eNews

June/July 2024

FROM IVORY TOWERS TO EBONY HUBS

A Call for a Comprehensive Vision for Reproductive Justice for All Women


American women seeking healthcare find that we are navigating a challenging path that leads to a cliff. In our current healthcare system, women’s reproductive health is hyper-focused on one specific period – our prime childbearing years. But this narrow interpretation of our womanhood and of reproductive health, which is best defined for me as the condition of a person’s reproductive system during ALL life stages, exposes the inherent breakdown in systems’ response to our unique and evolving needs. A liberated lifetime of health and wellbeing starts in our tender years before menstruation begins and continues in the years during and after menopause. Yet, because society derives value from us for what we can produce and how much we can produce, so called, “modern” medicine and westernized healthcare system design reflects this often-fatal flaw. 

 

The narrow vision of reproductive healthcare we currently experience is evidenced directly by the designation of funding and resources (or lack thereof). Across the board, medical research in women’s health is substantially underfunded, and poignantly, research on the perimenopausal and menopausal stages of a woman’s life is largely under resourced and under discussed, particularly in larger studies about aging. In the limited research that does exist, Black and Hispanic women are further excluded from studies due to selection bias, even though Black women typically reach menopause earlier than white women and have worse symptoms. These inequities in research lead to inequities in diagnoses, care, and treatment options, leaving many women unable to understand the changes happening in their own bodies – and ill equipped to prepare the generations behind us. If we want healthcare that reflects the spectrum of lived experiences, the research that informs our care must be fully inclusive across these oft-overlooked periods of life.


We demand that those institutions that brag about valuing translational science that exist to, “bring more and better treatments to all people quickly,” take a hard look in the mirror. The flaw in the translational science model is that it centers the institution as savior, teeming with people who are trained to extract science from the context of humanity. This presupposed that this amalgam will somehow lead us to quality results in community. This is preposterous and insulting. Translational science must begin with, weave through, and return to us. In my vision, ivory towers crumble and ebony community hubs of ingenuity and life force take their place. Ebony community hubs will see us in our wholeness at every stage and age; respect and integrate ancient wisdom with fresh medicine; and embed cultural humility knowing that we are inviting healing through the hands of people who see themselves as healers and who enter into the most sacred and often scariest times in our lives because of the level of unknown in the journey.

 

We lift up the hard work of women legislators who are behind the beginnings of a larger movement at a national level to increase funding for menopause research and education for caregivers. Separately, the federal government recently called on Congress to make a transformative investment of $12 billion in funding for women’s health research that would address a woman’s full lifespan. Women are at the forefront of these conversations in government and popular culture, with many making the choice to be radically honest and open about their experiences and pushing us all to destigmatize the lived experiences of navigating reproductive health while aging.


Despite the progress, there is always more work to be done. This is my outcry to readers to hold accountable academic institutions, healthcare systems, and those who make their livelihoods off the experimentation and study of the psychological and physical distress of women to live up to their code of ethics and make good on our social contract as a moral imperative.

In service to the will of the Spirit and the mission,



Rev. Bethany Johnson-Javois

President & CEO

Deaconess Foundation


This column was originally published in a recent edition of the St. Louis American.

MISSOURI PRIMARY ELECTION

Missouri's primary election is on August 6th! This election will influence policy at a local, state, and federal level. Now is the time to make sure your voice is heard. See important dates for the primary election below:


  • July 24: Absentee Ballot Request Deadline (Post or Email)
  • July 23 - Aug 5: In-person Absentee Early Voting
  • August 6: Primary Election Day


St. Louis City residents can now vote at Deaconess Center! The Deaconess Center polls will be open from 6 a.m. to 7 p.m.


Additional voting information:


St. Louis City

St. Louis County

St. Charles County

Jefferson County


Check your registration and learn more about the upcoming election at vote411.org.


League of Women Voters is an organization that encourages the informed and active participation in government. Check out their website for your own personalized voters' guide that will provide you with everything you need to vote in the upcoming elections.

INSTITUTE FOR BLACK LIBERATION

Institute for Black Liberation makes space to heal from racism — and celebrate Black joy


Deaconess Foundation's Institute for Black Liberation was featured on St. Louis Public Radio's St. Louis on the Air. Deaconess President & CEO Rev. Bethany Johnson-Javois, Institute Director Rudy Nickens, and Institute participant Patricia Bosman spoke with Elaine Cha about the impact of this healing space for Black individuals and how finding and celebrating Black joy is integral to the power of the program. Listen to the full episode here.

PARTNER SPOTLIGHT

Children's Advocates for Change is dedicated to ensuring every Illinois child has every opportunity to flourish - regardless of race, ethnicity, or zip code. Recently, the organization celebrated a major win for Illinois families with the approval of a new child tax credit by state lawmakers. Our partners at Children's Advocates for Change worked tirelessly to advocate for this legislation that will help approximately 1.4 million children.

Missouri Budget Project works to improve the quality of life for all Missourians through policy initiatives informed by research and analysis of state budget, tax, and economic issues. Their priorities include expanding and strengthening Missouri's Working Families Credit to maximize the impact for families and children across the state, especially for those most in need of economic support.

FROM THE FOUNDATION

Deaconess Foundation Board Meeting

The June Deaconess Board Meeting featured a panel of leaders who discussed health justice in Southern Illinois. Board members heard from healthcare workers and advocates about the current state of healthcare access, environmental injustice, social economics, and more in East St. Louis and how these issues are acutely impacting residents. Participating partners included Children's Advocates for Change, Southern Illinois Healthcare Foundation, and I Am East St. Louis Foundation.

Photo credit: Mena Darre Photography

PARTNERS IN THE NEWS

ArchCity Defenders on FOX 2

Freedom Summer STL: A nod to the past; a path for the future


Sylvester Brown Jr. | St. Louis American | July 11, 2024


“We’re trying to create ways for people to be a part of this democratic project that’s shaping all our lives.”

 Blake Strode, executive director of ArchCity Defenders.


It almost seems unfathomable. A mere 60 years ago – the lifetime of a young grandparent – Black and white Americans were engaged in a bloody and brutal struggle to attain the simple but constitutional right to vote. That time in 1964 was so courageous, so confrontational and so critical, it’s been designated “Freedom Summer.” Read more.

ArchCity Defenders offers guides to help St. Louisans with expungement and housing


Andrea Y. Henderson | STLPR | June 24, 2024


ArchCity Defenders is assisting people this summer in the St. Louis region with expunging their criminal records and housing legal needs.


As part of its Freedom Summer STL series, the civil rights organization released the Expunging Our Criminal Records in Missouri manual and a Guide for Renters Finding and Moving into Housing in Missouri. These thorough guides are empowerment tools that can help people contribute to society and live more fulfilling lives, said Jacki Langum, deputy executive director of ArchCity Defenders. Read more.

PARTNER OPPORTUNITIES & EVENTS

Upcoming Events

July 23: Project LAUNCH Vitality Cafe (Vision for Children at Risk)


July 27: Freedom Summer STL Southside (ArchCity Defenders)


July 30: We The Tenants Monthly Renter's Meeting (Action St. Louis)


August 9: All Roads Lead to Ferguson Unity Walk (Chosen For Change)


August 12: Youth Justice Day of Action (Metropolitan Congregations United)


August 13: Metropolitan Congregations United Monthly Meeting


August 14: Youth Provider Resource Fair (Legal Services of Eastern Missouri)


August 14: Trauma Awareness Training (St. Louis Regional Health Commission)


August 16-18: WEPOWER Weekend (WEPOWER)


August 30: Freedom Summer STL Rally & March (ArchCity Defenders)

Resources & Opportunities

Free Summer Meals

Free meals are available to St. Louis children this summer at libraries and other local organizations. See participating locations here.


Racial Equity Roundtable (Forward Through Ferguson)

Applications for the 2024-2025 Racial Equity Roundtable cohorts have been extended to August 5. The program has helped 200+ leaders build skills for transforming their organizations. Apply here.


United 4 Children Board of Directors

United 4 Children is currently seeking passionate and dedicated individuals to join their Board of Directors and make a significant impact in the community. United 4 Children empowers caregivers to nurture whole-child development through early childhood and afterschool programs. For more information fill out this form.


Anti-Poverty Advocates Summit Breakout Sessions

Empower Missouri is seeking proposals for breakout sessions during their Anti-Poverty Advocates Summit. This event is an opportunity for advocates and coalition members from around the state to gather, learn, and plan how we can pass public policy to end poverty in Missouri. Learn more and apply here.


Black Business Month Expo

Vendor registration is now open for Delmar Main Street's Black Business Month Expo. Learn more and apply here.

Now Hiring


MEDIA THAT HELPS US GROW

The Black Reproductive Justice Leaders in a Post-Dobbs Era | Capital B | June 2024


We, the Nonprofit Institutions: Transformation for Liberation | Stanford Social Innovation Review | May 2024


To improve maternal and child health, include fathers | The Hill | May 2024


ICYMI:

Deaconess Foundation Statement on U.S. Court of Appeals Fearless Fund Decision


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