CARE Registry:
Giving AAPI a Voice Through Research
Currently, AAPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AAPIs to various types of research.
As of 10/07/2021,
6780 people have signed up to increase AAPI representation in research!
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Some examples of potential research studies that CARE registry participants may be contacted about include:
- Prevention or treatments for Alzheimer’s disease and related dementias
- Health issues across the lifespan
- Caregiving issues and improving the health and wellness of caregivers
If you haven't already,
*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
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*CARE is supported by
the National Institute on Aging of the National Institutes of Health
(Award Number R24AG063718).
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Cantonese Alzheimer’s Forum:
Brain Health for All
粵語阿滋海默症論壇: 關注腦部健康
Saturday, October 30, 2021 @ 5:00 PM – 7:00 PM PDT
This event is presented in Cantonese.
Questions? Contact: Xiaorong Ou,
*Alzheimer's Association is a CARE Community Partner.
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The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.
Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.
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To apply scan the QR code.
After completion, you will be contacted shortly by our Ambassador team.
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Anonymous Online Form
Available in 29 Languages to Report
Violence Against AAPI Elders
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On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) launched an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AAPI) community members. The in-language online report form is fully anonymous and available in 29 AAPI languages.
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*NAPCA is a CARE Community Partner.
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The Asian Cohort for Alzheimer’s Disease (ACAD) is looking for volunteers! |
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Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.
The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older.
UCSF Memory and Aging Center is a CARE Partner. Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.
If you are interested in participating in the study,
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Coming Soon!
The Vietnamese Insights into Aging Program (VIP)
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The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.
In November 2021, we will be recruiting volunteers who:
- identify as Vietnamese American
- are 65 years or older
- reside in Northern California
- can speak either English or Vietnamese
- have immigrated from Vietnam
All participants will be compensated
for their time and effort.
If you are interested in participating in the VIP study:
Bay Area residents,
Sacramento residents,
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For more than 30 years, the UC Irvine Institute for Memory Impairments and Neurological Disorders (UCI MIND) has been at the forefront of research aimed to end Alzheimer’s disease and related disorders (ADRD). UCI MIND’s researchers have published more than 1500 papers and been awarded upwards of $150 million dollars in grants to study ADRD. One of the highlights of UCI MIND’s research program is a longitudinal study that follows people with and without memory disorders who agree to annual cognitive and neurological assessments along with imaging and fluid biomarker collection. Most also agree to donate their brains at the end of their life to help researchers understand the link between clinical and pathological changes. Among participants in this key study, over 25% of participants are Asian American and Pacific Islander (AAPI), including individuals who self-identify as Chinese, Japanese, Korean, Vietnamese, Asian Indian and Filipino. |
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To support this study and others like it, UCI MIND is dedicated to educating our AAPI community about Alzheimer’s disease and providing our audiences with local resources for both patient and caregiver support. We routinely give talks in multiple languages about brain health, offer easy to access online content on our new media platform MINDCast (www.mind.uci.edu), and host an annual research conference for geriatric healthcare professionals, researchers and community members to highlight the latest advances in the field.
As a CARE partner we recognize the need to improve access to research and education for Asian Americans and Pacific Islanders in Orange County and beyond. Through our relationships with local organizations like Somang Society, the South Coast Chinese Cultural Association, and others, we are committed to increasing AAPI voices and representation in ADRD and aging research.
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"Every day as I care for my mother, I experience the emotional highs and lows as I witness my mother change physically and mentally. But, I also see her strong faith, her determination to always try her best, and the love that she always gives to her family." |
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Our mailing address is:
Phone: (669) 256-2609
中文:(510) 402-6306
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