RESOURCES


An estimated 26 million women ages 15 to 50 in the United States have fibroids. Endometriosis impacts 190 women worldwide. Nearly 5 million women in the United States live with polycystic ovary syndrome (PCOS). 


This Fibroids Awareness Month, learn more about the impact of a variety of uterine health conditions on women's health across the lifespan.

Check Out the SWHR Uterine Fibroids Toolkit


Fibroids can develop in any individual after the onset of their menstrual cycle. Although fibroids are most commonly diagnosed in individuals in their 30s and 40s, they can occur in adolescents and postmenopausal adults. Fibroids tend to increase during the reproductive years and then shrink after menopause.


These growths are non-malignant and are not associated with an increased risk of uterine cancer, but they can result in mild to severe side effects and can affect one’s quality of life.


SWHR’s toolkit is designed to empower individuals with uterine fibroids in navigating their care. Read the Uterine Fibroids Toolkit: A Patient Empowerment Guide!

While PCOS is often diagnosed after an individual experiences menstruation issues or infertility, this chronic condition impacts more than just ovulation. In the Exploring PCOS Throughout the Body Fact Sheet, learn how PCOS impacts mental health, heart health, and reproductive health in women.

Many girls have irregular bleeding and experience unusual pains during the first two years of their period, before their cycles become more regular (happening every 4–5 weeks). However, extremely painful periods are not normal. Read the Endometriosis Toolkit: A Guide For Teens to learn tips support teens living with endometriosis.


The toolkit is also available in Spanish, Kit de Herramientas para la Endometriosis: Guía para Adolescentes!

For every 10 women in your life, at least one of them likely has endometriosis.

This chronic and often debilitating disease can be difficult to live with, both physically and emotionally.


SWHR’s toolkit is designed to empower individuals with endometriosis in navigating their care: Endometriosis Toolkit: A Patient Empowerment Guide.

Advocate for uterine health funding!


Despite its prevalence, the exact cause of endometriosis is still unknown, and research into endometriosis has been underfunded and under prioritized. The Endometriosis Advocacy Toolkit was created by the Society with support from Endo What?, Endo Black, Inc., Endometriosis Foundation of America, and The Endo Co., in order to support endometriosis advocates in contacting their congressional representatives and asking for increased funding for endometriosis research and care.

Read more about uterine health on our blog!

SWHR Celebrates Reintroduction of the Endometriosis CARE Act

Closing Gaps in Physician Endometriosis Education

What to Know about PCOS this PCOS Awareness Month

NEWS AND RESEARCH


SWHR Working Group members have produced the following news, research, and resources related to uterine health:


News and Research


Events and Resources

Know something SWHR should read? Reply to this email or tag us on social media at @SWHR!

SHARE ON SOCIAL MEDIA


Join us on social media as share information about uterine health research and treatment! Follow #SWHRtalksFibriods, #SWHRtalksEndometriosis, and #SWHRtalksPCOS to learn more.

July is #FibroidAwarenessMonth. Fibroids are non-malignant growths of the uterus and are one of the most common gynecological conditions worldwide. This month, join @SWHR as #SWHRtalksFibroids. Learn more in SWHR’s Uterine Fibroids Toolkit! https://swhr.org/resources/uterine-fibroids-toolkit-a-patient-empowerment-guide/

Despite its prevalence, the exact cause of #endometriosis is still unknown, and research into endometriosis has been under prioritized. Use this new Endometriosis Advocacy Toolkit from @SWHR to advocate for more endometriosis care funding! https://swhr.org/resources/endometriosis-advocacy-toolkit/

#SWHRtalksEndometriosis

Check out the #SWHRtalksPCOS fact sheet now to learn more about how PCOS impacts mental health, heart health, and reproductive health in women. Visit the @SWHR webiat at https://swhr.org/health_focus_area/polycystic-ovary-syndrome/ and download your FREE fact sheet today! 

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PARTNER SPOTLIGHT


Our work is only possible with the help of great partners. Check out one of our uterine health partners here!

The White Dress Project


The White Dress Project is a nonprofit organization dedicated to raising global awareness about the uterine fibroid epidemic through education, research, community, and advocacy. The White Dress Project achieves its mission by educating individuals on fibroids and their treatment options, fostering research, advocating for better health, and building a supportive community so that women no longer have to suffer in silence when living with fibroids. For more information about The White Dress Project, visit http://www.thewhitedressproject.org.


Join The White Dress Project This July

The White Dress Project is celebrating 10 years of impact in spreading awareness on the widespread occurrence of uterine fibroids during Fibroid Awareness Month! And you are invited to help them celebrate! Join The White Dress Project at the 2024 EmPOWERment Experience July 11 to July 13 at the luxurious Conrad Washington, DC. The 3-day weekend will feature multiple events, including panel discussions, a Zumba session, an "Ignite in White" Photoshoot, the signature Night in White Fundraising gala, and more! Meet SWHR at the event: the Society will be exhibiting at this event.


The White Dress Project is offering a 20% discount to the SWHR community. Use discount code PARTNER20 and register for this year's EmPOWERment Experience here: 2024 Empowerment Experience — The White Dress Project 


How is The White Dress Project Advocating for Fibroid Awareness

The White Dress Project, alongside several partner organizations, endorsed The Uterine Fibroid Intervention and Gynecological Health and Treatment Act (U-Fight Act) and delivered remarks showing its support of the legislation in Washington, DC on ​May 16, 2024. Congresswoman Shontel Brown (OH-11) introduced the U-Fight Act to authorize grants to increase early detection and intervention of uterine fibroids.

All SWHR resources are free to view and share. Here's why: An estimated 26 million women ages 15-50 in the United States have uterine fibroids, but these statistics are often underestimated.

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