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CARE Newsletter
In this issue, you will find upcoming events, news, and work that CARE's partners have been conducting to serve the diverse Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities.
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CARE Registry:
Giving AANHPI Communities a Voice Through Research
Currently, AANHPI populations are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AANHPI adults to various types of research.
As of February 5, 2023, 9,826 people have signed up to increase AANHPIs' representation in research!
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Some examples of potential research studies that CARE registry participants may be contacted about include:
- Prevention or treatments for Alzheimer’s disease and related dementias
- Health issues across the lifespan
- Caregiving issues and improving the health and wellness of caregivers
*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
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Watch our 30 second animated videos in
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CARE Brain Trust Meeting
Monday, March 13th, 2023 @ 10:00 - 11:00 AM PDT
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We are excited to announce that we are hosting another Brain Trust Meeting! Join us on Monday, March 13th from 10 am - 11 am PST, for this free virtual event to learn more about opportunities with CARE to improve Asian American, Native Hawaiian, and/or Pacific Islander (AANHPI) representation in your research or organization's work. We look forward to seeing you there!
This event is presented on Zoom in English.
Registration Link
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2023 National Research Summit:
Care, Services, and Supports for Persons Living with Dementia and Their Care Partners/Caregivers
Monday-Wednesday, March 20-22, 2023
8:00 AM – 1:00 PM PDT
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The National Research Summit on Care, Services, and Supports for Persons Living with Dementia and their Care Partners/Caregivers (Dementia Care and Caregiving Research Summit), the Alzheimer’s Research Summits, and the Alzheimer’s Disease-Related Dementia Summits provide coordinated planning efforts that respond to the National Plan to Address Alzheimer’s Disease. Each summit provides an opportunity for individuals to share perspectives about critical scientific gaps and opportunities that reflect critical scientific priorities for Alzheimer’s disease and Alzheimer’s disease-related dementias (AD/ADRD) research. The summits can inform updates to the NIH AD+ADRD Research Implementation Milestones that address the National Plan.
CARE's principal investigator, Dr. Van Ta Park, will be presenting during session 8 on Day 3 of this 3-day event.
This event is presented on Zoom in English.
Registration Link
The CARE research project is supported by the National Institute on Aging of the National Institutes of Health.
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The CARE Ambassador program is a volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American, Native Hawaiian, and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.
Upon completion of the program, CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.
| After completion, you will be contacted shortly by our Ambassador team. | CARE's 2023 Brief Report is Now Available! |
Read and share an organized overview of CARE’s purpose, partners, participant demographic, status of referral requests from research investigators, outreach activities, and next steps. | | | COMPASS’ 2023 Brief report is now available! |
COMPASS' 2023 Brief Report | COMPASS is a nationwide online survey about the COVID-19 mental and physical health effects on Asian Americans & Pacific Islanders. Please see our brief report on our findings thus far! | | | New Project Launch: The KIMCHI Project |  | |
It is challenging to find accurate and up-to-date information on care and advance directives for Korean American caregivers. KIMCHI (Koreans Invested in Making Caregivers Health Important) is an educational outreach project that will provide information on various health topics tailored to the Korean American culture for caregivers and other stakeholders that serve Korean Americans. KIMCHI, funded by a Patient-Centered Outcomes Research Institute Eugene Washington PCORI Engagement Award, will share this information with Korean American caregivers and family members so they can feel comfortable using knowledge from the latest research to better care for themselves and their loved ones. Dr. Van Ta Park is the principal Investigator for this new project.
Visit the KIMCHI project website to learn more.
Support KIMCHI on Facebook, Twitter, and Youtube!
If you are interested in participating in KIMCHI, please fill out this online form and leave the following message in the message box “I found KIMCHI through the CARE e-newsletter.” You can also email kimchi@ucsf.edu to find out how to get involved.
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The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
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Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.
The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older.
Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.
All participants will be compensated for their time and effort.
If you are interested in participating in the study,
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The Vietnamese Insights into Aging Program (VIP) | |
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.
In January 2022, we will be recruiting volunteers who:
- identify as Vietnamese American
- are 65 years or older
- reside in Northern California
- can speak either English or Vietnamese
- have immigrated from Vietnam
All participants will be compensated for their time and effort.
If you are interested in participating in the VIP study,
Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144.
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CARE Ambassador: Nora Lyang | |
We are ecstatic to recognize and congratulate one of our CARE ambassadors, Nora Lyang! Nora has been with our program since the beginning and we are so grateful to have been able to work with her. We are so proud of Nora for all of her hard work and commitment to promoting CARE's mission at several outreach events! We wish her the best of luck as she heads off to medical school. 🥳 | | |
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Back then, I did not know what dementia meant while in the Philippines. When old people reach the stage of being forgetful and unkempt, it is often thought that those behaviors are just “part of aging, senility, and etc.” Most of the time, people in the Philippines will always say the word “Ulyanin na” or “Malilimutin na”, which means forgetfulness. In the Philippines, it was like a taboo if their loved one had dementia because they are embarrassed to find out if one of their family members had dementia. | |
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Our mailing address is:
Phone: (669) 256-2609
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