CARE Newsletter
In this issue, you will find upcoming events, news, and showcase some of the work that our partners have been carrying out to serve the diverse Asian American and Pacific Islander (AAPI) communities.
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CARE Registry: Giving AAPIs a Voice Through Research
Currently, AAPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AAPIs to various types of research.
As of 11/29/2021, 7094 people have signed up to increase AAPIs' representation in research!
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Some examples of potential research studies that CARE registry participants may be contacted about include:
- Prevention or treatments for Alzheimer’s disease and related dementias
- Health issues across the lifespan
- Caregiving issues and improving the health and wellness of caregivers
*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
NEW! Hindi (हिन्दी) Website in progress
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Watch our 30 second animated videos in
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Lifting the Veil: Guiding Our Path
(失智歲月 - 西出陽關，故人長伴)
December 11, 2021 @ 5:00 PM – 7:30 PM PDT
More than 6 million Americans are living with Alzheimer’s disease, and more than 11 million Americans provide unpaid care for people living with Alzheimer’s or other dementia. Join us to learn how dementia would impact your family, helpful tips to guide you in having difficult conversations with family members, and what matters for people living with dementia and their caregivers.
This event is presented in Mandarin Chinese.
Alzheimer’s Association is a CARE community partner.
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AARP Leading with a Champion Mind
December 16, 2021 @ Noon – 1:00 PM PDT
After a challenging year of navigating the “double pandemic” of COVID-19 and the rise of anti-Asian hate, AARP presents “Leading with a Champion Mind” to celebrate the strength of the AAPI community and bring together generations of AAPI Olympians who embody resilience and excellence. Join AARP for in an uplifting virtual conversation on resilience and strength, moderated by Olympic gold medalist speed skater, Apolo Ohno and panelists, Olympic gold medalist figure skater, Kristi Yamaguchi and two-time Olympic bronze medalist figure skaters, Alex and Maia Shibutani.
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This event is presented in English.
AARP is a CARE community partner.
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Caregivers Countdown to the Holidays
December 16, 2021 @ 9:00 AM – 10:00 AM PDT
The holidays can be stressful for anyone, especially a family caregiver. Join us for a conversation with a panel of experienced caregivers and learn their tips for facing the upcoming holiday season and how they balance family traditions, cultural obligations and caregiving responsibilities.
This event is presented in English.
AARP is a CARE community partner.
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The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.
Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.
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To apply scan the QR code.
After completion, you will be contacted shortly by our Ambassador team.
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COMPASS II (COVID-19 Effects on the Mental and Physical Health of AAPI Survey Follow-Up Study) has launched!
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We are excited to share the news that COMPASS II survey was launched earlier this week! COMPASS I received a great response — 5,420 Asian American and Pacific Islander (AAPI) adults (including 2,600 CARE participants) completed the survey! These participants are invited to complete the COMPASS II survey that will help us understand the long-term impact of COVID-19 on the health of AAPIs.
For more information about the COMPASS study, please visit COMPASS website.
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Anonymous Online Form Available in 29 Languages to Report Violence Against AAPI Elders
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On September 4, 2021, in remembrance of the Bellingham Riots, National Asian Pacific Center on Aging (NAPCA) will introduce an online reporting form to describe occurrences of violence against older Asian American Pacific Islander (AAPI) community members. The in-language online report form will be fully anonymous and available in 29 AAPI languages.
NAPCA is a CARE Community Partner.
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The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
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Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.
The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older.
Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.
If you are interested in participating in the study,
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Coming Soon!
The Vietnamese Insights into Aging Program (VIP)
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The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.
In January 2022, we will be recruiting volunteers who:
- identify as Vietnamese American
- are 65 years or older
- reside in Northern California
- can speak either English or Vietnamese
- have immigrated from Vietnam
All participants will be compensated for their time and effort.
If you are interested in participating in the VIP study,
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The CARE Ambassador Program is an opportunity for those who are passionate about addressing disparities in AAPI representation in research. Our Ambassadors are representatives of their local communities and are working to bridge the gap between their communities and research. Through in-person tabling, virtual events, and other outreach events, the CARE Ambassadors are leveraging their community connections to increase AAPI representation in research.
“Since our official launch in June, our cohort of 5 Ambassadors has been busy with CITI trainings, orientation, and outreach trainings. We planned our first group outreach on November 21st and hosted 20 potential participants for a CARE Virtual Informational Session. Our ambassadors are now working on beginning their own individual outreach and hope to work in person together when possible.”
- Colette Kirkpatrick, Program Lead
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"Kids were very supportive and said that their dad needed nursing home care, but I did not want to send him…
So I kept taking care of him."
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Our mailing address is:
Phone: (669) 256-2609
中文:(510) 402-6306
한국어:(408) 320-7642
Tiếng Việt:(415) 580-0845
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