The Pediatric Guidelines Update project is an important undertaking in making sure that all physicians have the most current treatment protocols for CVS in children. We are excited to share that thanks to a few generous donors in December, we raised $15,000 designated to go towards this project. The Pediatric Guidelines committee has been working diligently and hopes to have the updated document completed by the end of 2021.
March 5th is CVS International Awareness Day (IAD)
Thank you to everyone who participated in CVSA's December Virtual Expert Presentation! Our presenter was Dr. Sally Tarbell and she talked to us about Psychology and CVS and how the brain-gut connection can have a profound effect.

You can watch the presentation in its entirety on CVSA's YouTube channel.
Wondering about disability for CVS?
In January, we will hear from Attorney Dave Hudec. Attorney Dave Hudec graduated from Marquette University with a Bachelor of Science – Nursing in 1980 and from Marquette University in 1987. He combines his experience from working in surgery as a nurse with his legal experience to persuade the Social Security Disability Administration to grant benefits to those in need. Dave is a sustaining member of the National Organization of Social Security Representatives, Wisconsin Bar Association and the Wisconsin Lawyers Assistance Program. Dave has worked with CVS patients and understands the struggles that those affected by CVS face.

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Bend for the Bucket

Moved to February 27th, 2021

Davie, FL

Do you live in South Florida? Or know someone who does? Consider this yoga class fundraiser to support CVSA as well as raise CVS awareness!! Can't attend? You can donate on the event page!

Want to help raise CVS awareness? Order soon to have it in time for International Awareness Day on March 5th!
Check out all the options at the CVSA store!

Join CVSA on Monday, January 11th at 6PM PST, for the monthly support call on our new Zoom platform! Have questions? Newly diagnosed? The support call is the place to get your answers.
Thank you to all that set up fundraisers on Facebook with Facebook Donations!

Please note that due to Facebook's algorithms and privacy restrictions, CVSA is unable to determine the dates that fundraisers take place.
If your CVSA fundraiser raised more than $200 please send a screenshot to the CVSA office to receive your complimentary 1 year membership, please email
Any fundraiser for CVSA, that raises at least $200, will receive a complimentary 1 year membership. Check out our fundraising page for ideas.