Our Mission
To find a cure and better treatments for Juvenile Myositis and improve the lives of families affected by JM.

In This Issue:


🎈Anna Ramsey - Volunteer Spotlight

🎈"My Mission, My Impact" - Local Families Unite

🎈Volunteer With Cure JM - Use Your Talents for Good!

🎈Pioneers in JM - Advocates Scholarship Application Is Open!

🎈2024 Walk Strong National Schedule


In celebration of National Volunteer Month, we would like to honor all in our community who volunteer their time and talents to make our progress possible. We thank each of you for your tireless devotion to improving treatments and care for our kids, teens, and young adult patients. 


We dedicate this issue to you and all of the volunteers for this special edition of the Cure JM Family News.

Anna Ramsey has lived with juvenile myositis for most of her adolescent and adult life. Over the years, Anna has been actively involved in Cure JM as a fundraiser, an advocate, and most recently, the first-ever patient on the Board of Directors.


Having been on her journey for some time, Anna quickly got involved with Cure JM as a volunteer and fundraiser within months of her diagnosis to take action in her fight and the fight of others. As Anna puts it, “I decided to do something about it.” This early involvement became both rewarding and cathartic. Over time, Anna’s volunteer leadership continues to shine, and her willingness to help others has inspired her peers and the next generation of JM kids.


Beyond her role on the Board of Directors, Anna is also a founding member of the Cure JM Advocates Council, a group of young adults living with JM who are shaping ideas for improved care.


Recently, we interviewed Anna to get her thoughts on her involvement and inspiring leadership. Thank you, Anna, for all that you have done and continue to do for our mission!

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Over the years, we’ve seen the power of lifelong friendships stoked through our local chapters. The Seattle chapter has historically been one of our notable chapters, with many active families making our mission possible.


One such alliance in the Seattle area is that of the Shevlin and Smiddy families. These two families have come together to host community events that make Cure JM’s crucial work possible. Their approach has been to keep it simple with a “yard sale,” yet the event has become a staple in their community and a way for JM families and friends to stay connected year after year.


We interviewed Julie Shevlin and Sarah Smiddy to learn more about their annual yard sale fundraiser and why it’s so meaningful to them and other JM families.

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Are you eager to make a meaningful impact and connect with a community committed to an important cause? The Cure JM Foundation welcomes passionate volunteers like you! Whether you can spare just a few moments or have more time to give, your dedication can help advance our mission.


Your skills and passion can make a real difference. If you have specific talents or ideas, we’d love to hear from you!


Click here to learn more about our current volunteer needs.


Please reach out to Shannon.Malloy@curejm.org to explore more opportunities. 


Every minute you contribute is a step towards a brighter future for those affected by juvenile myositis. Thank you for considering joining our team of dedicated volunteers – together, we can achieve so much more!

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Hundreds in our community are coming together nationwide to walk for a brighter future! 


You can join the fight by striding with us in your region!

 

Walk Strong events feature food, fun, and friendship as we celebrate the power of community and walk for progress.

 

Upcoming walks:  RSVP here to join a walk in your region!


  • Dallas, TX - Saturday, April 20th 
  • Kansas City, KS - Saturday, April 27th
  • Reno, NV - Saturday, April 27th
  • Metro D.C. Sunday, April 28th
  • Pittsburgh, PA - Sunday, April 28th 
  • Chicago, IL - Sunday, May 5th
  • Pacific Northwest (Seattle) - Saturday, May 11th 
  • Cincinnati, OH - Sunday, May 19th
  • New York/ Connecticut Sunday, May 19th
  • Metro D.C. Sunday, September 22nd
  • Nor Cal - Saturday, September 28th
  • Houston, TX - Saturday, October 6th
  • Austin, TX - Saturday, October, 12th
  • Tampa, FL - Saturday, October 26th
  • Raleigh-Durham October - TBD
  • Nashville, TN - October - TBD


Don’t see your town listed? Contact Nicole.Ryba@curejm.org to learn more about walking from home or starting a walk.

RSVP to Join 

A special educational support opportunity for collegiate JM patients using their experience to lead and inspire is now open.


The Pioneers in JM Advocates Scholarship is a new scholarship program honoring the founding members of Cure JM’s inaugural Medical Advisory Board and pioneering JM researchers and clinicians, Drs. Lauren M. Pachman, Ann M. Reed and Lisa G. Rider.  


The application period is open through April 30th.


The Pioneers in JM Advocates Scholarship is intended to be awarded to three deserving students with juvenile myositis who:


  • Impact the juvenile myositis community through their volunteer and leadership efforts
  • Inspire the juvenile myositis community by overcoming adversity while empowering others to do the same


To learn more about this program and full details, click the button below.

Learn More

The Cure JM Family News Is Brought To You By:

Do you have a story you would like to share?

Please contact familynews@curejm.org

Cure JM Foundation

19309 Winmeade Drive, Suite 204

Leesburg, VA 20176

202.596.6267

info@curejm.org

curejm.org

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