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CARE Newsletterļ»æ
In this issue, you will find upcoming events, news, and work that CARE's partners have been conducting to serve the diverse Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities.
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CARE Registry:
Giving AANHPI Communities a Voice Through Research
Currently, AANHPI populations are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AANHPI adults to various types of research.
As of December 31, 2022, 9,759 people have signed up to increase AANHPIs' representation in research!
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Some examples of potential research studies that CARE registry participants may be contacted about include:
- Prevention or treatments for Alzheimerās disease and related dementias
- Health issues across the lifespan
- Caregiving issues and improving the health and wellness of caregivers
*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
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Watch our 30 second animated videos in
| CARE and ACAD Presented at The Villages | On Saturday, December 10, 2022, Dr. Boon Lead Tee and Dr. Marian Tzuang gave presentationsā The Many Faces of Dementia: How is Dementia Diagnosed? " and "What is the CARE Registry?"ā to The Villages Golf & Country Club in San Jose, CA. We had a great turnout and it was lovely to see many attendees engaged and interested in ACAD, CARE, and brain health. Thank you to The Villages for this opportunity! |
The CARE Ambassador program is a volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American, Native Hawaiian, and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.
Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.
| After completion, you will be contacted shortly by our Ambassador team. | |
New Alzheimers Fact Sheet Resource! | |
Alzheimerās disease is currently ranked as the seventh leading cause of death in the United States and is the most common cause of dementia among older adults. To learn more, please view the fact sheet provided by the National Institute of Aging. | |
The Asian Cļ»æohort for Alzheimerās Disease (ACAD)
ļ»æis looking for volunteers!
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Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimerās disease research.
The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimerās disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older.
Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.
All participants will be compensated for their time and effort.
If you are interested in participating in the study,
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The Vietnamese Insights into Aging Program (VIP) | |
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.
ļ»æIn January 2022, we will be recruiting volunteers who:
- identify as Vietnamese American
- are 65 years or older
- reside in Northern California
- can speak either English or Vietnamese
- have immigrated from Vietnam
All participants will be compensated for their time and effort.
If you are interested in participating in the VIP study,
Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144.
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When my mom started to display symptoms, my brother and sister felt that I intentionally
ļ»æexaggerated the severity of my mom's condition. Until my brother took a trip with my mom, my mom didnāt take her medicine for many days. Finally, my brother couldnāt stand it when my mom walked to the middle of the road and stayed there. Even my brother tried to lead her away, she did not move and pinched him with her nails. In fact, this was the onset of the disease, but my brother didnāt know.
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