Dear Cure JM,

The Cure JM Foundation has always treasured the special role that grandparents play in their families and Cure JM. We hope you enjoy this collection of news specifically for you, our grandparents. 

Best regards,



The Cure JM Grandparent Council

A Council of Grandparents, For Grandparents

9 Ways Grandparents Can Support Their Family After Diagnosis

We understand how difficult it is when your grandchild is diagnosed with juvenile myositis. Finding the right resources and knowing your role in supporting your family can be burdensome.

With this in mind, we have compiled these tips from other JM grandparents on how to best support a grandchild, their siblings, and the family on this journey.

Looking for something fun to do to end the summer? Grab your grandkids and host a lemonade stand!

Twenty years ago, Cure JM co-founders Tom and Shari Hume set up the Foundation’s first-ever DIY fundraiser to seed important new research funding. What was the fundraiser of choice? Considering the couple had young children, a lemonade stand was the perfect fit to launch a rare disease nonprofit during humble beginnings.

Fast forward 20 years and $23 million invested in juvenile myositis research later, we have come full circle, paying homage to our early DIY roots. You guessed it! In 2023, we are bringing the lemonade stand back!

We’re inviting our grandparents to join us between now and October 3rd to cap off a great summer with your own lemonade stand. This is a great opportunity for anyone in the family to join the fight in a fun way before heading back to school. It would be so fun for grandparents and grandkids to work together to not only support JM research, but to create a fun summer memory!

Click the button below to read the full story and join us in hosting your own lemonade stand.

The Grandkids are Heading Back to School

With the month of August comes back to school preparation for our JM kids and teens around the country.

 

With summer winding down, we decided it was a good time to share resources on “Advocating for Your Child and Navigating School.” This article on our website carefully covers the many considerations that should be taken into account for students with juvenile myositis.

You’ll find anything from understanding 504, and IEP plans to working accommodations for your student. Click the link in our bio to review the full post and video presentation on this important topic. 

In the spirit of National Grandparent Day (September 10th), we are pleased to announce that the grandparent volunteers of Cure JM’s Grandparent Council are generously sending a small "thank you" gift to all JM Grandparents. 

This small token of appreciation is meant to honor your dedication to our rare disease warriors. Receive your complimentary gift from the Grandparent Council by clicking the button below.