CARE Registry: Giving AAPI a Voice Through Research

Currently, AAPIs are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AAPIs to various types of research.

As of 07/25/2021, 6,311 people have signed up to increase AAPI representation in research!
Click to learn more about CARE Registry
Some examples of potential research studies that CARE registry participants may be contacted about include:

  • Prevention or treatments for Alzheimer’s disease and related dementias
  • Health issues across the lifespan
  • Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care

*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
Samoan (Sāmoa)
CARE 30 Seconds Videos
2021 SEEDS Summer Program
Community Showcase and Luncheon

The Vietnamese American Roundtable (VAR) is proud to present this year’s Student Engagement and Education for Development Success (SEEDS) Program Community Showcase and Luncheon. We cordially invite you to the culmination of this year’s SEEDS Program, hosted at the Viet Museum in San Jose, which include presentations from this year’s program cohort, issues-based resources provided by our partnering community-based organizations, and fruitful multigenerational discussions over a home-cooked meal from 11:00am to 1:00pm on Saturday, August 7th, 2021. This event is open to all community members and family and friends of the SEEDS Program cohort in-person and online. VAR will be taking all necessary COVID-19 precautions pursuant to Santa Clara County, State of California, and CDC guidelines.

Saturday, August 7, 2021 @ 11:00 am - 1:00 pm PDT

This event is presented in English.


For more information, click here.

ICAN is a CARE Community Partner.
UC San Francisco Memory and Aging Center
Online Brain Health Talk: Are Mid/Late Life Personality Changes a Sign of Dementia?
中老年個性改變,我是失智了嗎?

Presenter:
  • Boon Lead Tee, MD, UC San Francisco Memory and Aging Center, CARE Cab Member (鄭文立醫師,三藩市加州大學記憶與老化研究中心) 

Saturday, August 14, 2021 @ 3:00 PM – 4:00 PM PDT

This event is presented in Mandarin.

Questions?
Contact Diana Mei at diana.mei@ucsf.edu 
or Kevin Lieu at kevin.lieu@ucsf.edu
Healthy Living for Your Brain and Body: Tips from the Latest Research

An education program from the Alzheimer's Association. For centuries, we’ve known that the health of the brain and the body are connected. But now, science is able to provide insights into how to make lifestyle choices that may help you keep your brain and body healthy as you age. Join us to learn about research in the areas of diet and nutrition, exercise, cognitive activity and social engagement, and use hands-on tools to help you incorporate these recommendations into a plan for healthy aging.

Saturday, August 21, 2021 @ 10:00AM - 11:30 AM PDT

This event is presented in Vietnamese.


or call Lam Pham: 408-609-9144

ICAN is a CARE Community Partner.
How is Dementia Diagnosed? What is CARE Registry?
失智症是如何診斷的?什麼是CARE研究登記名冊? 

Presenters:  
  • Boon Lead Tee, MD, UC San Francisco Memory and Aging Center, CARE Cab Member鄭文立  醫師(三藩市加州大學記憶與老化研究中心) 
  • Janice Tsoh, PhD, Professor and CARE Co-Investigator, UC San Francisco Department of Psychiatry and Behavioral Sciences 
••••••••左雨詩  博士 (三藩市加州大學臨床心理學教授、CARE共同研究員) 
 
Join us to learn: 
  • What is dementia? How is dementia diagnosed? 
  • Opportunities to participate in research through the CARE Registry 

We will hold raffles for gift cards! 

Saturday, August 28, 2021 @ 10:00 AM – 11:00 AM PDT

This event is presented in Cantonese.

For more information, click here.

Questions? Contact: careaapi@gmail.com 
2021 Vietnamese Caregivers Conference

The Aging Services Collaborative of Santa Clara County warmly invites you to the 2021 Vietnamese American Caregivers Conference - tailored specifically for family or informal caregivers who are caring for their loved ones. Attendees will have the opportunity to hear from informative speakers as well as to learn about supportive services in the County. This year’s topics will cover Medi-Cal spousal impoverishment, pandemic preparation and mental health, dementia caregiving, and the COVID-19 Delta variant.

Thursday, September 16, 2021 @ 6:00 - 8:00 PM &
Saturday, September 18, 2021 @ 10:00 AM - 12:00 PM
•••••
This event is presented in Vietnamese.


or call Lam Pham: 408-609-9144

ICAN is a CARE Community Partner.
The Many Faces of Dementia (Part 1):
Alzheimer’s Disease and Lewy Body Dementia 
百變的失智症(一):阿滋海默症及路易氏體失智症  

Presenters:  
  • Boon Lead Tee, MD, UC San Francisco Memory and Aging Center, CARE Cab Member 鄭文立  醫師(三藩市加州大學記憶與老化研究中心) 
  • Marian Tzuang, PhD, MSW, Research Analyst, UC San Francisco School of Nursing 莊子瑩 博士 (三藩市加州大學護理學院) 
 
Join us to learn: 
  • What is Alzheimer’s Disease? What is Lewy Body Dementia?  
  • Opportunities to participate in research through the CARE Registry 

We will hold raffles for gift cards! 

Saturday, September 18, 2021 @ 10:00 AM – 11:00 AM PDT

This event is presented in Mandarin.

For more information, click here.

Questions? Contact: careaapi@gmail.com 
CARE Ambassador Program
The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.  
To apply scan the QR code.

After completion, you will be contacted shortly by our Ambassador team. 
Asian Americans and Pacific Islanders’ Perspectives on Participating in the CARE Recruitment Research Registry for Alzheimer's Disease and Related Dementias, Aging, and Caregiving Research  

Dr. Van Ta Park (CARE Principal Investigator) and colleagues recently published findings from focus groups that help advance our understanding of the best strategies and messaging for recruiting Asian Americans and Pacific Islanders into the CARE registry, in the journal, Alzheimer's & Dementia: Translational Research & Clinical Interventions. The focus groups were conducted in multiple languages (English, Mandarin, Cantonese, Korean, and Vietnamese). 

To view the full article, click here
CARE at the Fremont Gurudwara 

Shweta Srivastava (Clinical Research Assistant) and Avantika Rastogi (MASALA and CARE Intern) represented CARE’s South Asian Outreach Team and tabled a booth at the Fremont Gurudwara. They shared about CARE and we are looking forward to conducting more in-person events while using COVID-19 safety measures! 

The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. In the pilot phase, the study will be looking for Asian Americans of Chinese, Korean, and Vietnamese ancestry who are 60 years old or older and with or without cognitive issues.

Visit ACAD study website for more information.

Animated videos in EnglishCantoneseMandarinKorean, and Vietnamese

If you are interested in participating in the study, fill out this form
or email acad@ucsf.edu.
Coming Soon!
The Vietnamese Insights into Aging Program (VIP)
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand how stressful life events can impact the occurrence of memory issues in older Vietnamese Americans. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP. It will be the first study of its kind in the U.S. to examine memory and aging in older Vietnamese. 

In September 2021, we will be recruiting volunteers who: 
  • identify as Vietnamese American 
  • are 65 years or older 
  • reside in Northern California 
  • can speak either English or Vietnamese 

Volunteers for this research study will get
free memory check-ups every year.

If you are interested in participating in the VIP study, 
Bay Area residents, email bora.nam@ucsf.edu 
Sacramento residents, email vip@ucdavis.edu

AARP California

"AARP applauds CARE for seeking to address the disparities in research participation among Asian American and Pacific Islanders (AAPI),” stated Sophie Horiuchi-Forrester, AARP California Regional Manager. “CARE’s driving theme of addressing “Health Across the Lifespan” is important for AAPI adults of all ages and AARP is proud to work with CARE to help identify health related issues facing AAPI older adults.”
- Sophie Horiuchi-Forrester, San Jose Regional Manager 

AARP is the nation’s largest nonprofit, nonpartisan organization dedicated to empowering people 50 and older to choose how they live as they age. With nearly 38 million members nationwide and 3.3 million members statewide, AARP strengthens communities and advocates for what matters most to families: health security, financial stability and personal fulfillment. 
AARP California advocates on critical priorities to help ensure all Americans have independence and choice as they age.

Learn more about AARP California and our work at aarp.org/ca
 
"At this time, I really did not know much about dementia at all. I had always thought that forgetfulness was just associated with age, somehow."
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