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CARE Newsletter
In this issue, you will find upcoming events, news, and work that CARE's partners have been conducting to serve the diverse Asian American, Native Hawaiian, and Pacific Islander (AANHPI) communities.
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CARE Registry:
Giving AANHPI Communities a Voice Through Research
Currently, AANHPI populations are among the least represented groups in scientific research. The goal of CARE is to overcome barriers to research participation and connect AANHPI adults to various types of research.
As of August 28, 2022, 9,198 people have signed up to increase AANHPI representation in research!
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Some examples of potential research studies that CARE registry participants may be contacted about include:
- Prevention or treatments for Alzheimer’s disease and related dementias
- Health issues across the lifespan
- Caregiving issues and improving the health and wellness of caregivers
If you haven't already, please consider enrolling in CARE at: https://careregistry.ucsf.edu/enroll-care
*CARE'S WEBSITE AND MATERIALS ARE AVAILABLE IN:
Simplified Chinese (简体中文)
Traditional Chinese (繁體中文)
Hindi (हिन्दी)
Korean (한국어)
Vietnamese (Tiếng Việt)
Samoan (Sāmoa)
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Watch our 30 second animated videos in
| September is World Alzheimer's Month |
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Brain Trust Meeting
Monday, September 19, 2022 @ 10:00am - 11:00am PST
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If you're interested in learning how to improve Asian American, Native Hawaiian, and Pacific Islander representation in your research, come to our Brain Trust Meeting to learn more!
Join us to dive deep into CARE, how researchers can use CARE, what a partnership with CARE is like, and see what opportunities CARE can offer. Raffles will also be held at the end of the meeting.
This event is presented in English.
Registration Link
| CARE and ACAD gives Mandarin Presentations | On Wednesday, August 24, 2022, Dr. Boon Lead Tee and Dr. Marian Tzuang gave Mandarin presentations— Brain Aging vs. Dementia" and "What is CARE Registry?"— to the Chinese Club at The Villages Golf & Country Club in San Jose, CA. It was great to see many attendees engaged and interested in ACAD, CARE, and brain health. Thank you to the Chinese Club for this opportunity and we look forward to more in-person talks at The Villages! | |
CARE tabled at the
SJ Lions Club Island Brunch 2022
| On Sunday, August 28, 2022, CARE staff and intern Nicole and Chandra tabled for CARE at SJ Lion’s lsland Brunch fundraiser in San Jose's Japantown. It was a lovely morning seeing the community come out to enjoy a morning meal made and served by the SJ Lions while also learning about how to improve AANHPI representation in research. Thank you to all who showed interest in CARE! | CARE celebrated Chuseok in San Francisco | On Saturday, September 10th, many of our staff, interns, and ambassadors came out to promote CARE at the 4th Annual Bay Area Chuseok Festival in San Francisco! Chuseok is the Korean mid-autumn harvest festival and this big event was hosted by Korean Center, Inc. (KCI), a CARE community partner. We enjoyed meeting new people, watching the cultural performances, and engaging in the many interactive activities offered. Thank you to KCI for inviting us and thank you to everyone who stopped by our table! | |
The CARE Ambassador program is a volunteer opportunity by the CARE Registry, open to high school students, college students, and recent undergrad graduates. Participating as a CARE Ambassador will help leverage community connections and assist the Asian American, Native Hawaiian, and Pacific Islander community to increase research participation and representation. Working as a CARE Ambassador will foster new learning experiences involving hosting virtual events, in-person tabling, and more depending on your capacity. CARE Ambassadors will also have the opportunity to gain skills in community outreach, data management, research, ethics, and team collaboration.
Upon completion of the program CARE Ambassadors will receive a certificate as well as gained knowledge from our online trainings.
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To apply scan the QR code.
After completion, you will be contacted shortly by our Ambassador team.
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Dr. Tiffany Chow shares her insights on
Alzheimer's Disease among AANHPI Populations
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The Asian Cohort for Alzheimer’s Disease (ACAD)
is looking for volunteers!
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Asians are among the fastest growing populations in the United States and Canada, yet they are underrepresented in Alzheimer’s disease research.
The ACAD study is a collaboration across multiple universities and community partners in the U.S. and Canada to better understand how genetics and lifestyle factors impact Alzheimer’s disease risk in Asian Americans and Asian Canadians. Dr. Van Park (CARE Principal Investigator) is one of the principal investigators for ACAD, and UCSF is one of the recruitment sites. This study will be looking for healthy volunteers, people concerned about their memory and thinking, and people diagnosed with Alzheimer's disease who are 60 years old or older.
Edie Yau (Alzheimer's Association) and Quyen Vuong (International Children Assistance Network) (both CARE Community Advisory Board members) also serve on the ACAD Community Advisory Board. Joyce Cheng, Executive Director of the Chinese Community Health Resource Center (also a CARE Community Advisory Board member), is one of ACAD's community partners.
All participants will be compensated for their time and effort.
If you are interested in participating in the study,
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The Vietnamese Insights into Aging Program (VIP) | |
The Vietnamese Insights into Aging Program (VIP) is a brand-new study funded by the National Institute on Aging and is a collaboration between academic universities (UC Davis and UCSF) and community-based organizations (ARI and ICAN). The purpose of this study is to better understand factors that impact thinking and memory in the Vietnamese American community. Dr. Oanh Meyer (CARE Co-Investigator) is the Principal Investigator (PI) of VIP and Dr. Van Ta Park (CARE PI) along with several CARE Co-Investigators are also involved in VIP.
In January 2022, we will be recruiting volunteers who:
- identify as Vietnamese American
- are 65 years or older
- reside in Northern California
- can speak either English or Vietnamese
- have immigrated from Vietnam
All participants will be compensated for their time and effort.
If you are interested in participating in the VIP study,
Bay Area residents (San Francisco Bay area including San Jose, San Francisco, Oakland, etc.), contact us at ucsfvip@ucsf.edu or (408) 609-9144.
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I think dealing with these two people with Alzheimer’s at that time was very, very difficult. It really does test one’s patience and many times, I had to keep reminding myself, well you know they’re ill. It's an illness, so you know to remind myself, please be more understanding, be more patient.
And patients like my husband, my mother, they have good days but they also have bad days. And the good days, it seems as if there was really nothing wrong with him, it seems like they were normal.
In fact, one of my brothers-in-law, visited my husband one day and said, “I don’t think Art has dementia at all.” Well that happened to be a good day. The next day, he was back to ill, not knowing anything, keep asking the same questions.
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Copyright © 2020 University of California, San Francisco, All rights reserved.
Our mailing address is:
Phone: (669) 256-2609
中文:(510) 402-6306
한국어:(408) 320-7642
Tiếng Việt:(415) 580-0845
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