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E-Newsletter

May 2024

Hello TESS Friends! 👋



SLC13A5 Epilepsy International Awareness Day is today, May 13th! 💜


This annual virtual event aims to raise awareness for the global community affected by SLC13A5 Epilepsy. We invite all affected families, researchers, health professionals, industry members, sponsors, and friends to join us in spreading awareness about this devastating disorder.


TESS Research Foundation is the only organization solely dedicated to SLC13A5 Epilepsy. We are determined to improve the lives of those affected by this disorder by funding research and supporting families around the world.


Read below to see how you can raise awareness today and every day.


Warm regards,



Team TESS

1

Learn About SLC13A5 Epilepsy!

We are pleased to introduce A Story of Stella and SLC13A5 by Angela Nie, a future Brown University freshman! Stella loves her family, enjoys learning about space, and also has SLC13A5 Epilepsy.


Read A Story of Stella and learn more about SLC13A5 Epilepsy.

2

Join us on social media!

Share your support for TESS today by posting a photo on social media with your I Love Someone with SLC13A5 Epilepsy sign and tagging @tessresearch. Use the hashtags #SLC13A5Awareness and #TESSResearch.


TESS is on FacebookXInstagram, and LinkedIn.

3

Get your TESS Swag and raise funds for TESS!

There's nothing better than looking cute AND supporting a good cause! Order a cute crop, comfy sweatshirt, or some basic must-have TESS tees, and a portion of your purchase amount comes back to TESS. Every item you buy contributes to our research efforts!



Buy merch here.

4

Watch and Share Our Latest Video!

Our TESS Superheroes work hard every day to be as independent as possible. Their unwavering perseverance and positive attitudes as they try to do what they set their minds to is truly inspiring.


Watch and share our latest video that features our superheroes' smiling faces, the challenging obstacles they endure, and how hard they fight.


Thank you to Maggie, TESS Superhero's Tessa and Colton's sister, for singing the song featured in the video.

5

Share One Fact About SLC13A5 Epilepsy!

Spreading awareness about SLC13A5 Epilepsy is one of the most helpful things you can do! Share one fact about SLC13A5 Epilepsy with someone you don't know at the grocery store, post office, gym, or anywhere and everywhere you go!


Learn some facts about SLC13A5 Epilepsy on our Understanding SLC13A5 webpage.

DONATE

Help support TESS research, outreach and community. Make a donation today.

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OUR MISSION:
Improving the lives of those impacted by SLC13A5 Epilepsy (a Citrate Transporter Disorder) through research and community.


Our mailing address is:
PO Box 53
655 Oak Grove Ave
Menlo Park, CA 94026
TESS Research Foundation is proud to be a GuideStar Platinum Nonprofit.
TESS Research Foundation is a 501(c)(3) tax-exempt public charity.
Tax ID Number 47-3108868

Copyright © 2024 TESS Research Foundation, All rights reserved.