I always LOVE the beginning of things and maybe that is why welcoming the New Year always holds so much promise in my mind…
For HealthAdvocateX, there are several new people joining our organization and after 12 years, we are excited to welcome a New Executive Committee:
Alicia Shankland, Chair
Chris Price, MD, Vice Chair
Ivy Sun, Treasurer
Please join me in welcoming these leaders, our New Board Members and our outstanding long-time Board Members.
We look forward to continuing to serve you, by providing outstanding programming, events and opportunities to connect you to health advocacy resources.
On behalf of all of us, I am wishing you a year of good health, joy and abundance!
|
With gratitude,
Robin Shapiro and the Team at HealthAdvocateX
| |
Please consider donating to help us inspire and educate people as they navigate through difficult health care challenges in 2024 and beyond.
HealthAdvocateX is a national, non-profit organization committed to helping people transform into active participants in their health care.
We believe that health advocacy can dramatically change your care by helping you understand your choices -- and elevate the power of your health experience. Your donation will help us continue to provide up-to-date, credible, actionable health advocacy information.
HealthAdvocateX is a registered 501(c)(3). Donations are eligible for any company matching programs.
| |
Please Welcome Our New 2024 Board Members | |
|
Scott Beeber
For more than 20 years Scott has followed a path to a career in health and wellness. Scott embarked on a successful consulting career with Watson Wyatt, Aon and finally Alight Solutions focused on Health, Talent and Retirement solutions. After one of his most successful years in consulting Scott left for 2nd.MD, a mission driven organization that had an innovative approach to expert medical opinion. Scott’s favorite part of working for 2nd.MD was coming home to hear his kids ask “Dad, did you save a life today.” It became readily apparent that mission was what really drives Scott to do what he does every day, make a difference in the lives of others.
| |
|
Angela (“Angie”) Ingraham, MD, MS
Angela (“Angie”) Ingraham, MD, MS, completed medical school at Loyola University Chicago Stritch School of Medicine and general surgery residency at the University of Cincinnati. During residency, she completed the American College of Surgeons (ACS) Clinical Scholar in Residence Program where she supported the growth and development of the ACS National Surgical Quality Improvement Program, developed her research interests, and earned her Master of Science in Clinical Investigation from Northwestern University. She completed her fellowship in Acute Care Surgery (trauma, emergency general surgery, and critical care) at the University of Pittsburgh. Following fellowship, Dr. Ingraham joined the faculty of the University of Wisconsin-Madison and established a health services research program funded by the Agency for Healthcare Research and Quality and the National Institute on Aging. While Angie has always been a dedicated advocate for her patients, her interest in health and patient advocacy intensified after serving as an advocate for her father, who passed from brain cancer in 2021.
| |
|
Malynnda Johnson, PhD, BCPA
Malynnda Johnson is an Associate Professor of Health Communication, Indiana State University, where she studies representations of health in the media, difficult conversations, and advocacy for “difficult” patients. Committed to doing DEI work Malynnda actively develops education programs to enhance how faculty and medical providers communicate with underserved populations, such as transgender populations and neurodiverse adults. Additionally, she serves as a patient advocate for the LGBTQIA+ population and provides identity affirming communication training to medical providers and staff. Finally, she teaches undergraduate and graduate courses in the areas of health communication, cultural communication, interpersonal communication, interviewing, and persuasion.
| |
|
Deidra A. Kindred RN, BSN, LNC, CCM, BCPA
Deidra Kindred, a Texas Woman’s University nursing graduate of 2001, brings over 15 years of expertise in Cardiovascular Intensive Care and a rich background as a former Affordable Assisted Living & Services owner, 5+ years in home health nursing, 3+ years in home care infusion nursing, and 3 years as a Certified Legal Nurse Consultant. Today, she proudly owns and leads Your Health Care Nurse Advocates, PLLC. Deidra's inspiring journey is marked by her dedication to educating individuals and families, empowering them to make informed choices. Beyond her professional accomplishments, she is a passionate foodie and avid traveler who cherishes moments with loved ones.
| |
|
Sarah Jane Yang, MS, RN
Sarah Jane is a Care Advocate and Master’s level registered nurse with experience managing complex medical cases and navigating in-hospital services who also specializes in financial patient advocacy. Her experience as a hospital administrator provides a solid foundation navigating the “behind the scenes” complexities of the entire healthcare system. She earned a Bachelor’s in Science (BS) from Seattle Pacific University and a Master’s degree (MS) in Biology from Central Connecticut State University. Through her career she has earned additional certifications and honors including: the Mary McClinton Patient Safety Award in 2018, Stroke Certified Registered Nurse (SCRN®), and the Critical Care RN Certification (CCRN®).
| |
Farewell to Five Retiring Board Members:
Bonnie Bizzell, Cristian Liu, Syreeta Nolan,
Dale Reisner & Kristen Tollini
| 2023 has been a pivotal year for HealthAdvocateX and as we look back to the people who have helped us scale our organization, we are so grateful to long-time Board Members who are retiring off our Board this year! Please join us in thanking: | |
|
Bonnie Bizzell, MBA, MEd
Bonnie’s contributions have spanned a great deal of work, including her role as Treasurer and on the Executive Committee. She also was the lead for our DEI/IDEA task force where her contributions help us look at issues beyond the narrow focus of the health advocacy community. She took an active role in supporting our annual meetings, using her personal network to help us make connections and participate in end of life work. As treasurer, she helped identify and grow this role to include outside resources to help us scale and maintain compliance.
| |
|
Cristian Liu, MBA
We have appreciated Cristian’s business and analytical point of view to help us sharpen our focus on priorities and think about our challenges in new ways. Grateful to Cristian to bring this point of view and through ongoing support externally and through personal resources.
| |
|
Syreeta Nolan
Syreeta has provided our Board and community with insights into the disability community. We have appreciated her participation on DEI/IDEA and other initiatives throughout her last two years, including her input on technology, access and content.
| |
|
Dale Reisner, MD
Dale has applied her competence, compassion and deep insight into what health advocacy means to many aspects of our work throughout the years. She has been in a leader on many fronts professionally. Her ability to translate what is relevant to a general audience helped elevate our organization through Community Conversations, her contributions on the DEI/IDEA task force have helped shape our ongoing focus on diverse audiences and we have appreciated her asking tough (but always good) questions about the direction we are headed and priorities. Thank you for your generous sharing of time, passion, treasure!
| |
|
Kristen Tollini, MA, LMHC
A huge contributor to shaping the content delivery, especially in the ‘mid years’ of our organization by using her personal network and her daily work in advocacy, she was able to source and shape our annual meeting sessions, webinars and other events. She was able to connect us to impactful, compassionate and well recognized leaders in their fields, especially in some of the areas around wellness, mental health, mindfulness and pain. We also greatly benefitted from her role as Secretary and contributions on the Exec that helped shape our Board Meetings and business.
| |
Case Review - January 2023 | |
When Patient Advocacy & Education Collide
When: January 18, 2024 | 5pm – 6:30pm (PT)
Where: Online via Zoom
Cost: FREE! | Available for 1.0 BCPA CE
Talking Points:
- Collaboration is a required function for health advocates.
- Healthcare, especially in pediatrics, touches every part of the patient’s life.
- The ability to educate other team members on the patient’s condition is crucial to the success of any health + education advocacy team.
| |
The HealthAdvocateX Board has approved this activity with the following caveats:
-
Only HealthAdvocateX Professional Members in good standing will be invited to participate.
- Meeting participants will sign a confidentiality acknowledgement in keeping with professional standards at sign in as a requirement to participate
-
Cases will all be presented in a similar format and will be submitted to HealthAdvocateX at least one week in advance of the meeting for consideration
- The Advocate presenting the Case will do everything to de-identify the person featured in the case review
- No case information may be shared outside the case review meeting
- The meetings will be a free, one-hour meeting as a benefit of professional membership
| |
92% of patients agreed that their care was positively impacted by working with an advocate, and 98% of providers acknowledged the positive impact of advocates on patient care.
The data presented here is derived from a detailed survey conducted by the Coalition of Healthcare Advocacy Organizations (CHCAO) between late 2022 and early 2023. This study, involving over 500 healthcare professionals, advocates, patients, and caregivers, was conducted without any honoraria for participation, ensuring unbiased insights. It sheds light on the essential role of patient and health care advocacy in health care.
Discover more in CHCAO's Special Report at https://chcao.org/special-report/
| |
Successful First XCenter Event | |
Earlier this year, we hosted the inaugural event of our newest initiative: ‘XCenters.’ The concept behind these centers is to provide credible, understandable and actionable information on a variety of topics through the lens of health advocacy. Our first topic: Transgender Advocacy 101.
A Special Thank You
A very special thank you to Dr. Malynnda Johnson and our esteemed panelists, Kim Mcilnay, Quin Buhs, Molly Crowther, and Nancy Keller, who provided profound insights on Transgender care.
| |
|
XCenter Completion Badge
Professional CE participants of the event had the opportunity to receive an exclusive badge, which can be displayed on your profile, website, or professional platforms, signifying your completion of the XCenter Transgender Advocacy 101 event.
| | | |
It's Not Too Late
Missed the event? Don't worry! You can now purchase the content of these modules and on-demand discussions. We believe in equal access for all; if purchasing causes financial hardship, non-CE tickets are available. Reach out to info@healthadvocatex.org for assistance.
| |
January 18: Case Review - When Patient Advocacy & Advocacy Collide
February 12: Community Conversation
March 11: Community Conversation
April 8: Community Conversation
May 13: Community Conversation
May 16: Case Review
June 10: Community Conversation
July 8: Community Conversation
August 12: Community Conversation
September 9: Community Conversation
September 19: Case Review
October 14: Community Conversation
November 11: Community Conversation
December 5: Case Review
December 9: Community Conversation
| |
Inclusion, Diversity, Equity and Access (IDEA) Statement | |
OUR COMMITMENT
Approved by the Board September 21, 2022
Inclusion, Diversity, Equity and Access (IDEA) Statement
Our mission is to help people transform into active participants and partners in their own health care. To make this possible, we must advocate for inclusion, diversity, equity, and access (IDEA) for all individuals.
We recognize that:
- Racism is a public health issue that impacts various intersections and communities differently.
- Each person is unique and therefore experiences health care differently.
- Every individual deserves health advocacy regardless of their race, ethnicity, language, nationality, gender, sexual orientation, gender identity and expression, spiritual practice, financial status, education, geography, disability, mental and physical status, age, weight, substance use disorder or other factors.
- Our organization is uniquely positioned to raise awareness on IDEA in health and health care.
We are committed to:
- Raising awareness about the importance of IDEA in health and health advocacy in all aspects of care.
- Expanding diverse representation within our organization, expert presenters, and educational offerings.
- Intentionally messaging our values, sharing IDEA expectations for ourselves, affiliated advocates, and partnering groups.
- Creating space for respectful dialogue about representation, equitable access, and inclusive practices in health care and health advocacy.
- Educating our community and participating in opportunities about IDEA events and exercises to keep these issues in the forefront of our work.
- Implementing systems to ensure IDEA is pervasive in our organization.
We will reflect on our accomplishments with humility and grace. We will recognize our limitations and remain open to what we may not see or realize so that we can improve and or repair any harm.
| |
HealthAdvocateX is headquartered in Seattle, Washington. We acknowledge that we are on the traditional land of the first people of Seattle, the Duwamish People past and present, and honor with gratitude the land itself and the Duwamish Tribe. We invite you to join us in acknowledging and thanking indigenous people for their ongoing stewardship wherever you are located.
| |
Land Acknowledgement Challenge
Will you help us? We invite YOU to research and submit the name of the people, your location and how you would word your own personal land acknowledgement. Our Board will be selecting and reading land acknowledgements from across the country at our Monthly Board Meetings. You can submit it here: https://www.surveymonkey.com/r/hadvx-land-acknowledgement
| |
Do you have something you would like to share with the HealthAdvocateX community?
| | | | |