A Personal Note
May 8th is World Ovarian Cancer Day and, this year, this day holds a special significance for me. Three weeks ago I was diagnosed with what looked like an aggressive form of ovarian cancer and surgery almost two weeks ago confirmed it. Ovarian cancer is one of the most lethal cancers, as there aren't any reliable diagnostics and it is usually not discovered until it is too late, having metastasized throughout the body. But I am one of the lucky ones. A full hysterectomy salpingo-oophorectomy with surrounding lymph nodes, appendix and other tissues showed that the cancer was contained within the ovaries. Chemo will be started in a few weeks. I am getting stronger every day and yesterday my husband and I went for a very slow one-mile walk :)
I am lucky because, due to my health history and some genetic SNPs putting me in a higher risk category, I get regular sonograms. My emergency room visit last May also put this potential issue on the map and I've been regularly screened ever since. A sonogram in February indicated that my right ovary was slightly enlarged from the last sonogram in August. Results from additional testing in March and throughout April showed the critical nature of the situation. I am lucky because I keep on top of my health, advocating for myself, and I also have a fantastic doctor that ordered blood work and an MRI immediately to rule out ovarian cancer. Any my gynecological oncologist wasted no time either, with surgery taking place only 10 days after my first appointment with her.
The diagnosis came as a surprise because I take very good care of myself and I take many necessary steps to manage my autoimmune conditions and lower my cancer risk. I am well prepared for this new endeavor as I have been training as an advocate with Dr. Nasha Winters for the past several years in the metabolic and terrain approach to dealing with cancer and I have one of her trained doctors on my team. Now the work begins to dive in deeper to explore my cancer's drivers and how I am going to continue to reduce my risks moving forward to kick this and any other potential cancer's ass and live a long, healthy life :)
Ovarian cancer is one of the leading causes of cancer deaths among women. The American Cancer Society estimates for ovarian cancer in the United States for 2024 are:
- About 19,680 women will receive a new diagnosis of ovarian cancer.
- About 12,740 women will die from ovarian cancer.
Symptoms are non-descript and can mimic other issues - digestive issues, bloating, bowel and/or urinary habit changes. These symptoms usually arise in the later stages of the cancer and early stages, when it is more treatable, are usually asymptomatic or subtle symptoms get missed.
Even though this is a rare cancer, the odds of survival are not great due to the late stage when finally diagnosed. I am sharing my story in the hopes that all of you women who read my newsletter and the men who have women in their lives will be aware of this cancer and take the necessary steps to understand your own potential risks, if any. It is worth the effort!
Ladies - speak with your gynecologist to understand your risk and see if you can get pelvic sonograms annually, if you aren't already. If you do not have a gynecologist, get one!
To learn more and understand the risk factors, visit National Ovarian Cancer Coalition or Ovarian Cancer Research Alliance.
|