The rare disease patient advocacy organization Global Genes has partnered with Cure JM Foundation to work together on a two-year mental health initiative.

Global Genes is committed to improving the health and mental well-being of the rare disease community that it serves. This partnership with Cure JM will provide educational tools and support for patients and developing communities, two of the three foundational pillars that support Global Genes’ mission. Through this collaboration, the tools and resources CureJM has already developed will be made more widely available via the Global Genes partnership.

“Mental health is an often-neglected aspect of living with a rare disease,” said Charlene Son Rigby, CEO of Global Genes. “Through this initiative, we will leverage and expand on the relevant work already developed by Cure JM, to benefit the broader community of patients and their families living with a rare disease.”

The Global Rheumatology Alliance (GRA) is continuing its campaign to improve care for people with rheumatic diseases around the world, including children!

The 2023 COVID-19 GRA Pediatric Survey aims to improve our understanding of how COVID-19 infections and vaccines have impacted the lives of children living with rheumatic diseases. 

The study aims to understand:

• Caregiver decision-making regarding COVID-19 vaccinations for their children
• Children’s experiences with the COVID-19 pediatric vaccines 
• Long-term symptoms of COVID-19 infections in children

On behalf of Cure JM, we would like to honor the fathers, grandfathers, and other caretakers that support and improve the lives of our kids, teens, and young adults battling juvenile myositis. You are a powerful force in the lives of our families and a powerful force in making progress possible. We thank you today and every day for your commitment to our mission.

Thank you for volunteering, supporting, and serving our community day in and day out!

We are pleased to announce that the grandparent volunteers of Cure JM’s Grandparent Council are generously sending a small "thank you" gift to all Cure JM Grandparents. 

This small token of appreciation is meant to honor your dedication to our rare disease warriors. Receive your complimentary gift and learn more about the Grandparent Council by clicking below.

With summer underway, we are honored to share our latest "Ask the Doc" Town Hall on Sun Protection Tips and Tricks for Summer. In this session, Shelia Angeles-Han, MD, MSc, and Kalyani Marathe, MD, MPH of Cincinnati Children's Hospital, share the importance of sun protection for JM patients.

Sun Protection Tips & Tricks: What Parents, Grandparents, and Patients Need to Know

What role does sun protection play in managing JM? Will my child be able to enjoy outdoor activities this summer with active disease? What sun protection items offer the best results?

Click below to watch the full session and Q&A.

National Walk Strong Day (July 2) is quickly approaching, and we need your help to reach our goal of $650,000 to improve quality care nationwide and advance promising research. Our mission is to provide better treatments with fewer side effects and improve the quality of life for juvenile myositis patients through care and shortened diagnosis times. With your gift, we can reach our walk goal, providing the best care and advancing critical research.  

Double your giving power. Donations are matched by the Leetz Family Match!

There is reason for great hope -- promising new clinical trials, our national and international research programs, drug discovery and genetics programs, and educational resources for our families and physicians. 

With your support, we can fund these vital programs, giving every child, teen, and young adult fighting JM hope for a brighter future.

Thank you for your powerful generosity and unwavering support. You are truly making a difference in the lives of JM patients.

The final countdown is on! We're delighted about this year's National Family Conference in just a few short weeks!

Any configuration of your family is welcome to attend the Cure JM Family Conference.  

Complimentary kid and teen activities are included during all sessions, so kids will be busy while parents are learning. Registration also includes some meals, snacks, and the exciting Saturday awards dinner & auction.

Join in-person sessions that highlight Cure JM Foundation's commitment to improving the lives of families battling JM, from the latest research to the expansion of quality care nationwide. The conference will include insights from world-class JM researchers that have led clinical trials on promising treatments, as well as social opportunities to connect with other families who can relate to your journey.

Register now to secure your spot! Meeting space and hotel rooms at the Marriott Washingtonian Hotel are limited and will close soon.