News from the NODCC

Save the dates! The NODCC 2024 Disorders of the Corpus Callosum Conference will be held next summer in Chicago, Illinois, at the Marriott Chicago O'Hare on Thursday, June 27 - Sunday, June 30. We hope you will all be able to join us!



The success of every NODCC conference depends upon the generosity of our entire membership, most especially upon those families living in the conference location region.



A Chicago area family gathering is planned for August 12 at 12:00 pm at the conference hotel. Lunch will be provided and families are welcome!

Marriott Chicago O'Hare

8535 West Higgins Road

Chicago, IL 60631


Please email Barbara at info@nodcc.org if you will be joining us on the 12th or if you would like to be part of our local conference team but aren't able to attend the lunch.

Celebrating 20 Years of the NODCC – 2003-2023

Co-Founder Lynn Paul Looks Back on Where the NODCC Has Been, Where We Are Now, and Where We’re Headed

By Miriam Bernard



Dr. Lynn Paul, co-founder of the NODCC and Doctor of Clinical Psychology, is one of the few individuals who was present to witness the idea of the NODCC as just a seed, and has had the privilege of watching it blossom into something she deems “profoundly rewarding”.  Enjoy this look back, as we learn from Dr. Paul how the NODCC came about and the groundbreaking research that has acted as fuel to bring the NODCC to where we are today.

Click Here to Read More

Fundraisers & Donations

Matching Gifts

Don’t forget to check for matching funds from your employer. Many companies have matching gift programs that will equal or exceed employees’ charitable donation amounts.

Facebook Fundraisers

Fundraising for charities on Facebook is an easy way to help raise money for the NODCC. Simply click on the “Support Nonprofit” option when creating a new Facebook post and select the NODCC as the recipient. Birthdays, memorials, remembrances, and celebrations are great events to encourage giving from your family and friends.


Looking for other ways to support? The NODCC is searching for sponsors and partners who want to support our organization. We encourage all readers of the newsletter to send company names or potential company contact information to info@nodcc.org.


Donate to keep our community thriving!

Build (and Benefit from) our Resource Directory!


Did you know the NODCC website has a resource directory of recommended doctors, dentists, therapists, schools, services and more - all added by our own community members? If you're looking for a DCC friendly service in your area, currently 20 states are represented and you might find exactly the service you've been looking for. However, we know that within our NODCC community is still a gold mine of excellent professionals and services that are NOT yet in our directory, simply because no one has taken the time to add them! Is there a doctor who treated your DCC family member with compassion and kindness? Add them to the directory! Found an adult service that perfectly suits your loved one? Add it to the directory! If you have five minutes to spare, you could make our resource directory and community better by doing the following:


1. Go to https://nodcc.org/

2. Hover over the "Resources and Support" tab

3. Under "Resource Center", Log In to your NODCC account, or register (takes 2 minutes - must be logged in to access or add to directory)

4. Once logged in, click "Resource Directory"

5. Explore the 22 distinct categories of professionals and services

6. To add a listing, click "Add Listing" in the upper right corner.

7. Follow the prompts to input the information of the service you're recommending in your area

8. Feel GREAT that you helped fellow families in need of DCC friendly services!


Access the directory directly HERE! Thank you in advance for helping to grow our directory and share valuable services with your fellow NODCC community members!



With the first day of school right around the corner, we want to provide our community with tools to tackle the new school year. Click the following button to share what has worked best for you:

Click Here

Contact Us

(714) 747-0063 I info@nodcc.org I nodcc.org

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