🎃 The CARE Community - October 2022 Newsletter

CARE Newsletter

In this issue, you will find upcoming events, news, and work that CARE's partners have been conducting to serve the diverse Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities.

CARE Registry:

Giving AANHPI Communities a Voice Through Research

Currently, AANHPI populations are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AANHPI adults to various types of research.

As of October 2, 2022, 9,405 people have signed up to increase AANHPIs' representation in research!

Click to learn more about CARE Registry

Some examples of potential research studies that CARE registry participants may be contacted about include:

Prevention or treatments for Alzheimer’s disease and related dementias
Health issues across the lifespan
Caregiving issues and improving the health and wellness of caregivers

If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care

*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:

Simplified Chinese (简体中文)

Traditional Chinese (繁體中文)

Hindi (हिन्दी)

Korean (한국어)

Vietnamese (Tiếng Việt)

Samoan (Sāmoa)

Watch our 30 second animated videos in

Englis h, Korean, Mandarin, Cantonese, Vietnamese

CARE's anniversary is on October 15th!

2022 Walk to End Alzheimer's

Silicon Valley, CA

Saturday, October 15, 2022

Registration 8:00 am | Ceremony 9:00 am | Walk at 9:30 am

Across the nation, the Alzheimer's Association Walk to End Alzheimer's® is full of flowers, each carried by someone committed to ending this disease. Because like flowers, our participants don't stop when something's in their way. They keep raising funds and awareness for a breakthrough in the fight against Alzheimer's and all other dementia.

This event is in-person and requires registration.

Excite Ballpark, The San Jose Giants Stadium

(588 E Alma Ave, San Jose, CA 95112)

Registration Link

If you have any questions or comments, please email svwalk@alz.org or contact Shanna Webb at (408) 372-9973 or Zack Suggs at (850) 890-9891.

The Alzheimer’s Association is a CARE community partner.

Health and Research :

A Perspective From Filipino Health Professionals

Saturday, October 15, 2022 @ 11:00am - 12:00pm PST

Join us for a panel discussion about inclusion in research for the Filipino community. Filipinos are the largest Asian subgroup in California- help us to increase Filipino representation!

This webinar aims to inform the community on the importance of participation and increasing representation for Filipinos in health research. We aim to do this to ensure that the next generation of innovations can benefit and represent Filipino insights.

This event is presented on Zoom in English.

Registration is required.

5th Annual Vietnamese Caregivers Conference

Saturday, October 22, 2022 @ 9:30am - 1:00pm PST

Vietnamese-American Community Center (VACC)

2072 Lucretia Ave, San Jose, CA 95122

This event will be held in person and will be conducted in Vietnamese.

Registration is required.

or contact Anh Do at (408) 260- 5578

The Alzheimer's Association and ICAN are CARE community partners.

CARE tabled at Crack the Wellness Code

We had a great time at the Crack the Wellness Code (CWC) event on September 25th at the India Community Center in Milpitas! We joined Stanford CARE to showcase the importance of diversity and representation in research for Asian Americans, Native Hawaiians, and Pacific Islanders. We enjoyed talking to all who stopped by our table, listening to the accomplished speaker panel, and engaging in the various interactive and cultural activities during the event!

How a lack of disaggregated data

affects AANHPI health

CARE was featured in a recent AsAmNews article which highlights the issue of AANHPI populations being lumped under one single “other” category when it comes to health data. This lack of disaggregated data has limited our knowledge and understanding of the extent to which health issues affect the AANHPI community. Having data disaggregated by ethnic groups can help providers better recognize risk factors and vulnerable populations. This is important because receiving culturally competent and tailored medical care would help improve the health of our AANHPI community.

Read more here

CARE Ambassador Program

The CARE Ambassador program is a newly created volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American, Native Hawaiian, and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.

Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.

To apply scan the QR code.

After completion, you will be contacted shortly by our Ambassador team.

American Samoa Community Cancer Coalition

announces new research study, Puipui Malu Manatu!

Little is known about the risk and prevalence of Alzheimer’s Disease and Related Dementias (ADRD) in the American Samoa population.

The American Samoa Community Cancer Coalition (a CARE community partner) has been awarded a research grant from the National Institute on Aging for their new study titled Puipui Malu Manatu, or “protecting memories.” This study will test innovative approaches to increase research readiness, improve ADRD detection, and conduct genetic testing of ADRD among American Samoans. Dr. Van Ta Park, CARE’s principal investigator, will be serving as one of the Co-Investigators for this new study.

Read the full press release statement here and visit their website here.

The Asian Cohort for Alzheimer’s Disease (ACAD)

is looking for volunteers!

Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.

The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older.

Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.

All participants will be compensated for their time and effort.

Visit ACAD study website or the animated videos in English, Cantonese, Mandarin, Korean, and Vietnamese for more information.

If you are interested in participating in the study,

fill out this online form or email acad@ucsf.edu.

The Vietnamese Insights into Aging Program (VIP)

The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.

In January 2022, we will be recruiting volunteers who:

identify as Vietnamese American
are 65 years or older
reside in Northern California
can speak either English or Vietnamese
have immigrated from Vietnam

All participants will be compensated for their time and effort.

If you are interested in participating in the VIP study,

Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144.

Sacramento residents, contact us at vip@ucdavis.edu or (916) 432-4197.

[A]round 76-77 years of age, he started developing symptoms of Alzheimer’s disease. We could not detect earlier, but children and his friends started telling me that he is losing his memory. I also started noticing…He was a very strong personality. He started getting very angry at small things. Very small issues made him angry. Then, I also realized that he is losing his memory.