TESS Superhero February Check In: Tessa

Tessa is now 20 and lives in California. Here are some fun facts about Tessa:

• Tessa volunteers at an animal shelter.
• Tessa and her family have their own cats and chickens!
• Tessa’s favorite color is still purple!
• Tessa is still a healthy eater and she also likes to eat chips and quesadillas with her friends.
• One of Tessa’s favorite things to do is dance!

Read more about Tessa here.

J. Kiffin Penry Award for Excellence in Epilepsy Care

Dr. Brenda Porter, MD, PhD, FAES, was honored with the 2023 J. Kiffin Penry Award for Excellence in Epilepsy Care at the American Epilepsy Society Annual Meeting in December!

The award recognizes individuals whose work has had a major impact on patient care and has improved the quality of life for persons with epilepsy.

Let's celebrate her remarkable achievement together!

Read the press release now.

White House Rare Disease Forum

The White House Office of Science & Technology Policy hosted a Rare Disease Day forum on February 29, 2024. We are so proud of all our rare disease partners who spoke at the White House!

Watch the forum here.

Atherton Living

Family members of TESS Superheroes Tessa and Colton opened up about their journeys with loved ones having SLC13A5 Epilepsy in the November 2023 edition of Atherton Living.

Dive into this article now!