Our Mission
To find a cure and better treatments for Juvenile Myositis and improve the lives of families affected by JM.

In This Issue:


🎈The Potential of CAR-T in Myositis

🎈Parrish's Story of Hope

🎈Balancing Work & JM Care - Strategies for Working Caregivers

🎈Current Research Opportunities - Get Involved

🎈Sun Protection Tips & Tricks for Summer

🎈2024 Walk Strong National Schedule



For our complete listing of available resources, click here.


To learn more about our current research projects, click here.


To learn more about the Cure JM Foundation and how to join, click here.

What if I told you that there was a therapy that would “reset” the immune system—virtually eliminating the autoimmune response in myositis that causes inflammation, pain, muscle weakness, and other JM conditions of which we are all too familiar? 


That “reset” exists today and is approved for use of certain blood cancers. A next frontier is to target rheumatic autoimmune diseases such as myositis and lupus, and early clinical trial results are very, very encouraging.



The most notable results have come from Germany, where 15 patients, including three myositis patients as young as 20, completed the trial. All of the patients saw remarkable and lasting improvement—some of up to three years of being “disease-free.”

Read More

We would like to introduce a one-of-a-kind, competitive, and determined young man named Parrish. His story of resiliency and hope is one that will resonate with many of us in the Cure JM community.


Parrish has faced many challenges in his journey with JM but found hope and support in his family and the Cure JM community. We are pleased to share his experience to help others facing similar challenges.

Read Story

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this resource, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.


Learn more about some of the strategies for working parents of children with juvenile myositis.

Learn More

Make a difference in the fight against juvenile myositis by participating in research studies to better understand, treat, and support JM patients.


There are opportunities for JM patients, caretakers, siblings, and healthy friends and family members to impact our progress toward a cure.


Learn more information on specific studies, surveys, and projects that provide a platform for shaping better understanding and improved outcomes.

Learn More

With summer underway, we'd like to share an "Ask the Doc" Town Hall on Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children's Hospital, share the importance of sun protection for JM patients.


Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know


What role does sun protection play in managing JM? Will my child be able to enjoy outdoor activities this summer with active disease? What sun protection items offer the best results?


Click below to watch the full session and Q&A.

Watch Now

Hundreds in our community are coming together nationwide to walk for a brighter future! 


You can join the fight by striding with us in your region!

 

Walk Strong events feature food, fun, and friendship as we celebrate the power of community and walk for progress.


We are halfway through the 2024 Walk Strong season and are at 61% of our goal of $500,000! We'd like to thank all of our families and communities who have walked with us this year. Your steps propel our progress!


You can check our progress or contribute to our "Walking for a brighter future" goal here.

 

Upcoming walks:  RSVP here to join a walk in your region!


  • Metro D.C. Sunday, September 22nd
  • Nor Cal - Saturday, September 28th
  • Boston, MA - Sunday, October 6th
  • Houston, TX - Sunday, October 6th
  • Austin, TX - Saturday, October, 12th
  • Nashville, TN - Saturday, October 19th
  • Tampa, FL - Saturday, October 26th
  • Raleigh-Durham - Saturday, November 2nd



Don’t see your town listed? Contact Nicole.Ryba@curejm.org to learn more about walking from home or starting a walk.

RSVP to Join 

The Cure JM Family News Is Brought To You By:

Do you have a story you would like to share?

Please contact familynews@curejm.org

Cure JM Foundation

19309 Winmeade Drive, Suite 204

Leesburg, VA 20176

202.596.6267

info@curejm.org

curejm.org

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