Dear Cure JM,


The Cure JM Foundation has always treasured the special role that grandparents play in their families and Cure JM. We hope you enjoy this collection of news specifically for you, our grandparents. 


Best regards,



The Cure JM Grandparent Council

A Council of Grandparents, For Grandparents

3:00 p.m.  Eastern

2:00 p.m.  Central

1:00 p.m.  Mountain

12:00 p.m. Pacific


The Grandparent Council meets on the 4th Thursday of every month.

Grandparent Council Call

Thursday, June 27th, 2024


We invite you to join our next Grandparent Council meeting on Thursday, June 27th, 2024. 


Connect with other grandparents and learn how to provide support to families along their JM journeys.

Register Now

On-going Grandparent Resources


Each month we will share a list of the available resources for Grandparents.


Link to Grandparent Facebook Group:

https://www.facebook.com/groups/curejmgrandparents


Link to Grandparent Resource Section of the Website:

https://www.curejm.org/resources/jsf/epro-posts/tax/category:42/

What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar? 


That “reset” exists today and is approved for use of certain blood cancers. A next frontier is to target rheumatic autoimmune diseases such as myositis and lupus, and early clinical trial results are very, very encouraging.



The most notable results have come from Germany, where 15 patients, including three myositis patients as young as 20, completed the trial. All of the patients saw remarkable and lasting improvement—some of up to three years of being “disease-free.”

Read More

We would like to introduce a one-of-a-kind, competitive, and determined young man named Parrish. His story of resiliency and hope is one that will resonate with many of us in the Cure JM community. 


Parrish has faced many challenges in his journey with JM but found hope and support in his family and the Cure JM community. We are pleased to share his experience to help others facing similar challenges.

Read Story

Looking for something fun to do to end the summer? Grab your grandkids and host a lemonade stand!


Twenty years ago, Cure JM co-founders Tom and Shari Hume set up the Foundation’s first-ever DIY fundraiser to seed important new research funding. What was the fundraiser of choice? Considering the couple had young children, a lemonade stand was the perfect fit to launch a rare disease nonprofit during humble beginnings.


Fast forward 21 years and over $23 million invested in juvenile myositis research later, we have come full circle, paying homage to our early DIY roots. You guessed it! In 2024, we are bringing the lemonade stand back!


We’re inviting our grandparents to join us between now and August 15th to make and impact and sweet summer memories with your own lemonade stand. This is a great opportunity for anyone in the family to join the fight in a fun way before heading back to school.


Click the button below to read the full story and join us in hosting your own lemonade stand.

Learn More

With summer underway, we'd like to share an "Ask the Doc" Town Hallon Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children's Hospital, share the importance of sun protection for JM patients.


Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know


What role does sun protection play in managing JM? Will my child be able to enjoy outdoor activities this summer with active disease? What sun protection items offer the best results?


Click below to watch the full session and Q&A.

Watch Now

Make a difference in the fight against juvenile myositis by participating in research studies to better understand, treat, and support JM patients.


There are opportunities for JM patients, caretakers, siblings, and healthy friends and family members to impact our progress toward a cure.


Learn more information on specific studies, surveys, and projects that provide a platform for shaping better understanding and improved outcomes.

Learn More

Hundreds in our community are joining forces to walk for a brighter future! 


You can join the fight by striding with us in your region or from home!

 

Walk Strong events feature food, fun, and friendship as we celebrate the power of community and walk for progress. 


We are halfway through the 2024 Walk Strong season and are at 61% of our goal of $500,000! We'd like to thank all of our families and communities who have walked with us this year. Your steps propel our progress!


Upcoming walks:  RSVP below to join a walk in your region!


  • Metro D.C. Sunday, September 22nd
  • Nor Cal - Saturday, September 28th
  • Boston, MA - Sunday, October 6th
  • Houston, TX - Sunday, October 6th
  • Austin, TX - Saturday, October, 12th
  • Nashville, TN - Saturday, October 19th
  • Tampa, FL - Saturday, October 26th
  • Raleigh-Durham - Saturday, November 2nd


Don’t see your town listed? Contact Nicole.Ryba@curejm.org to learn more about walking from home or starting a walk.

RSVP Here

“There is nothing more wonderful than the love and guidance a grandparent can give his or her grandchild.”   — Edward Fays, The Grandparents Treasure Chest.