CARE Registry: Giving AAPIs a Voice Through Research

Currently, AAPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AAPIs to various types of research.

As of February 1, 7,523 people have signed up to increase AAPIs' representation in research!
Click to learn more about CARE Registry
Some examples of potential research studies that CARE registry participants may be contacted about include:

  • Prevention or treatments for Alzheimer’s disease and related dementias
  • Health issues across the lifespan
  • Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care

*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
NEW! Hindi (हिन्दी) Website in progress
Samoan (Sāmoa)
Watch our 30 second animated videos in
Living with Alzheimer’s: For Care Partners of People with Early Stage Alzheimer’s

February 3rd, 10th, 17th (Thursdays) @ 1:00-3:00 PM PDT  

This is a 3-part series about how to approach the early stage of Alzheimer’s disease, providing practical answers to questions as well as needed resources and strategies to persons with early-stage Alzheimer’s and their care partners.
 
This event is presented in Mandarin.


Please pre-register and you will receive meeting information the day before every workshop. 

If you have any questions or comments or need help registering, please contact Xiaorong Ou, xou@alz.org or (408)372-9926. 

Alzheimer’s Association is a CARE community partner. 
CARE Brain Trust Meeting

Monday, February 28, 2022 @ 10AM - 11AM PDT

If you are a researcher, organization member, or community member interested in increasing Asian American and/or Pacific Islander (AAPI) representation in your field of work— or if you are simply interested in learning more about CARE— please join us in this free informative event to learn how you can be involved.  

This event is presented in English.


Please pre-register and you will receive meeting information the day before the event.

If you have any comments or questions, please contact careaapi@gmail.com.
COVID-19 two years later: The impact on research and public health in diverse communities 
Dr. Van Park (CARE Principal Investigator) served as a panelist on a panel hosted by the National Institutes of Health COVID-19 Scientific Interest group and the National Institute of Allergy and Infectious Diseases Diversity and Inclusion Group on January 13, 2022.

The panel highlighted the disproportionate health and socioeconomic effects of the pandemic on specific communities in the US, as well as considerations for researchers and public health professionals who are engaging with these communities. Watch the webcast recording here.
NIH VideoCast - COVID-19 Two Years Later: The Impact on...

COVID-19 Two Years Later: The Impact on Research and Public Health in Diverse Communities

Read more
videocast.nih.gov
Wartime trauma among Vietnamese refugees subject of new study 
Dr. Oanh Meyer (CARE Co-Investigator) was interviewed by NBC about her studies focusing on the impact of wartime trauma and its links to dementia among Vietnamese refugees in the U.S as they are at ages where dementia symptoms will begin to show. Read more here. 
Wartime trauma among Vietnamese refugees subject of new...

A decade ago, Oanh Meyer was studying the experiences of caregivers for people with dementia when she noticed a troubling trend among Vietnamese elders. First, her mother, who fled Vietnam as a refugee in 1975, began experiencing bouts of...

Read more
www.nbcnews.com
CARE Ambassador Program
The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.  
To apply scan the QR code.

After completion, you will be contacted shortly by our Ambassador team. 
NAPCA Call Center is Available
The National Asian Pacific Center on Aging (NAPCA) Call Center connects limited English proficiency (LEP) Asian American, Native Hawaiian, and Pacific Islander (AANHPI) elders (55yrs+) and family caregivers to mainstream providers. Bi-lingual Community Resource Specialists provide in-language information and referral to: 
  • Aging services (e.g., meals on wheels, adult daycare, transportation, etc.), 
  • Medicare and benefit programs,  
  • Supportive services for family caregivers, and 
  • COVID-19 vaccinations and education. 

The Call Center is available nationwide. Contact us Monday – Friday from 8:30am – 5:00pm PST. 
  • English: 1-800-336-2722 
  • Cantonese: 1-800-582-4218 
  • Mandarin: 1-800-683-7427 
  • Vietnamese: 1-800-582-4336 
  • Korean: 1-800-582-4259 
COMPASS II (COVID-19 Effects on the Mental and Physical Health of AAPI Survey Follow-Up Study) has launched! 
We are excited to share the news that COMPASS II survey was launched in December! COMPASS I received a great response — 5,420 Asian American and Pacific Islander (AAPI) adults (including 2,600 CARE participants) completed the survey! These participants are invited to complete the COMPASS II survey that will help us understand the long-term impact of COVID-19 on the health of AAPIs.   
 
For more information about the COMPASS study, please visit COMPASS website. 
Anonymous Online Form Available in 29 Languages to Report Violence Against AAPI Elders 
On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AAPI) community members. The in-language online report form will be fully anonymous and available in 29 AAPI languages. 

The form will be accessible on the NAPCA website.

NAPCA is a CARE Community Partner.
The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older. 

Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.

Visit ACAD study website or the animated videos in EnglishCantoneseMandarinKorean, and Vietnamese for more information.

If you are interested in participating in the study,
fill out this online form or email acad@ucsf.edu.
The Vietnamese Insights into Aging Program (VIP)
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.

In January 2022, we will be recruiting volunteers who: 
  • identify as Vietnamese American 
  • are 65 years or older 
  • reside in Northern California 
  • can speak either English or Vietnamese
  • have immigrated from Vietnam 

All participants will be compensated for their time and effort.  

If you are interested in participating in the VIP study, 
Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144. 
Sacramento residents, contact us at vip@ucdavis.edu or (916) 432-4197.

Older Adults Technology Services (OATS)
Are you an older adult or know of an older adult who is interested in receiving free, award-winning technology assistance by a trusted and supportive team in a safe and welcoming environment? Older Adults Technology Services (OATS) from AARP is a non-profit that harnesses the power of technology to change the way we age. In partnership with Avenidas in Palo Alto, OATS launched Senior Planet from AARP sponsored by Avenidas in 2019 to offer:
  • A toll-free national technology support hotline at 888-713-3495 on Monday through Friday from 6 am to 2 pm Pacific Time for all older adults
  • Free 1 on 1 technology coaching sessions online or over the phone
  • Over 40 different ongoing free lectures and workshops a week meant for older adults on technology topics ranging from how to use Zoom to meet with your doctor or loved ones and how to shop online safely to what are podcasts and what is cloud storage

For more information about how to attend all of this free programming, please visit www.seniorplanet.org or email rsvp@seniorplanetavenidas.org. Additionally, in partnership with the Avenidas Chinese Community Center and AACI, Senior Planet from AARP sponsored by Avenidas offers free weekly programming in Chinese and Vietnamese with further information at www.seniorplanet.org/locations/palo-alto/chinese/ and www.seniorplanet.org/locations/palo-alto/vietnamese/.
Ryan Kawamoto, who is a CARE Community Advisory Board member, runs Senior Planet from AARP sponsored by Avenidas and comes to the role with executive management experience in the social services sector as the previous Executive Director of Yu-Ai Kai Japanese American Community Senior Service located in San Jose Japantown and the current Co-President of the Japantown Community Congress of San Jose.
“The increasing importance of technology has become more evident everyday especially during the pandemic, and so I feel blessed to be a part of two critical initiatives that I truly believe are dynamically changing how we age in the name of better health outcomes. Through my involvement with the CARE registry, I have the privilege of seeing firsthand how this historic effort to collect better data for a community that has often times been overlooked will translate into more targeted and effective medical and technological solutions, and as the regional director for Senior Planet from AARP sponsored by Avenidas, I work with an amazing team to provide critical programming in closing the digital divide for older adults.”
"She was very excited when my friends came. She loved crowds. She would dress up and put on her makeup. She would say, 'Haven’t seen you for a long time.' But when she went to the room and came out again, she would say, 'When did you come? Haven’t seen you for a long time.' "
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