CARE Registry: Giving AAPIs a Voice Through Research

Currently, AAPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AAPIs to various types of research.

As of January 9, 2022, 7329 people have signed up to increase AAPIs' representation in research!
Click to learn more about CARE Registry
Some examples of potential research studies that CARE registry participants may be contacted about include:

  • Prevention or treatments for Alzheimer’s disease and related dementias
  • Health issues across the lifespan
  • Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at:

NEW! Hindi (हिन्दी) Website in progress
Samoan (Sāmoa)
Watch our 30 second animated videos in
Parenting Workshops: How to Keep Your Child Safe Online

January 6th, 13th, 20th, 2022 (Thursdays)
@ 6:30 PM – 8:00 PM PDT

Join ICAN’s forum to learn more about digital safety, healthy social media practices, and intergenerational dialogue. You will also learn how to adjust permissions on iPhone and Android Phone, how to adjust your privacy settings, using apps that are safe for your child, etc. 

This event is presented in Vietnamese. 

Please pre-register and you will receive reminder emails and messages before every workshop.

If you have any questions or comments or need help registering, please contact Di at (408)583-7465 or (669)223-1374.

International Children’s Assistance Network is a CARE community partner. 
Cultivating My Việt Mỹ Identity Speaker Panel and Community Discussion

Thursday, January 22, 2022 @ 11:00 AM – 12:30 PM PDT 

The focus of the event will be to acknowledge and amplify the under-represented perspectives of Vietnamese American youth and their journey in navigating experiences of home, belonging, identity and individuality in the United States.  

Cultivating Việt Mỹ Youth Identity aims to unite youth voices and highlight the importance of inclusive representation in Vietnamese American narratives. The community Zoom forum will showcase stories and artwork from our participants, bringing weeks of creative workshops and fruition to a celebratory close. We will also hear from guest speaker Bao Phi, a Vietnamese American spoken word artist, writer and community activist. 
This event is presented in English.

International Children's Assistance Network is a CARE community partner.
Language Access in Medicare and More

February 3, 2021 @ 11:00 AM – 12:00 PM PDT

Medicare & You is now available in Chinese, Korean and Vietnamese! Join Southeast Asia Resource Action Center (SEARAC), Justice in Aging and National Asian Pacific Center on Aging (NAPCA) to help beneficiaries, advocates, Medicare benefits counselors, and caregivers understand this new resource. 

This event is presented in English.

NAPCA is a CARE community partner. 
Wartime trauma hits close to home for scholar of dementia 
Dr. Oanh Meyer, a CARE Co-Investigator, was interviewed on the impact of trauma on dementia in Vietnamese Americans. Read more of Dr. Meyer's interview here.
Wartime Trauma Hits Close to Home for Scholar of Dementia

The federal government is putting up $7.2 million for a study into the correlation between war trauma and dementia in Vietnamese immigrants. Oahn Meyer, an associate professor at the University of California-Davis who is leading the study,...

Read more
CARE Ambassador Program
The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.  
To apply scan the QR code.

After completion, you will be contacted shortly by our Ambassador team. 
Knowledge gaps, challenges, and opportunities in health and prevention research for Asian Americans, Native Hawaiians, and Pacific Islanders: A report from the 2021 National Institutes of Health Workshop 
In March 2021, the National Heart, Lung, and Blood Institute, in partnership with 8 other NIH institutes, convened a multidisciplinary workshop to review current research, knowledge gaps, opportunities, barriers, and approaches for prevention research for Asian Americans, Native Hawaiians, and Pacific Islanders.  

Drs. Alka Kanaya and Janice Tsoh (CARE Co-Investigators) are among the scholars who contributed to this report. Read more here.
COMPASS II (COVID-19 Effects on the Mental and Physical Health of AAPI Survey Follow-Up Study) has launched! 
We are excited to share the news that COMPASS II survey was launched last month! We received a great response — 5,420 Asian American and Pacific Islander (AAPI) adults (including 2,600 CARE participants) completed the survey! These participants are invited to complete the COMPASS II survey that will help us understand the long-term impact of COVID-19 on the health of AAPIs.   
For more information about the COMPASS study, please visit COMPASS website. 
Anonymous Online Form Available in 29 Languages to Report Violence Against AAPI Elders 
On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AAPI) community members. The in-language online report form will be fully anonymous and available in 29 AAPI languages. 

The form will be accessible on the NAPCA website.

NAPCA is a CARE Community Partner.
The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older. 

Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.

Visit ACAD study website or the animated videos in EnglishCantoneseMandarinKorean, and Vietnamese for more information.

If you are interested in participating in the study,
fill out this online form or email
The Vietnamese Insights into Aging Program (VIP)
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.

In January 2022, we will be recruiting volunteers who: 
  • identify as Vietnamese American 
  • are 65 years or older 
  • reside in Northern California 
  • can speak either English or Vietnamese
  • have immigrated from Vietnam 

All participants will be compensated for their time and effort.  

If you are interested in participating in the VIP study, 
Bay Area residents, contact us at or (408) 609-9144 
Sacramento residents, contact us at or (916) 432-4197

"I felt in the society nowadays, children have no idea their parents would become this way in the future, and people of my age do not expect they might be like this in the future. This disease does not announce its arrival but develops gradually in life."
If you enjoyed this newsletter, please share it with your friends and family. 

If you received this from a friend, click here to subscribe.
Copyright © 2020 University of California, San Francisco, All rights reserved.

Our mailing address is:

Phone: (669) 256-2609

中文:‪(510) 402-6306‬

한국어:(‪408) 320-7642

Tiếng Việt:‪(415) 580-0845‬