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April 2023 Resource Newsletter | |
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ACCESS NONPROFIT CENTER
Parenting Black Children
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Decrease Disparities, Increase Access
to Resources & Information for
Black/African American Families Experiencing Autism & Developmental Disabilities
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Resources Featured in This Issue:
- Executive Director's Share
- Access Nonprofit Center Upcoming Programs
- Autism Awareness Acceptance Month
- Department of Developmental Services (DDS)
- San Gabriel/Pomona Regional Center - Community Outreach Department
- Parent's Place Family Resource Center
- Inland Regional Center - Community Engagement Department
- Early Start Family Resource Network
- AAIMM - African American Infant Maternal Mortality
- Additional Resources
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Executive Director’s Share:
Hello Beautiful people, It’s your girl Ardena, mom to a Beautiful Black Boy on the Autism spectrum. It’s Autism Acceptance month, whaaaattt they changed it from Awareness?
I asked my Parent LEADership group about the new title promoting Autism Acceptance and not Awareness as much. Overwhelmingly, the parents agreed that in our community both awareness and acceptance is needed. We deal with the double situation of the intersection of RACE & DISABILITY being Black has its own challenges, and Autism has its own challenges, but being Black with Autism can compound the challenges that we face in getting access to services and programs to support our families.
As a Black momma, just to be real about it, I often think, did they not give me all the information because I am Black, did they not respond to me in a certain way because I’m Black or did they not accept my kid into their program because of his challenges related to Autism? Yes, it is exhausting sometimes. NONETHELESS! We are STRONG, RESILIENT, and PROUD of our African diaspora heritage as well as the beautiful diversity of abilities that come along with our families who are experiencing Autism.
Yes Autism Awareness is important because our children are still being mis and delayed diagnosis. Acceptance is important for families and communities to see a diagnosis as an opportunity to obtain the appropriate intervention that will prepare our children to live their best lives. If not for our great state of California and the Lanterman Act, my son would not have access to the amazing interventions that include social skills which have improved his social interaction, swimming has taught him water safety, and music lessons that helped with his anxiety and depression.
Autism Awareness & Acceptance is important but so is Cultural Humility & Competence. Please review the resources that are provided in this newsletter and sign up for alerts from the different agencies listed.
Please visit our Linktree for more information and updates at https://linktr.ee/accessnonprofit
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Parent LEADership & Advocacy Training Program (PLA) | |
Mission of the program is to decrease this disparity and to increase the access to representation and participation of Black families on boards, committees and other decision-making platforms by providing parents with the opportunity to increase their knowledge, skills and understand how to take up space as leaders and advocates in the community. | |
Parenting Black Babies
Screening Education & Referral Initiative
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Access Nonprofit Center and Carousel Developmental Services introduce Parenting Black Babies Education & Referral Initiative, a project which focuses on assessing early intervention services and increasing access for at-risk infants.
Learn More...
Hiring Program Manager for Parenting Black Babies email ardenab@accessnonprofit.org
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Autism Awareness & Acceptance Month | |
National Autism Awareness & Acceptance Month raises awareness for autism and Asperger’s syndrome during April. | |
Children of color with autism face disparities of care and isolation
Watch the PBS video
"African-American children are often diagnosed with autism at older ages than white children, missing years of potential intervention and treatment. Special correspondent John Donvan and producer Karen Zucker meet a black family who struggled to find community and resources for their son with autism, but are now helping others who need answers and support." - Source PBS NewsHour
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Autism in the Black Community
Five things to consider about autism:
- Undiagnosed or misdiagnosed?
- Delayed intervention
- Community Isolation
- Non-equitable access
- Racial injustice
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Autism Response Team (ART) is specially trained to connect people with autism, their families, and caretakers to information, tools, and resources.
The Autism Response Team can help you learn more about:
- Where to get a diagnosis
- Schools and special education
- Advocacy and support
- Adult services - including post-secondary programs and employment
- Inclusion and community activities
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And much more!
https://www.autismspeaks.org/autism-response-team-art
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2023 Autism Society Inland Empire Autism Acceptance Walk
Date: Sunday, April 30th, 2023
Time: 12pm - 3:00 pm
Location: March Field Air Museum, 22550 Van Buren Boulevard, Riverside, CA 92518
More information
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ABOUT DDS:
The California Department of Developmental Services (DDS) works to ensure Californians with developmental disabilities have the opportunity to make choices and lead independent, productive lives as members of their communities in the least restrictive setting possible.
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DDS serves more than 330,000 individuals, also known as consumers, who have developmental disabilities including cerebral palsy, intellectual disability, Down syndrome, autism, epilepsy and related conditions. The programs, services and resources here are designed to empower consumers who have developmental disabilities and help guide the families, advocates and professionals who help them live their best lives. | |
If you are a parent or caregiver with questions about SGPRC client services, please contact:
Josie Martinez
Community Outreach Specialists
Community Outreach Service Access & Equity Dept.
jmartinez@sgprc.org
(909) 710-8817
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2023 Virtual Training About Educational Matters for Parents
Every Thursday 4:30pm - 6pm
April 27, 2023 IEP verses 504 Plans - Which one best supports my child at School
Via Zoom
https://sgprc-org.zoom.us/j/86436653824#success
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SGPRC Weekly Community Meetings
Every 3rd Tuesday of the month - 10am to 11am
Via Zoom
More information
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CIF training on Utilization of Evidence Based Practices
Presented by Joshua Trevino, Board Certified Behavior Analyst
April 13, 2023 – 11am-12pm.
Zoom ID: 890 0198 5467
https://sgprc-org.zoom.us/j/89001985467
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Sirens of Silence Event
A Special Day with First Responders
Join us for the 2nd Annual Sirens of Silence event hosted by the County of Los Angeles Fire Department in partnership with the San Gabriel/Pomona Regional Center.
COME AND MEET WITH FIRST RESPONDERS IN A SENSORY-FRIENDLY SPACE:
Saturday, April 29, 2023 -- 9am-12pm
This event will be held outdoors at the San Gabriel/Pomona Regional Center parking lot area.
For more information, contact Josie Martinez (909) 710-8817 or Amos Byun (909) 710-8814
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Parents' Place Family Resource Center, Serving the San Gabriel and Pomona valleys, we are committed to supporting and enhancing family focused services in a parent driven atmosphere for families who have children with special needs, 0-22 years of age.
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The Parents' Place
28th Annual Information Fair and Festival
Sunday, April 30
Volunteers needed
More information 626-919-1091
Email tavia.l@parentsplacefrc.com
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REACH - A Parent support group for families who have children with special needs
1st Thursday of Every Month
7pm - 8pm Guest Speaker
8pm - 9pm Parent to Parent Support
More information 626-919-1091
Email tavia.l@parentsplacefrc.com
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If you are a parent or caregiver with questions about IRC client services, please contact:
Mari Rodriguez
Cultural Specialist
Community Engagement Department
mrodriguez@inlandrc.org
909-890-4781
Social Media
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Coffee Talk
Special Needs Parents Support Group
Thursday, April 13, 10am - 12pm
@CNUSD Parent Center
152 E 6th Street
Corona, CA 92879
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Art Class with Fania!
Every Third Tuesday
6pm -7:30pm
More information
Email asl@inlandrc.org
Phone 909-332-3639
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New Parent Orientation will be provided via Zoom. The trainings will be held from April 24, 2023 5:00 pm / 7:00 pm
More information
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Let's Dance Together
Saturdays 9:30am -10:30am
Via Zoom
More information
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The Early Start Family Resource Network provides a coordinated network of parent-to-parent support throughout Riverside and San Bernardino Counties in California. The ESFRN provides supportive services which include education, resources, and training to families with children who are at risk for or are experiencing delays or disabilities. We believe the family plays the central role in all aspects of the decision-making process by utilizing their strengths and engaging in parent/professional collaboration. The ESFRN assists families with system navigation and linking families with appropriate services in their communities. | |
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Your Village
Virtual Support Group for Families and Caregivers of individuals with Autism
The 2nd Wednesday of each month
6:30pm - 7:30pm
Zoom Mtg ID: 992 3203 7997
passcode: 393892
More information email jbenner@llu.edu
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Autism Independence Workshop / Life Beyond COVID
Wednesday, April 26
California Endowment
1000 N. Alameda Street
Los Angeles, CA 90012
Tickets $150
More information
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The Los Angeles County African American Infant and Maternal Mortality (AAIMM) Initiative is a countywide coalition dedicated to addressing the disproportionately high rates of Black infant and maternal deaths and ensuring healthy and joyous births for Black families in L.A. County. Led by the L.A. Department of Public Health (DPH) in partnership with First 5 LA, AAIMM was launched in 2018 as part of DPH’s 5-Year Plan to address the Black-White infant mortality gap in L.A. County. | |
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Black Community Baby Shower and Food Giveaway
Friday, April 14th from 12pm-3:00pm
At The African American Museum of Beginnings
1460 E. Holt Ave., Suite 188
Pomona, CA 91767
Black birthing mothers and community members will be able to receive essential items such as diapers, wipes, and more along with fresh produce. We will also be tabling and providing resources as well as details and information about our initiative along with the countless other organizations involved in this effort.
Register for the event
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List of Resources Provided by National Association of Councils on Developmental Disabilities - NACDD
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State Councils on Developmental Disabilities (DD Councils) identify the most pressing needs of people with DD in their states/territories and work to address them through advocacy, systems change, and capacity-building efforts that promote self-determination, integration, and inclusion. Check out our DD Councils fact sheet
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University Centers for Excellence in Developmental Disabilities Education, Research & Service (UCEDDs) are a nationwide network of independent but interlinked centers that address issues, find solutions, and advance research.
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State Protection & Advocacy Systems (P&As) help people navigate the legal system to achieve resolution and encourage systems change, ensuring they can exercise their rights to make choices, contribute to society, and live independently.
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Projects of National Significance (PNS) focus on the most pressing issues affecting individuals with DD and their families, creating and enhancing opportunities for people to contribute to and participate in all areas of community life.
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Independent Living Programs, including Centers for Independent Living, work to support community living by providing resources and supports that promote inclusion, integration, equal opportunities, and self-determination.
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Resources for Families with Regional Center Services
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California Disability Advocacy Conference
Organized by Arc of California, Easterseals, United Cerebral Palsy
April 25 - 27
Virtual event via Zoom
More information
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Black Characters & Cultures Books
#BlackBooksAllYear! Thanks to generous support from our partners at TD Bank, First Book is increasing the quantity and breadth of titles throughout the First Book Marketplace that uplift diverse Black and Brown authors, voices, characters, and stories.
More information
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Spring Into Wellness Community Health Festival
April 29, 11am - 3pm
Robinson Park Recreation Center
1081 N. Fair Oaks Ave
Pasadena CA, 91103
More info call Pasadena Public Health Department Phone: (626) 744-6118
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Script Reading
On the second and fourth Wednesday of every month at 11 AM, SCIL is partnering with
Stage Lights Forever Production Inc.,
to host a script reading, drama, and improv class.
Please give Armand a call at (909) 621-6722
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Pamper My Baby
April 10, 1pm - 5pm
IEHP Training Building
9500 Cleveland Ave
Rancho Cucamonga, CA 91730
April 25, 10am - 2pm
Inland Regional Center Building
1425 South Waterman Ave
San Bernardino, CA 92408
More information email INFO@CHASING7DREAMS.ORG
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Soulful Breast Feeding
SFYB is now enrolling 10 participants for the fifth cohort of our Soulful Breastfeeding Program. With this program participants will receive comprehensive breastfeeding education, essential breastfeeding support tools, private sessions with a Lactation Consultant after delivery, and peer support. Completion of our 4-week breastfeeding class is required to receive our additional program services. Programming for cohort 5 begins on March 30, 2023. Interested families can register using this link.
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Department of Mental Health Workshops
6 week workshop series
April 11 - May 9
4pm - 5pm
For more information call Josie Martinez 909-710-8817 or Amos Byun 909-710-8815
Register for workshops
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Students with Disabilities Resource Fair
A resource fair for Students with disabilities from birth to adulthood and their families.
April 15, 2023 - 10am - 1pm
West San Gabriel Valley SELPA
11204 Asher Street
El Monte, CA 91731
Phone 626-412-1438
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Culturally Competent
Vendors
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Behavior Genius
Narrowing the gap in access to quality behavioral healthcare
- ABA Services
- Social Skills Group
- Parent Coaching
- BG kids Club - Sibshops
More information
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