Holiday Cheer is CVSA's annual End of Year Giving Fundraiser. With CVSA being the only non-profit that provides support, education, and resources to CVS patients and families in the U.S., we know that we need to be there for CVS patients. Not only to help CVS patients and families, but to help them find their Hope. 
Help Us Say Thank You
For the last five years, CVSA has had a wonderful Program Director, Debbie Conklyn.
If you have contacted the office in the last 5 years you have engaged with her. Having originally started the “Run for the Bucket” 5K in Milwaukee, Debbie joined the CVSA Board of Directors in 2007. In 2016, Debbie became the Program Director for CVSA. 
Debbie’s involvement has been hugely impactful. She dedicated a great deal of time and was integral to the operation of CVSA. Debbie has decided to pursue a new path in her career.

CVSA wishes her well and wants to say thanks for the years of time she gave to us. 
Help us say thanks in a BIG way: If you have met Debbie at any of the in-person events, seen her on the virtual presentations, if she has helped you in a big way, or you would just like to say 'thank you' let us know!

*Send notes of Thanks, pictures, or meaningful interactions with her to so we can share them with her! 
Help make a difference!
You're participation in the clinical trials for the first ever medication developed to treat CVS can impact the future of CVS treatment.
If you would like to participate in this study, please check the clinical trials website
periodically, as additional clinical trial sites will be added as they are ready to start enrolling patients.

*Please note: All requests for more information or questions regarding the trials need to be directed to the trial website listed above.
Thank You from CVSA
Thank you for helping us raise $3900, almost doubling our goal of $2000 to support ongoing
programs like:

  • Sending information packets to newly diagnosed patients
  • Exhibiting at conferences to bring awareness, share information, and provide education about CVS to medical professionals in various fields
  • Helping fund the updating of the pediatric clinical treatment guidelines
  • And more!

Thank you for all of your support and participation in #GivingTuesday!
Join CVSA and...

  • Enjoy discounts on in-person events, such as the CVSA conference
  • Be the 1st to know about clinical trials and other research being done
  • Register for Virtual Expert Presentations 1st
  • Receive the printed Code V newsletter sent to members 3 times/year
  • Pay it forward to allow the office to help those at the beginning of their CVS journey
Help raise CVS awareness with a new Sweatshirt!
Check out all the options at the CVSA store!
Join CVSA on Monday, December 13th, at 6 PM PST, for the monthly support call on our new Zoom platform! Have questions?
Newly diagnosed?
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The support call is the place to be.
Thank you to all of whom have set up fundraisers on Facebook with Facebook Donations!

Please note that due to Facebook's algorithms and privacy restrictions, CVSA is unable to determine the dates that fundraisers take place.
If your CVSA fundraiser raised $200 or more, please send a screenshot to the CVSA office to receive your complimentary 1 year membership, please email

Check out our fundraising page for ideas.