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30 Days and 30 Ways to Celebrate
Children's Cardiomyopathy Awareness Month
Join us this September in raising
awareness of pediatric cardiomyopathy, the number one cause of sudden cardiac arrest and heart transplants in children. In every state, city and neighborhood there is most likely a child with cardiomyopathy - one diagnosed today and one diagnosed tomorrow. You can help us get the word out that heart disease isn't just about adults; it affects
kids too.
In three easy ways, you can increase awareness of pediatric cardiomyopathy throughout the month of September.
To view each week's activities and the complete awareness activity calendar,
click here.
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Learn & Share
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- Know the signs and symptoms of cardiomyopathy to help identify children who may be at risk for a sudden cardiac arrest.
- Share facts about the disease on social media to educate others.
- Give CCF materials to physician offices, hospitals, community centers, churches and libraries.
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Take Action
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- Join Team CCF and Walk for a Cure to raise awareness and funds for research.
- Write to a member of Congress and ask for their support of life-saving legislation to protect kids with cardiomyopathy.
- Take a photo of an automatic external defibrillator (AED) and share its location on social media to prevent another sudden cardiac death.
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Show & Tell
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- Tell friends about a heart kid you know or one of CCF's featured heart kids.
- Get the community involved with CCF's Walk for a Cure.
- Post a #thankyouthursday (Thank You Thursday) about a member of Congress who is working to keep children with cardiomyopathy safe.
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The Children's Cardiomyopathy Foundation is pleased to partner with the following organizations on this month-long awareness initiative: American Academy of Pediatrics, American College of Cardiology, American Heart Association, Centers for Disease Control and Prevention, National Association of School Nurses, National Athletic Trainers' Association, National Organization for Rare Disorders, Parent Heart Watch, Sarcomeric Human Cardiomyopathy Registry (ShaRe), School-Based Health Alliance, Sudden Cardiac Arrest Foundation, and The Society of Thoracic Surgeons.
Follow us on Facebook and Twitter for daily activities and join Team CCF for a Walk for a Cure. For more information, contact Sheila Gibbons via
email or at 866.808.2873 ext. 902
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