and has chaired multiple conferences and workshops. With a publication record of over 170 peer-reviewed papers, Dr. Luo's work has been cited by scientists across more than 30 different countries and 25 research areas.

Dr. Luo's innovative approach has led to the development of a seminal suite of AI methods based on graph and tensor theory, large language models and reinforcement learning. These methods have been applied in diverse settings, including clinical narratives, disease gene pathways, medical imaging, and predictive modeling with structured clinical data. As a passionate proponent of a paradigm shift from reactive to proactive AI/ML, Dr. Luo's vision extends to leveraging the new paradigm to automate AI/ML continuous improvement and drive the bench-to-bedside feedback loop. This vision guides the evolution of collaborative AI/ML solutions in complex territories such as drug discovery and highly dynamic situations such as pandemic, positioning Dr. Luo as a leading figure in the field.

Register Here

Last Chance to Add Your Voice on the Professional Designation of Health Care Advocate

Help us recognize Health Care Advocate as an official profession designation in the United States’ primary catalogue of occupation O*NET.

To complete the survey, you must:

  • Have one or more years of professional experience practicing this occupation.
  • Have a minimum of five years combined experience practicing, training, teaching, and/or supervising others who perform the occupation.
  • Be currently working in the field in the U.S.

How can YOU take the survey? Contact the O*NET directly via Jumoke Dickson (jdickson@onet.rti.org).

Provide the following within the email:

  • Full Name
  • Mailing Address with City and State
  • Daytime Phone Number
  • Email Address
  • Company Name and Title

The deadline for contacting Jumoke Dickson at O*NET is June 5.

Other Events You May Be Interested In

Healthcare Advocate Summit - September 2024

Join us at the coveted event for advocates by advocates, September 3-6, 2024 in Las Vegas. This Summit is the premier event for any stakeholder involved in patient access, navigation, reimbursement, and medication. Advocates and key Industry Leaders are invited from across the country to take part in this urgent discussion on improving access to care.

Register Here: https://www.healthcareadvocatesummit.com/register

TRANSGENDER XCENTER - On-Demand 5 Part Series with 5 J.E.D.I. / Ethics CEs Available

Last year we launched a five-part educational series on Transgender Advocacy that is now available for viewing and is also approved for Justice Equity Diversity and Inclusion (J.E.D.I.)/Ethics continuing education for Board Certified Patient Advocates.  The concept behind these centers is to provide credible, understandable and actionable information on a variety of topics through the lens of health advocacy. Our first topic: Transgender Advocacy 101.

A Special Thank You

A very special thank you to Dr. Malynnda Johnson and our esteemed panelists, Kim Mcilnay, Quin Buhs, Molly Crowther, and Nancy Keller, who provided profound insights on Transgender care.

XCenter Completion Badge

Professional CE participants of the event had the opportunity to receive an exclusive badge, which can be displayed on your profile, website, or professional platforms, signifying your completion of the XCenter Transgender Advocacy 101 event.

It's Not Too Late

Missed the event? Don't worry! You can now purchase the content of these modules and on-demand discussions. We believe in equal access for all; if purchasing causes financial hardship, non-CE tickets are available. Reach out to info@healthadvocatex.org for assistance.

Go to XCenter On-Demand

HealthAdvocateX Calendar

June 10: Community Conversation - Addressing Health Disparities with AI and Data Science (Register Here)

July 8: Community Conversation

August 12: Community Conversation

September 9: Community Conversation

September 19: Case Review

October 14: Community Conversation

November 11: Community Conversation

December 5: Case Review

December 9: Community Conversation

Inclusion, Diversity, Equity and Access (IDEA) Statement

Approved by the Board September 21, 2022
Inclusion, Diversity, Equity and Access (IDEA) Statement

Our mission is to help people transform into active participants and partners in their own health care. To make this possible, we must advocate for inclusion, diversity, equity, and access (IDEA) for all individuals.
We recognize that:
  • Racism is a public health issue that impacts various intersections and communities differently.
  • Each person is unique and therefore experiences health care differently.
  • Every individual deserves health advocacy regardless of their race, ethnicity, language, nationality, gender, sexual orientation, gender identity and expression, spiritual practice, financial status, education, geography, disability, mental and physical status, age, weight, substance use disorder or other factors. 
  • Our organization is uniquely positioned to raise awareness on IDEA in health and health care.
We are committed to:
  • Raising awareness about the importance of IDEA in health and health advocacy in all aspects of care.
  • Expanding diverse representation within our organization, expert presenters, and educational offerings.
  • Intentionally messaging our values, sharing IDEA expectations for ourselves, affiliated advocates, and partnering groups.
  • Creating space for respectful dialogue about representation, equitable access, and inclusive practices in health care and health advocacy.
  • Educating our community and participating in opportunities about IDEA events and exercises to keep these issues in the forefront of our work.
  • Implementing systems to ensure IDEA is pervasive in our organization.
We will reflect on our accomplishments with humility and grace. We will recognize our limitations and remain open to what we may not see or realize so that we can improve and or repair any harm. 

Land Acknowledgement

HealthAdvocateX is headquartered in Seattle, Washington. We acknowledge that we are on the traditional land of the first people of Seattle, the Duwamish People past and present, and honor with gratitude the land itself and the Duwamish Tribe. We invite you to join us in acknowledging and thanking indigenous people for their ongoing stewardship wherever you are located.
Land Acknowledgement Challenge

Will you help us? We invite YOU to research and submit the name of the people, your location and how you would word your own personal land acknowledgement. Our Board will be selecting and reading land acknowledgements from across the country at our Monthly Board Meetings. You can submit it here: https://www.surveymonkey.com/r/hadvx-land-acknowledgement

Do you have something you would like to share with the HealthAdvocateX community?

Please submit ideas to info@HealthAdvocateX.org
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