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ACCRF Patient Events
March 2018

 ACC Patient Meetings

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ACC Patient Meetings
2017 Patient Meeting, Boston, USA

Patient gatherings are not for everyone. Some people prefer to deal with their diagnosis within a small circle of loved ones. However, many initially-cautious patients are surprised by how comforting and cathartic it can be to share experiences with others facing the same rare disease. Fortunately, there are a growing number of patient gatherings across the globe. Please consider attending one of the following events that typically include a few hours of socializing and research updates while sharing a meal or two.
ACCRF Patient Meetings:

St Paul, Minnesota, USA - May 19, 2018  (email )

Boston, MA, USA  - Sept/Oct 2018 TBD (email )

ACCOI Patient Meetings:

Winter Gardens, FL, USA - April 28, 2018 

London, UK - May 12, 2018 (email

Langhorne, PA, USA  - June 2, 2018 (email

Patients who would like to organize a gathering in their own region may contact Pascale Reich at ACCOI ( 

European Patient Meeting:

Turin, Italy - September 15, 2018 (email

Upcoming Races

May 20, 2018 
St. Paul, MN, USA

Gabe Grunewald  has been living with ACC for nearly ten years.  During these time ACCRF's work  - to accelerate the development of improved therapies and a cure for the disease - has given Gabe the hope and courage to train and race through her struggles with this disease.     Now Gabe wants to return the favor and offer her thanks through this race and its proceeds.  

To register, click here:   Brave Like Gabe 5K to Support ACCRF

Kellie's Krew 10K, 5K, 1 Mile Fun Run
August 25, 2018
Dunn, NC, USA

Kellie Hinshaw was diagnosed with ACC in 2000 and was a tireless advocate for those undergoing cancer treatment. She spent countless hours encouraging others who fought their own battles. Through her work, the Kellie's Krew, Ltd. Foundation was formed in 2013 to fund research, raise awareness, advocate for a cure, and provide financial assistance to those currently undergoing treatment.

To learn more, click here:  Kellie's Krew

Thank You to the Patient Community!
2018 #DODGEACC Team

ACC Survivor, Shawn Elizabeth George (second from right), celebrated the first anniversary of her maxillectomy surgery by hosting a Dodgeball Fundraiser to benefit ACCRF.  On March 9th in Avon, CT, youth and adult teams met to have fun, dodge balls and raise over $10,000 to support ACC research!

To see more pictures from this event, and/or learn more about Shawn's journey with ACC, visit

If you would like to host a #DODGEACC fundraiser, please send us an email and we will help you organize a similar event.

Matching Gift
Last year, we informed you of a matching gift opportunity totaling $150,000. And the patient community stepped up! 

This $150,000 was  fully matched , helping ACCRF to continue supporting the most impactful ACC research.

Due to our research successes, many new and exciting proposals are flowing to ACCRF from a growing and energetic set of researchers. For example, ACCRF grants are allowing researchers to:  
  • Understand how to harness the patient's own immune system to shrink ACC tumors
  • Discover new drugs to attack the molecular Achilles' heel of the disease
  • Identify which ACC tumors will be the most aggressive and in need of earlier treatment
We need your financial help to make sure that improved therapies and a cure flow from these proposals.

Please consider making a contribution today!

 Please Help Support ACC Research